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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Does it sound like DS is autistic?

83 replies

AnxietyIsMyShadow · 28/12/2022 07:35

Hi, probably wrong place to post but desperate for advice. I’m really worried about DS (3 next month) and would appreciate it if anyone could offer advice as to whether it sounds as though I need to be looking into an ASD referral for him please.

speech - he knows what everything around him is (if I ask him he will say “it’s a helicopter mum” for example) or if I ask him to point to the door etc he will. Most of his speech is repetitive phrases however, he will say the same things over and over again and when asked a question will answer in the same way each time “do you want a banana?” “I want a banana mum, I want a banana” no variation on this, never “yes please” or “yum a banana” etc

he knows his name, but I could say his name 100 times and he won’t respond.

if I ask him questions he often replies using the words I’ve used “let’s put your coat on” he will say “put coat on” sometimes says “ok mum” in response. eye contact is variable - sometimes he looks at me when interacting, or to see my reaction to something, whereas sometimes I feel like I’m desperately trying to get him to look at me.

socially - has a 6yr old sister who he loves and likes to play with, if we are at the playground etc with her and her friends he likes to join in chase games etc. has no fear of climbing things etc, not at nursery yet but take him to toddler classes where he varies between being very sweet with other children (doesn’t make a fuss if someone takes his ball etc) and if someone’s crying will comment to me “someone’s crying”, recognises emotions such as “daddy’s angry!” etc, not bothered by loud noises, to being totally uninterested and just doing his own thing running around, doesn’t talk to any of the kids there although to be fair I don’t see them all chatting away to each other either. With adults it’s totally different - he is massively overfamiliar with adult men he doesn’t know and will run up to them saying hello daddy (??? Even if they look nothing like his dad) and trying to cuddle them/tap them on the leg/rugby tackle them, doesn’t do this to women at all and actually got really upset when a female friend of mine he doesn’t know well picked him up recently to help him onto a bouncy castle.

Intelligent - can count past 100, knows the alphabet and colours/shapes, knows a few songs which he sings regularly.

doesn’t seem to have the fixation with spinning things I’ve read is common but does do things obsessively and repeatedly- lining up toys, puzzles, plays with things the same way every time. On TV will only want to watch the same programmes and has a routine of asking for one, waiting for me to put it on them asking for the next one, I can guarantee he will do this every time we we turn the TV on.
trying to encourage pretend play as this isn’t something he does without encouragement. So if I ask him “let’s put dolly to bed” he will do it and say “dolly’s in bed!” But he wouldn’t pretend to feed his toys by himself if you see what I mean.

sleep is a nightmare - almost 3 and never once slept through the night, wakes regularly, always up very early every single day (average is 4.30am), obsessive about being breastfed and any attempts to wean him are met with absolute fury.

my daughter unbelievably never tantrummed, so when DS has meltdowns I don’t know if it’s typical toddler unreasonable behaviour or if something else is going on, particularly as the meltdowns occur if you try to interrupt something he is doing or if something is unexpected- he loves to visit every aisle in order in the supermarket and if I try to skip an aisle he will literally be kicking and screaming because we have missed a number.

Does this sound like he is autistic? Any advice welcome, Thankyou xx

OP posts:
NameIsBryceQuinlan · 28/12/2022 12:20

When my son was diagnosed at 2 they looked across

Communication and Play
Social Interaction
Repetitive Behaviours

Do you believe your son has traits different to typical kids in these three categories? It's no good just taking one small thing. The diagnosis process is very thorough.

fairybaby · 28/12/2022 12:44

Seeking a diagnosis won’t MAKE him autistic. The professionals will decide if there is enough traits to warrant further investigation.

You also could keep a journal, with what you see, etc. It will help you organise your thoughts and help with any possible assessment.

Autumnalblooms · 28/12/2022 12:48

AnxietyIsMyShadow · 28/12/2022 11:36

I’m so scared at the idea of him not making friends and feeling lonely, or being made fun of or being labelled as “naughty” or “weird” or getting into danger.

Op please don't worry about this .I have two teen DD's with asd .Both high functioning but both completely different. And they both have a fantastic network of good friends who actually quite protective of them , even though they can stand their own .Won't lie autism comes with it highs and lows .I used to work with autistic adults so I was more prepared but it is different when it is your own Dc .But would I change them .Absolutely not they are amazing kids .

From what you say I agree with getting assessed he is showing traits that could be autistic and you will know for definate .He may be a bit young to assess yet I am not up on the age they start with the assessment.

