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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Does it sound like DS is autistic?

83 replies

AnxietyIsMyShadow · 28/12/2022 07:35

Hi, probably wrong place to post but desperate for advice. I’m really worried about DS (3 next month) and would appreciate it if anyone could offer advice as to whether it sounds as though I need to be looking into an ASD referral for him please.

speech - he knows what everything around him is (if I ask him he will say “it’s a helicopter mum” for example) or if I ask him to point to the door etc he will. Most of his speech is repetitive phrases however, he will say the same things over and over again and when asked a question will answer in the same way each time “do you want a banana?” “I want a banana mum, I want a banana” no variation on this, never “yes please” or “yum a banana” etc

he knows his name, but I could say his name 100 times and he won’t respond.

if I ask him questions he often replies using the words I’ve used “let’s put your coat on” he will say “put coat on” sometimes says “ok mum” in response. eye contact is variable - sometimes he looks at me when interacting, or to see my reaction to something, whereas sometimes I feel like I’m desperately trying to get him to look at me.

socially - has a 6yr old sister who he loves and likes to play with, if we are at the playground etc with her and her friends he likes to join in chase games etc. has no fear of climbing things etc, not at nursery yet but take him to toddler classes where he varies between being very sweet with other children (doesn’t make a fuss if someone takes his ball etc) and if someone’s crying will comment to me “someone’s crying”, recognises emotions such as “daddy’s angry!” etc, not bothered by loud noises, to being totally uninterested and just doing his own thing running around, doesn’t talk to any of the kids there although to be fair I don’t see them all chatting away to each other either. With adults it’s totally different - he is massively overfamiliar with adult men he doesn’t know and will run up to them saying hello daddy (??? Even if they look nothing like his dad) and trying to cuddle them/tap them on the leg/rugby tackle them, doesn’t do this to women at all and actually got really upset when a female friend of mine he doesn’t know well picked him up recently to help him onto a bouncy castle.

Intelligent - can count past 100, knows the alphabet and colours/shapes, knows a few songs which he sings regularly.

doesn’t seem to have the fixation with spinning things I’ve read is common but does do things obsessively and repeatedly- lining up toys, puzzles, plays with things the same way every time. On TV will only want to watch the same programmes and has a routine of asking for one, waiting for me to put it on them asking for the next one, I can guarantee he will do this every time we we turn the TV on.
trying to encourage pretend play as this isn’t something he does without encouragement. So if I ask him “let’s put dolly to bed” he will do it and say “dolly’s in bed!” But he wouldn’t pretend to feed his toys by himself if you see what I mean.

sleep is a nightmare - almost 3 and never once slept through the night, wakes regularly, always up very early every single day (average is 4.30am), obsessive about being breastfed and any attempts to wean him are met with absolute fury.

my daughter unbelievably never tantrummed, so when DS has meltdowns I don’t know if it’s typical toddler unreasonable behaviour or if something else is going on, particularly as the meltdowns occur if you try to interrupt something he is doing or if something is unexpected- he loves to visit every aisle in order in the supermarket and if I try to skip an aisle he will literally be kicking and screaming because we have missed a number.

Does this sound like he is autistic? Any advice welcome, Thankyou xx

OP posts:
Ilovechocolatetoomuch · 28/12/2022 08:56

time will tell op I was told repeatedly no in nursery, year R and year 1. By year 2 it was very obvious.
Nobody can say if your Ds is or isn’t best to see what the HV says.

pizzazze · 28/12/2022 08:59

AnxietyIsMyShadow · 28/12/2022 08:42

Thankyou for your replies. I have just called the health visitor advice line who said they will send me the initial questionnaires.
Do you think there’s any chance he could be bored and understumulated at home and is showing repetitive behaviour because he is bored? If I sign him up for more toddler classes and try to enrol him in some nursery sessions, would this help him?

I'm afraid that's very unlikely. Neurotypical childrens play is not usually repetitive in the way you describe when they are bored. Of course, if you want to and think he'll enjoy classes then go for it - but not because it'll change him.

Gremlinsateit · 28/12/2022 09:01

While I don’t have enough knowledge to comment on your main question, it is very sensible of you to follow this up, and I would also suggest that a hearing test never hurts.

MerryChristmasTree · 28/12/2022 09:14

Melatonin can help with sleep (it’s been life changing for us) but we can only get it through the paediatrician and it’s dispensed by our local hospital.

The assessment process is long and involves many parenting courses, ours did anyway. They weren’t always helpful but if we didn’t attend we got taken off the waiting list. There are many hoops to jump through.

Nursery may help in providing more evidence, or he’ll mask there and they’ll say he’s ‘fine’. Look up masking!

emptythelitterbox · 28/12/2022 09:15

Have no idea why you'd think he's autistic?!

