to think that my MIRENA coil should give me relief for more than just 2yrs???

[ChristmasSendsMePsycho]

am ranting......

have been ranting at Flame today and now coming here as it not fair to burn her ear off anymore.

I feel like CRAP.

lots of reasons, but all the other reasons wouldn't bother me if I wasn't 'on' and wasn't in pain!!

I suffer from endometriosis......2yrs ago I had surgery to help with it including laser/burning type to get rid of the inside stuff, removal of fibroids, something done to my cervix cos of something I can't now remember, and then a mirena coil put in to stop my periods/help stop periods.

2yrs later I am now getting a period every week (well, since my car accident I had so could be stress) and am in lots of pain too. this month (well, as of yesterday), I am in pain of the type I used to get plus the bloating. today I am hurting so much I can't stand up completely straight and also feel sick with it.

IT IS SOOOOOOOOOOOO NOT FAIR.....I was told the coil would last 4yrs.

and................girls are annoying me. two ebayers have either stolen my money or just being mean and slack with my goods that I need before xmas, couriers don't turn up when I think they should (sorry flame, just adding that in as an aside), kiddies are home all day because their lift got lost (another rant another time), have got to go visit my mother on wednesday (she is schizophrenic and I get stupidly scared of her, and my aunt who is dragging me there), DH is still hungover from saturday, show yesterday annoyed me (girls were fab, others are the problem).....oohhhhhh.

sorry......also got PMT badly for the first time in a while (at least a month), and feeling HORRID.

FEEL FREE TO PUT ME IN MY PLACE THO!

gently tho please.....beware of the ranty hormonal women

You poor thing . I don't suppose there is any chance you accident has caused it to move ? Can you get it checked.

hmmmm.....not thought of that. but yes, maybe it is possible as it was my chest and pelvis that took the brunt of the accident.

yes, quite possible, and yes, will need to get it checked. would explain the hidious pain today and the sick feeling, and also possibly the almost continuous period since the accident. (accident was october)

and there's me putting it down to stress!

I think I would hide under a duvet

LOL

duvet hiding sounds a GRAND plan.....

not sure the kiddies would allow it tho, plus DD2's dyslxia tutor is here so would look rather odd.

heyho.....roll on bedtime!!!!!!!!!!

at least no-one yet as told me to pee off and get over myself. sympathy is much needed!!!!!!!!

Christmas...I've got continous bleeding at the mo, dr says is from my copper coil that needs changing...Been bleeding for 10 weeks now!!!!!! and have to wait until Jan 15th!!!!!! Get you dr to check your mirena coil asap..

......

hanks for that jingles....will make an app. tomorrow then as SIL is takin me out for the day.

totally fed up now, and me thinks I am alienating DH as he has threatened to move out soon is tonight is anything to go on with many hormonal women/girlies in the house!!! think we wound him up tonight with the grumping

never knew that the coil could do that tho....maybe I never read the leaflet properly and now can't find the one they gave me when the put it in.

roll on bed time

I've got endo too and have never heard of the coil helping! (I really don't know everything though ) I had the implant -Zolodex that induced temporary menopause which was a worry at first but then a godsend. Been prgt twice since but know pain will return (Adhesions separated but told will grow again)

I would like a hystorectomy (Take the bloody lot away I say!)

WOuld this help?

muppet.....no idea to be honest.

part of me wants it all out, but the other part of me feels I am not ready for a drastic step of hysterectomy. I am finished having my babaies, but still......

apparently the mirena coil is the 'new' treatment for endo, and my DB who is a doctor raved about it when they offered it to me as they were only just trying it then (guess it was really new then, don't know????), but then HE is a man, and what do they know about periods etc.

it has been great for the last 18mths.....the first 6mths can't count as I was adjusting, and the last 2mths can't as I have been almost continuously bleeding!

SOOOOOOOOOOOOOO.....where does that leave me. I need to be normal again.....i really really cannot go thro what I did before. was hell!

hmmmmmm......all to think about.....guess the docs is the next step.

(well, after the PMT has gone anyhow, the mood I am in right now would make him run a mile

i'd go back to the consultant and ask what my options are.

you tried this one.

it's not working for you.

expat....no it isn't, not any more. guess the last two months have prooved that.

thing is I need re-referring to consultant as they discharged me in the summer as I said I was fine!!!!

so much for that then.....famous last words and all that.

grrr.....feel like pooh and hurting and yacky and still got lunchboxes to do yet so no closer to bedtime.

all this bleeding may also be making you anaemic.

