How much do people who dont do her job actually know about her reality... how do you actually know .
I for one, have done applications for DLA for DD1. In the end, it took a benefits advisor, employed by our County Council to threaten the DWP with an appeal to the Tribunal to get them to agree, that DD1 was entitled to DLA at the highest rate for care and mobility - which I as a graduate professional could not do!
So if it takes a benefits advisor to get the DWP come to the correct decision, how many other people, making legitimate claims for their disabled children have been turned down, and they’ve given up; because they are too ground down and exhausted by their caring responsibilities to keep fighting the DWP? Also some people believe what the authorities tell them, because they believe that public sector officials act fairly and in their best interests?
Years later, DD1 had a Motability car. Motability wrote to me, to say we had to return the car in 2 weeks, because the DWP hadn’t paid them for seven months. This was the first I knew of it! I rang the DWP to ask what was going on? They said as DD1 was living in a hospital (a care home actually), she wasn’t entitled to DLA mobility! When I asked where in the law, it said that, they told me to look it up myself! I did and found that the Court of Appeal had determined that a young person, living in a care home was entitled to DLA mobility. I rang the DWP and quoted this case - they said “Oh yes, that case changes everything!” They reinstated DD1’s DLA that afternoon and paid the arrears to Motability!
So, why if the DWP knew about this case, did they tell me DD1 wasn’t entitled to DLA, when she was? People should be able to rely on the DWP to know the law! I’ve spent 40 years studying the law, so I understood the relevance of a decision by the Court of Appeal - but not everyone knows how to look up the law!
I applied for ESA for DD1. I had to provide a sick note for her for the DWP. The GP wrote a sick note for 52 weeks, saying DD1 would never be able to work. After 6 months, I had had no response from the DWP, so I rang them up. They said they didn’t accept 52 week sick notes. I asked where in the law, it said that - and if so, they should have written to tell me; as they hadn’t, it took was a clear case of maladministration. They accepted the sick note after all. They put her in the assessment group. Every month, I rang up to ask if they had opened a file for her - they didn’t every month, until I threatened a formal complaint! A year later, they put her in the support group; but I had to threaten another formal complaint to get the two years arrears of £7,000 paid!
Two years ago, they sent me the forms to renew her ESA. It took me two days to fill in the form, and another day to photocopy all the professional reports, social services assessments, etc as evidence - for DD1 deemed to need 1:1 care all her waking hours in a specialist care home, with a medical centre on-site, funded by NHS Continuing Healthcare (which the NHS does not hand out in packets of cornflakes)! DD is like a 2 year old with anterograde amnesia, who could die at any time. She can’t even ask me what is for lunch, because she can’t remember what the word for lunch is - she just says “The thingy, the thingy…..?” We have no idea what she is talking about! It is ludicrous to think she could ever work?
So, given the DWP have consistently tried to deny DD1 benefits at every opportunity, why does anybody think the DWP can be trusted to get anything right - and yet a pp would consign disabled people to a workhouse, because they don’t have the wherewithal or the energy or the time to fight the DWP’s judgments?