He sounds like a very normal curious little boy.

Of course he's going to play better with his sister than kids at a group, as he knows her and sees her every day.
She also knows he's little and going to give him the benefit of the doubt and she's already learned the rules playing with little brother.

Kids his own age are on the same level still learning the rules.

Do you have any other kids around his own age to visit and play with?

What are you and your DH like socially?

Kids are so isolated these days and need a lot of socialisation with many different ages so they can learn the rules.
You watch and observe and guide the rules.

MyLordWizardKing · 28/12/2022 09:15

FWIW, my (autistic) son had traits similar to your son at the same age. He was diagnosed at 3.5, and his paediatrician mentioned lack of pretend play as one of the obvious symptoms. He's now 4.5 and currently playing 'mummies and babies' with his toy dinosaurs, so I'd say the imagination is coming along. 😁

As you mentioned your son likes numbers, it might be worth looking up hypernumeracy. My son has been obsessed with numbers basically since he was a baby, and I think counting and writing numbers is his version of stimming.

PicaK · 28/12/2022 09:34

It takes forever to get assessed - you'll be on a conveyor belt of waiting lists now. So it's always best to refer as soon as you have an inkling.
They will probably give you tasks/techniques to do at home. If he's autistic these will help. If not they'll do no harm whatsoever. So you can't lose.

Notanotherone6 · 28/12/2022 09:42

Honestly, no, he sounds like a typical 3 year old who needs to kick the breastfeeding/babying habit.

NameIsBryceQuinlan · 28/12/2022 09:45

Look up "Gestalt Language Processing" this is likely how your son acquires language.

JudyandPunch · 28/12/2022 09:53

My DS is on the spectrum and some of what you wrote rings a bell. My child didn't do the hand flapping but had other types of timing. No echolaia. Plenty of tantrums, spinning (himself and wheels). We used to admire how he could spin around and never get dizzy. He would bolt and look out of the corner of his eyes. Humming. Also, he would recite movies and books parts.

Some of the “funny quitks “ were in fact signs. I saw it. But the majority of people prefer to say he was just a toddler, he was bored, too intelligent, etc. 12 years ago people had a different approach to neuro diversity.

Pls try to get an early diagnosis. A “label” will actually help, not hinder. Regardless of a diagnosis or not, pls read up on techniques and modifications you can do to help his development.

The early years can be tough, but honestly there is so much you can do to make an impact and help him develop skills he needs. Or just the ability to accept his weakness and celebrate his strengths. A professional once told me we could all do with a little adaptation and help developing ourselves. That’s so true!

Morph22010 · 28/12/2022 10:03

My son was diagnosed age 6 and he sounds quite similar especially regards the supermarket aisle thing and the counting above 100. I don’t think you can really tell for sure one way or the other when they are that age behaviours could also be that of an nt toddler. My sons play school picked up on things when he was 3 without me raising any concerns to them. The health visitor came and saw him and she just thought it was a very intelligent child who wasn’t being stimulated enough and recommended a change of nursery, which we did and things then went well. Year one is where the wheels really came off for us and is was an awful few years then going through the diagnosis process and getting support in school. He is now 12 and differences to an nt 12 year old are very much more obvious

caroleanboneparte · 28/12/2022 10:40

Why is he not in nursery?

Send him and see what the nursery staff say?

Autism is a social communication disorder. Unless he's with peers for significant periods of time you really can't tell.

AnxietyIsMyShadow · 28/12/2022 10:48

He’s not enrolled in nursery yet as 1) we can’t afford it and he isn’t eligible for any free hours until April and 2) he is extremely clingy to me, I can just about leave him with his dad to go out somewhere, so even if we could scrape the money together to pay for nursery I’ve been hesitant to leave him in case he is massively traumatised by it.

OP posts:
MerryChristmasTree · 28/12/2022 11:16

the-art-of-autism.com/understanding-the-spectrum-a-comic-strip-explanation/

This is quite nice, it also explains that autism isn’t just a line with mild at one end and severe at the other. It’s also important to know it’s not a ‘label’. Years ago kids got labelled as naughty or badly behaved, which is worse. There is a lot of ignorance surrounding neuro disability. It’s very frustrating and you do feel like it’s a constant battle.

There is a special needs section of mn which may be useful and often a better place to ask questions. You may not decide to go ahead anything but if you do then definitely read up and educate yourself as it helps when discussing your son and your concerns.

jamoncrumpets · 28/12/2022 11:23

AnxietyIsMyShadow · 28/12/2022 08:42

Thankyou for your replies. I have just called the health visitor advice line who said they will send me the initial questionnaires.
Do you think there’s any chance he could be bored and understumulated at home and is showing repetitive behaviour because he is bored? If I sign him up for more toddler classes and try to enrol him in some nursery sessions, would this help him?

