Ohhhhh....
Big name (within the industry) conference insisted they must charge my PA a full ticket price for attending with me (she would not have been in the lectures/seminars except the ones that were scheduled over the mealtimes, but they had scheduled stuff over both lunch AND dinner, on each of the three days!)..
I offered to pay for her food as it was at a hotel far from civilisation and obviously I needed her to not leave the venue so she'd struggle to buy food elsewhere.
After months of battling this, they eventually came back to me and said £50 a day - for two goes at buffet food - she could have had steak in the hotel restaurant for both meals each day for less than that but it wasn't open for lunch and was in a different location to the conference. DWP Access to Work would only have covered £20 of that so that would have left me paying £90 more than any other attendee.
I ended up having another attendee act as my PA which is not what I like doing as they're there to do their own thing, not mind someone else! And this '£50 a day buffet lunch and dinner' turned out to be dire and absolutely no more than £10 per head.
Even worse, the organisation behind this conference is meant to be absolutely beyond reproach on animal ethics and welfare and kindness and all that shiz... but happy to fleece a disabled person.
Another massive national annual event run by a very old organisation... does not have press seating for disabled members of the press - to their credit they were MORTIFIED about this and asked me what I wanted to do and what solutions were suitable and we came up with something that worked. They do now reserve some of their accessible seating for disable press (And, it is used by people other than me, because it turns out I am not the only one!)
I have been turned away from chain restaurants because of stupid things like 'we don't have the key to the other half of this double door, the assistant manager has gone home with it and we're not serving to our accessible seats upstairs today... ' (the accessible upstairs floor was up the hill with a second entrance door, I'd already been in there first and been directed out, down the hill and in the bottom door...). I asked if they could serve me up there... no, apparently not.
Very humiliating as all this took place in front of other diners in the main entrance.
When I used a manual chair, I have been MOVED by randomers, without asking me... both times I was browsing stuff on a rack and suddenly I am moved away and then someone gets in front of me to look at what I was looking at - the second time I had had one hand on a wheel and my fingers caught in the spokes so I let out a very loud swear word and the woman TOLD ME OFF FOR SWEARING.. and said I was over reacting, she just wanted to get in front of me!...
Twice I have had people allow children to climb on my powerchair when I have left it parked in a restaurant somewhere 'not in the way' and transferred to a normal seat (this is because my chair is generally too high for restaurant tables) - on both occasions the parents were busy beaming at their precocious child and objected strongly when I asked them to remove child. On one occasion apparently it was OK because the NHS loan me the chair so 'in effect we've paid for it'... (they hadn't, it was my privately funded chair, not my NHS one but even if it had been... ugh!).
Chatting outside whilst waiting for a lift, after a fair bit of polite smalltalk, a lady asked if I was 'waiting for a responsible adult'... I was confused at first as no one would refer to my OH as 'responsible' and frankly 'adult' is pushing it... and it didn't dawn on me for a few seconds what she meant!
Yelled at on a train because I objected to the wheelchair area being filled with baggage - and then yelled at a LOT more when I started chucking peoples bags out the door, I don't think they expected quite the upper body strength I had at the time (I certainly couldn't do it now). Train staff were RIGHT THERE but were wishy washy useless efforts who would happily have taken me OFF the train in favour of some peoples suitcases but by this point on that particular day I had no fucks left to give and I lost my cool somewhat! Three suitcases hit the platform before people realised they really were in danger of losing ALL their stuff and started moving it out of my way!
Yelled at on a train BY train staff... because I horribly unreasonably wanted to get off AT my stop... and as no one showed up despite assistance/ramp being booked... I blocked the doors so the train couldn't leave. Apparently I should have just put up with it and stayed on the train all the way to wherever the hell it was going and then sought assistance. I'd have missed my connection and had to go straight home but hey ho, who cares about what the disabled person is trying to get to!