PLEASE ring your GP tomorrow to get a referral in to hte consultant!

i hope there are some alternatives to hysterectomy out there for you.

I suppose that's what they'll offer me when it all kicks off again. I just want the whole bloody lot taken out as I've been in pain since I was a teenager -I'm 32 now- and are just tired of it. The last 3 years since I've had children have been great. I've actually felt normal. I'm dreading the pain from sex, pain after exercise that lasts days and living on painkillers that don;t really work.

one of my two best friends finally had hysterectomy for endo last year.

she struggled for years before that and was in her 40s and long completed her family.

it changed her life.

she's like a different person now.

expat....yes, I will ring the docs tomorrow. I had not thought aout the anaemia tho, and I should seeing as I am almost always borderline in my bloodtest's. guess I have iron to look forward to too. (spa-one here I come).

muppet......the pain after sex is really really off putting. can't be good for DH seeing my face during sex anymore. not so ecstasy and agony. what a turn on eh??!!

garhhhhh......am so not in the mood for all this on top of all the pain from the feckin car accident.

That's really good to know expat. A woman on here did say once that it makes no difference and I was really down after hearing that as I was pinning my hopes on it. Need to convince a dr now though....

Am I right in assuming sterilisation wouldn;t effect it?

she had her op in the US, muppet, and they did the hysto together with some dye test to see where endo might also be lurking in her abdomen so get rid of it at the same time as her uterus.

she did have to have an abdominal one, not a vaginal one.

there was endo on her bowel, her bladder, kidneys, etc.

Mine's on my tubes and had stuck things together hence the separation of the adhesions. They wouldn't consider burning any off as I hadn't had kids.

ah, I see!

she had grown children by the time she got to hysterectomy and just wanted that endo gone, gone, gone.

hmmmmm....now the question is.......if they do a hysterectamy but still leave the overies so as not to plunge you into the menopause, and you have endo in your abdomine, will you still suffer???

when they lasered my endo away (and I assume by the pain that it is now growing back), they told me it was pretty much everywhere!!!!!! should I go for a hysterectomy I really don't also want an early menopause (I am 34).......altho........if it will make that much difference I would seriously consider it.

ho hum.

and thankyou all for being kind and sympathetic. was expecting to be told to sod off seeing as I am in a ranty mood

it went away after ds and he's nearly 4. Earlier this year -when he was 3- it started coming back. We then had ds2 and I am hoping I've got 3 years before it comes back. That'll take me to 35 and then we can decide no more kids or I can beg to have a hystorectomy.

Ah psycho (great name btw) that explains the 'It won't make any differenec to you dear' that another mnetter said a while ago...

It's on my tubes. Bastard, bastard thing.

I don't know, Psycho.

My pal had it ALL out and it was abdominal surgery because they did that dye thing to get all the endo in her abdomen out at the same time.

She had already lost a Fallopian tube years earlier to an ectopic pregnancy but she had two children and they were already in their 20s when she had the hysterectomy - she had children in her early 20s.

She did go into instant menopause, but her life was such hell compared to before, and her accupuncturist helped her menopause symptoms a lot.

I'm another endo sufferer too - and another one who wanted a hyst. I have been told by my gyne that a hyst does not cure it or always work - I also know several other ladies that have had a hyst and are even worse than before it. If they leave your ovaries in, the endo could grow from there and cause more probs - they dont like to take ovaries away if you are too young for the menopause. It could also be on your bowel so can spread from there too.

The coil doesnt work for everyone, and also it can agrevate endo due to the hormones it releases - i tried it and it came out after 7 months as I was continuously on a period.

Its a horrible disease - I really feel for you.

grrr........and there was me thinking that I was all sorted by the mirena coil.

GUTTED is not the word, far too mild !(altho, I may be jumping the gun. It may be stress from the car accident yet. fingers crossed).

really really not wanting the hysto route.....altho expat..if accupunture can help with menopause, then could it help with endo???

Now that would be fab

i know, me too - I had very high hopes for it and i was really peed off!

I'm on zoladex at the moment though and it is really helping - could you try that?