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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Child Neglect? Relative.

118 replies

CompressedNerve · 12/03/2022 18:58

My sister have two children; 13 and 11. Both will turn a year older this year. Only a few years ago was I allowed to visit my sister home, when I did I could see why she didn’t ever invite us around. It was trashed; you couldn’t see the floor in the kids room or hers, kitchen was an absolute tip with bags of things on the counter tops. It looks chaotic. The dining room table where I presume the kids did their homework was pack to the rafters with rubbish. I spend days hauling out the trash and organising the entire home into a liveable condition.

My mum used to have them on weekdays a few times a week and each time she would check their lunch boxes and they would both be untouched. They pretty much hadn’t eaten since breakfast and picked at their dinners. We mentioned this to her and she defended their actions.

Fast forward a few years, my mother and I noticed my nephew had lost a considerable amount of weight, he has no muscle tone in his arms, it’s actually skin and bone. Dark circles around his eyes and he hasn’t grown; still wearing the coat I brought him 4 Christmases ago, in addition, he still wears the same size school uniform since he started in year 7 (currently year 8). He avoids meals and becomes upset when it’s time to eat. We mentioned this to her and she said he eats at home, hasn’t taken us seriously. Recently he told her he has an eating disorder and he needs help, she lied and said she made an appointment with the doctor and recently admitted this indeed didn’t happen. He only eats about 2-3 mouthfuls a days and a few sips of water. He’s been experiencing severe anxiety. He has a phobia of food; thinks he’s going to be poisoned / allergic. Growing up she’s told us all he has allergies to certain foods, he actually isn’t any. Her and the dad (before they separated) use to tell him when he starts big school he’s going to have to get a taxi because he might get kidnapped. On top
Of this, they haven’t ever had any friends around it’s always been them. He has been having panic attacks he now avoids car journeys, new experiences, doesn’t like the bus so walks to school every morning (not close by), he had a breakdown yesterday asking why his life has to be this way. He’s very unwell, you can see it. My sister smokes cannabis everyday, she works in a school for a few hours in the afternoon and then goes to her second job 5pm to 11pm, which means the kids are alone that entire time. She doesn’t cook so pops back on her lunch at 9pm to bring their chips. They never have fruits or vegetables. I’ve now become aware of this and have had to start spending time there until 11pm to make sure they’re looked after. My niece said she doesn’t like to be home alone with her brother as she doesn’t know how to help him as he becomes emotional at times and grabs his throat. I have a 5 month old baby so going around there and staying until 11pm
Is difficult and beginning to impact my sons routine.

Im sure I’ve missed a lot of stuff. What should I do?

OP posts:
StationaryMagpie · 16/03/2022 12:49

it sounds to me like he may have an eating disorder called ARFID (avoident restictive food intake disorder) its generally diagnosed when they have a food phobia, anxiety, or sensory issues that limit their food intake to less than 15 foods.

it can be related to trauma, such as choking, allergies, or issues such as autism (there's more but thats off the top of my head) it doesn't get much recognition as its often believed to be just picky/fussy eating, and there are very few drs that understand it, and it often gets ignored until children are severely underweight.

It does need mentioning to CAMHs though!

CompressedNerve · 16/03/2022 15:05

@FatFilledTrottyPuss @StationaryMagpie

www.nationaleatingdisorders.org/learn/by-eating-disorder/arfid

This sounds just like him!!! This is why it’s great to post on boards like this as you get insight and some great advice / suggestions.

OP posts:
CompressedNerve · 16/03/2022 15:06

@Beeth0ven I’ve asked and she isn’t interested. She’s now avoiding my calls since Monday.

OP posts:
Nelliephant1 · 16/03/2022 15:14

My friend is a consultant psychiatrist in eating disorders and it's so difficult to deal with. So glad that they have you and your mum in their corner, it sounds like they're going to need a lot of patience, support and understanding. 💐

CompressedNerve · 16/03/2022 15:30

@Nelliephant1 thank you. I can only begin to imagine how challenging the road ahead is going to be for them. Just in disbelief my sister is ignoring his thin frame and the fact he hasn’t grown. He’s in year 8, the school has even noticed this. So I’m guessing she’s ignoring it but on purpose for whatever reason. She too has poor attitudes towards food which he, I noticed a few years ago started to exhibit the same behaviours. I’ve spoken to her a million times and she never listened. She gets an attitude and take everything personally. I’m getting angry just typing about it.

OP posts:
Quitelikeit · 16/03/2022 16:46

SS have a legal duty to investigate every concern that comes their way.

I cannot for the life of me believe that the situation you have described has not been investigated.

Call the SS duty team again and advise:

  • significantly underweight
  • mother not taking appropriate steps to get help
  • house dirty
  • other child underweight
  • emphasise child so under weight he is wearing a coat from 4 years ago

And mention all the other things too!