Glitterandcard · 28/12/2022 12:52

AnxietyIsMyShadow · 28/12/2022 11:36

I’m so scared at the idea of him not making friends and feeling lonely, or being made fun of or being labelled as “naughty” or “weird” or getting into danger.

I was you a few years ago, right down to the trying to enrol him in classes and the terror that he wouldn’t be liked. You’re in a really hard stage right now, the wondering and questioning and examining everything he does is exhausting and heartbreaking and scary. All I can say is a few years on, with a diagnosis of autism, and my son is thriving, happy at school, funny, popular with both staff and his peers and I couldn’t be prouder of him. He’s if anything more obviously autistic than ever, but he’s also better at coping and we’re better at making his environment etc work for him. Sure, he has difficulties with some things and he drives me to tears regularly, but we have a good family life and we’re mostly happy. It’s not like that for every family or person with autism, I don’t want to be too “Pollyanna” about it, but please don’t automatically assume he’s condemned to a life of misery. Take it one day at a time.

MerryChristmasTree · 28/12/2022 13:05

Literally everybody else around in the family tried to talk me down.

I’ve found grandparents to be the worst. Why do you want to label them? It’s all a personality trait. Really fucking supportive.

Oher · 28/12/2022 13:21

Keep an open mind OP. My DS has always had a few behaviours that lead friends to say ‘Do you think he could be autistic’ but we’ve done all the questionnaires and medical assessments and the answer is no he is not, he just likes hand flapping and is very sensitive to sound. 🤷‍♀️

Whether your son is or is not autistic that doesn’t change who he is, it just means that if he is, he may need and get more support at school / you may want to use different learning strategies with him.

For some case of autism it’s a problem/disability, but for others it’s just a different way of relating to the world that previous generations wouldn’t even have noticed.

AnxietyIsMyShadow · 28/12/2022 13:26

@Oher thankyou ❤️

OP posts:
Zeb81 · 28/12/2022 13:40

It does have some points which may indicate ASD but if you know one child with ASD you know 1 child. Every kid is different so you need to look at his strengths, he sounds super intelligent, social things will develop with work.

I will say parent the child, there are loads of tips and you can put these into place now, a diagnosis only really helps with other people and feelings of judgement. It's not a label nor a bad thing, but may help you understand him more.

Both of mine have been diagnosed, they both have strengths and struggles, both have good friends and have worked well (unknowingly) and are now much more comfortable in social situations now aged 12 and 9.

emptythelitterbox · 28/12/2022 14:15

AnxietyIsMyShadow · 28/12/2022 10:48

He’s not enrolled in nursery yet as 1) we can’t afford it and he isn’t eligible for any free hours until April and 2) he is extremely clingy to me, I can just about leave him with his dad to go out somewhere, so even if we could scrape the money together to pay for nursery I’ve been hesitant to leave him in case he is massively traumatised by it.

ffs, he's more likely to be traumatised by you allowing him to be clingy. That's you projecting your anxiety and issues on him.

You'll teach him the world is a dangerous anxiety producing place.

Get him out to socialise as much as possible every day.

Get some therapy for your issues.

JudyandPunch · 28/12/2022 14:20

emptythelitterbox · 28/12/2022 14:15

ffs, he's more likely to be traumatised by you allowing him to be clingy. That's you projecting your anxiety and issues on him.

You'll teach him the world is a dangerous anxiety producing place.

Get him out to socialise as much as possible every day.

Get some therapy for your issues.

That’s the judgment you will need to get used to.

Because it is always the mother’s fault.

Pinkbluebells · 28/12/2022 14:45

My son was very much like your son when he was that age. My son has ASD. He will be fourth year medicine next year. He has a partner and lots of friends. He has a part-time job. He does have a few slightly obsessive interests but he would pass as neurotypical. I am only posting this so you see that ASD not necessarily a predictor of grim school days and being an unfulfilled adult.

AnxietyIsMyShadow · 28/12/2022 15:08

@Pinkbluebells Thankyou ❤️ I appreciate that.

OP posts:
Lenald · 28/12/2022 15:27

emptythelitterbox · 28/12/2022 14:15

ffs, he's more likely to be traumatised by you allowing him to be clingy. That's you projecting your anxiety and issues on him.

You'll teach him the world is a dangerous anxiety producing place.

Get him out to socialise as much as possible every day.

Get some therapy for your issues.

OTT 🙄

Autumnalblooms · 28/12/2022 16:03

emptythelitterbox · 28/12/2022 14:15

ffs, he's more likely to be traumatised by you allowing him to be clingy. That's you projecting your anxiety and issues on him.

You'll teach him the world is a dangerous anxiety producing place.

Get him out to socialise as much as possible every day.

Get some therapy for your issues.