I think trying to fix him right now is a natural feeling but just let him be him.

Enjoy him how he is.

jamoncrumpets · 28/12/2022 11:24

AnxietyIsMyShadow · 28/12/2022 10:48

He’s not enrolled in nursery yet as 1) we can’t afford it and he isn’t eligible for any free hours until April and 2) he is extremely clingy to me, I can just about leave him with his dad to go out somewhere, so even if we could scrape the money together to pay for nursery I’ve been hesitant to leave him in case he is massively traumatised by it.

When you get him into childcare eventually be prepared for what will seem like a avalanche of referrals, 'little chats', forms etc.

To a trained eye, in a room of neurotypical kids he will stand out.

Just be quietly prepared for that stuff because it can send people into a spin.

AnxietyIsMyShadow · 28/12/2022 11:34

language wise, does this fit with ASD or usual toddler language - tends to inform me of things, like “it’s red mum”, “I’m tired I want a nap”, “I’m hungry”, but no conversation- so if I ask a question with a closed answer such as do you want an apple or a banana he could answer but if I say what do you want to do today he would usually not converse with me about different options.

OP posts:
AnxietyIsMyShadow · 28/12/2022 11:36

I’m so scared at the idea of him not making friends and feeling lonely, or being made fun of or being labelled as “naughty” or “weird” or getting into danger.

OP posts:
TinselTinselTinsel · 28/12/2022 11:57

@jamoncrumpets oh my god. That's exactly how it feels. When my DS started pre school in September suddenly it was all "little chats" and hushed phone calls and forms and jargon etc. My head is definitely in a spin!

fairybaby · 28/12/2022 12:08

Mine was the “naughty” kid. He was also a thrill seeker (i. e. dangerous). A few people loved him, most didn’t. However, because I had a diagnosis and was working hard for him and with him, I knew it wasn’t his fault. It helped dealing with the judgment.

Absolutely love your son for whom he is. Enjoy him, celebrate him. But also help him with advocacy, therapy, accommodations, etc. Early intervention (while the brain is still forming) and understanding is key. He will learn to deal with the judgment if he knows you have his back.

For instance, my son was fearless. A therapist told me to put him in Parkour classes so he learned to do his stunts in a controlled way. The result: a little parkour whizz kid that impressed his peers AND knew how to fall down safely.

Not everything was great though. I worried about him and cried so many times. But I would change my DS for the world.

jamoncrumpets · 28/12/2022 12:10

AnxietyIsMyShadow · 28/12/2022 11:36

I’m so scared at the idea of him not making friends and feeling lonely, or being made fun of or being labelled as “naughty” or “weird” or getting into danger.

My DS is never lonely, he chooses to be alone quite often but he's very very happy. He has a little gang of buddies at his special school and they play with each other whenever they feel like it.

He might not make lots of friends but he might be perfectly happy not having any at all!

jamoncrumpets · 28/12/2022 12:11

AnxietyIsMyShadow · 28/12/2022 11:34

language wise, does this fit with ASD or usual toddler language - tends to inform me of things, like “it’s red mum”, “I’m tired I want a nap”, “I’m hungry”, but no conversation- so if I ask a question with a closed answer such as do you want an apple or a banana he could answer but if I say what do you want to do today he would usually not converse with me about different options.

Enough people have said he might be autistic by now, OP. So stop trying to add extra information, that's just clutching at straws.

It sounds like he is, but getting him referred to GP and then for assessment is the most important thing. Let the people who know what to look for do their work. You've done great in flagging it up so early.

jamoncrumpets · 28/12/2022 12:13

TinselTinselTinsel · 28/12/2022 11:57

@jamoncrumpets oh my god. That's exactly how it feels. When my DS started pre school in September suddenly it was all "little chats" and hushed phone calls and forms and jargon etc. My head is definitely in a spin!

In my case I just knew he was autistic, so there wasn't really any denial on my part. Literally everybody else around in the family tried to talk me down. So stupid in hindsight. He has high needs, significant delays, attends special school. I'm so glad I ignored them all!

Lenald · 28/12/2022 12:15

AnxietyIsMyShadow · 28/12/2022 11:34

language wise, does this fit with ASD or usual toddler language - tends to inform me of things, like “it’s red mum”, “I’m tired I want a nap”, “I’m hungry”, but no conversation- so if I ask a question with a closed answer such as do you want an apple or a banana he could answer but if I say what do you want to do today he would usually not converse with me about different options.

Sounds pretty normal to me to be honest.

NameIsBryceQuinlan · 28/12/2022 12:16

The best thing to do is empower yourself about what autism means.

I like this one Autism: How to raise a happy autistic child

And for the tantrums/ meltdowns - the explosive child is great

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