StationaryMagpie · 16/03/2022 17:53

[quote CompressedNerve]**@FatFilledTrottyPuss* @StationaryMagpie*

www.nationaleatingdisorders.org/learn/by-eating-disorder/arfid

This sounds just like him!!! This is why it’s great to post on boards like this as you get insight and some great advice / suggestions.[/quote]
i recognised it in your post as my 15yo has been dealing with it since he was a baby. There are ways to help/improve the number of food they eat, but the general rule of thumb is to safeguard the 'safe foods' and make sure the supply of them is plentiful, and not to deviate from them AT ALL.. has to be same brand, same thing..etc.

i'm afraid where ARFID is concerned, its a case of ANY food is good food... my lad lives primarily on chips, sausage, ready salted crisps and custard creams!

CompressedNerve · 16/03/2022 20:46

@StationaryMagpie thanks for your advice and input. Thing is with him he will only each microwave chips and hash browns. However, he doesn’t eat his entire meal. He would nibble and leave the vast majority, you pretty much need to take a proper look to see that he’s even had any of it. He mentioned he’s afraid he will eventually go nill by mouth. Which indicates he’s lost control over a situation he thought he could manage. He even said he hasn’t had a vegetable for years and he doesn’t even know why he’s still here. Terrible.

@Quitelikeit SS could of contacted her and the school too but she’s just not mentioned it. Would make sense as she’s not stopped talking to me. I’m going to contact them to see what they’ve done. I’ll be around tomorrow and Friday. I’m exhausted, my son is 6 months- just. I’m exclusively bf so up every get hours and feeding throughout the day. My partner will now be taking the reigns with this situation a bit now so there is a level of continuity.

OP posts:
HollowTalk · 17/03/2022 09:05

How have your sister's school not noticed the smell of weed?

CompressedNerve · 17/03/2022 09:38

@HollowTalk I think they have but turn a blind eye for some reason. She also looks super stoned so they definitely know and have decided to ignore it.

OP posts:
MaryLennoxsScowl · 17/03/2022 09:52

Would he take vitamins? Just as a stopgap?

CompressedNerve · 17/03/2022 10:10

@MaryLennoxsScowl my mum brought them vitamins on different occasions. Not sure if they’re used. Plus have to be taken with food.

OP posts:
skybluee · 17/03/2022 11:06

Eating disorders are so dangerous - they're the most deadly psychiatric illness. He could die. You're doing the right thing getting him help. You can't leave a child like that.

skybluee · 17/03/2022 11:15

I find it so sad that his mum is just ignoring it. Thank you for helping him.

CompressedNerve · 17/03/2022 11:32

@skybluee it’s very strange, I cannot get my head around why she’d just ignore his deterioration. I’ve sent her information on disorders like this and even the mortality rate of no treatment is sought. Nothing.

OP posts:
lborgia · 17/03/2022 18:58

@CompressedNerve - I came back to see if you’d had any progress. I’m stunned that nothing has happened from services - do they not realise your nephew could fail at any time?

I know that you cannot take him anywhere, but why can’t you call the police, tell them that the children are starving, and their mother is stoned on dope?

It feels like the slowest car crash in teh world. Those poor children, every morning they wake up to this, every morning your nephew is wondering why he is still here.

And to think your niece isn’t affected is madness. It may not be obvious now, but she will be dealing with this forever.

Please, make another call.

Relentlessrose · 17/03/2022 19:11

It sounds like your sister is in denial and that is massively dangerous for that poor boy. I can't believe there is nothing more than can be done? Or if there is how slow it is?

How are you @CompressedNerve this must be so, so hard for you ThanksCakeGinWine for you, whatever your poison is ❤️

FatFilledTrottyPuss · 18/03/2022 11:00

[quote CompressedNerve]@MaryLennoxsScowl my mum brought them vitamins on different occasions. Not sure if they’re used. Plus have to be taken with food.[/quote]
My ds takes WellKid soft jelly pastilles which I’ve just looked at and realised they’re preferably taken with a meal so not ideal and they’re aimed at 4 - 12 years old but better than nothing if you could get your nephew to try them.
Does he know much about eating disorders? My ds has read up on ARFID and he felt a bit reassured that other children are the same as him. He’s not eating more yet but feels a bit less alone in it. I wonder if your nephew there were other children like himself he might feel a bit less anxious about it. A big thing with ds is feeling safe so he has safe foods, lots (LOTS) of teddies, shoe laces done up super tight and a plaster on any tiny scratch or bruise. Maybe if nephew could find some teddy or props or techniques to help him feel safe & secure it might help.
I used to be on a Facebook page for ARFID parents and quite a few of the older boys have ended up tube/peg fed so it’s not the end of the world as they then don’t have the worry of having to eat. These children aren’t scared of putting weight on like with anorexia, it’s just food in the mouth they can’t deal with so tube fed is a solution to that if it comes to that stage.
I am in awe of your strength in helping your niece and nephew the way you are, on top of having your own baby so recently. I hope you’re ok too and I hope social services are going to properly step in to help or take over from your sister.

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