Wow aren't you the sunshine on a rainy day not. You are just the sort of person a sen parent just loves to correct .Anxiety and asd often go hand in hand .Both my asd teenagers suffer from anxiety. I don't, never have. Please use your time productively to educate yourself on asd .Being nasty is not a nice personality trait regardless of being in AIBU .

IdisagreeMrHochhauser · 28/12/2022 18:35

It's not a life sentence. There isn't something wrong with him. I'm autistic and yes I have struggled with making friends in my life but I've had partners, I have several degrees and I have a job.

Don't equate lining things up at 3 to a life of misery and danger.

He might be autistic and he might not be. Try not to let your mind run ahead; get him on the waiting list, love him and let him develop at his own pace.

PlinkyPlonk1 · 28/12/2022 19:04

I would trust your instincts.

As a PP said, keep an eye on your girl too as ASD is genetic. I suspected my girl first (absolutely no tantrums either!) and then, a couple of years later my boy. He started tantruming at age 3 and was still going at age 7. I now know that they are meltdowns.

My girl hid it well and masked until she showed signs of distress in year 2 when the pressure of school was ramped up.

AnxietyIsMyShadow · 28/12/2022 19:06

He’s just had a 40min meltdown (crying, screaming, throwing himself on the floor, throwing toys around with force, in such a state he was sweaty, because I took him downstairs after his bath and he wanted to stay upstairs.
Do NT almost 3yr olds do this?

OP posts:
CrabbyCat · 28/12/2022 19:47

My 3rd DC is currently age 3 and is worse for tantrums than my older two. I think he's had one epic tantrum over something similar which went on for what felt like ages (probably 20-30 mins) but he was also tired and hungry. Normally they don't go on for more than 5-10 minutes, he just doesn't have the stamina and can be distracted out of it. Is a 40 minute tantrum a one off for you or is it becoming a more regular thing?

AnxietyIsMyShadow · 28/12/2022 19:55

He is much more likely to have a full on tantrum/meltdown when tired, getting better at recognising when he’s very tired and not attempting to go out when he obviously needs a nap, although sometimes can’t be avoided (school run for example). When he has one of these full on meltdowns, they can often go on quite a while, yes. I would say on average he has one of these huge meltdowns a few times a week. Sometimes it feels like it’s every day, sometimes he will go a few days without doing it. Does this sound like a typical toddler?

OP posts:
Merryoldgoat · 28/12/2022 20:01

He sounds a lot like my 9yo. His diagnosis is ASD (High Functioning) but they don’t diagnose like that now. He is in mainstream school, has friends, interests, is intellectually very capable and very happy. Doesn’t love school but goes and makes the best of it.

My 4yo’s diagnosis is ASD with significant overall difficulties. He doesn’t speak, spins, tantrums and is a general wrecking ball.

Autism is varied and you may have a child who is on the spectrum or one who isn’t, but if he IS, at 3 some of his behaviour will just be ‘being 3’ so the full extent of how affected he may be will be unknown for a while.

Not being harsh but being ‘heartbroken’ is zero help. Get practical and get your assessment and be an advocate for your son regardless.

PlinkyPlonk1 · 28/12/2022 20:21

I think in an NT child having a tantrum, if you give them what they want, they will calm down. In ND kids, it won't make much difference when they get to that point if no return, even giving them what they want.

Merlinsbeard83 · 28/12/2022 20:32

Sounds like a typical 3 year old to me . All kids are different . Why not see how he is once he starts nursery .

jamoncrumpets · 28/12/2022 20:33

I have a NT child and an autistic child, boy and girl. Your child sounds much more like the autistic one.

I had my autistic child first, so their behaviours and quirks were pretty normal to m, it wasn't until I had my neurotypical child nearly four years later that I realised how many milestones my autistic DC had skipped or very were delayed. My second child seemed to see me from day one. Whereas with my first I was there almost like furniture, loved and very necessary, but he didn't look at me to gauge my emotions like my second child did.

When my second child said 'Mama' at 8 months I nearly fell off the sofa! She basically hasn't stopped talking since then 😂

But even though my son is delayed, severely delayed, and will need help for the rest of his life, we have a good life. He's happy. His needs are generally met. He's the absolute sunshine of my life and I couldn't be without him.

Spookysparkles · 28/12/2022 20:39

Yes, to me it sounds like there are some autistic tendencies here, enough signs to warrant referral/ investigation.

Zooeyzo · 28/12/2022 20:42

@jamoncrumpets this made me cry
He's the absolute sunshine of my life and I couldn't be without him.
Exactly the same with my 4 year old autistic boy. I call him my sunshine boy.

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