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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

(*Possibly Triggering*) AIBU to feel violated, and want to complain...

100 replies

HoundofHades · 20/09/2021 12:55

I have name-changed for this, for fairly obvious reasons.

Let me preface this by saying the following: I am 45 years old, a survivor of CSA and rape, and I am disabled. I have a degenerative brain condition which, until fairly recently, was pretty much invisible – however, following an admission to hospital 3 months ago, my mobility is now reliant on aids. I walk with crutches and have had to have a stair lift installed, because I lack the strength to safely haul myself anywhere. I still have full mental capacity.

After my release from hospital, I reluctantly agreed to have a team of carers enter my home. I live with my teenage son and adult daughter (who has severe MH problems, herself)... and I have a dog. I'm not one of these people who believe that their dog lacks the ability to be aggressive – whilst she's friendly and thrives on social interactions, at the end of the day she is an animal. She is also a rescue dog, whom I've worked hard with to train and do everything in my power to stop her from perhaps one day biting someone. She is extremely attached to me. She also barks to alert me to things (people entering/leaving our home being one of them) and I am alert to her body language at all times.

The team who came into my home for the first 8 weeks were the “rapid response” carers. I appreciate how lucky I was that my request for no male carers be assigned during this period was respected, and that the ladies were all “dog people” (my dog revelled in this, because she had 4 new “friends”!). These carers also listened to me, and encouraged me to start regaining my independence – when they last saw me, I was being helped to independently use the stair lift and go downstairs for a few hours during the day, having been cooped up in my bedroom with only the odd hobble along the landing to the bathroom every now and then. They also helped me to strip-wash, change my lower half of clothing (I struggle to put my legs into trousers/put socks on or off) and wash my hair over the sink. But the bits I can clean? I was allowed to. They understood that I'm embarrassed by “needing” carers at all (it's a learning curve) and that my independence is very important to me.

On Friday, I had an assessment with the agency of carers who were going to take over from the “rapid response” team, with the view to having one carer coming in twice a day to help me on my journey to regain as much independence as I can, and assist me with using the stair lift to go downstairs/back upstairs with a hot drink in the late afternoon. The supervisor who came out was almost ridiculously enamoured with my “sweetheart”of a dog, and agreed my parameters of the assigned carer being “dog friendly” and not treating me like I'm incapable of doing absolutely anything for myself. I explained that I feel almost humiliated by even needing a carer at all, still, and that my condition is severely aggravated by stress (it triggers flare-ups which may put me back in hospital). I also made it very clear that I don't require help with medication(s) and that my children help me prepare the evening meals - the supervisor said that they understood “completely”. All well and good, I thought, and agreed to “Julia” starting on Saturday morning...

Since then, the following has happened:

Saturday - “Cheryl” arrived instead of “Julia”. Used the key safe to open the front door and shout 'hello' repeatedly as she very obviously stood in the doorway – which caused my dog to bark more than she usually would from the top of the stairs where (and this is important) I could see her the whole time. Her tail was wagging and she kept looking to me for reassurance, because this new carer was confusing her. After a few minutes, my dog gave up and returned to lie on the bottom of my bed. At this point, “Cheryl” marched into my bedroom and started to scream at me, aggressively, about my “nasty”, “vicious”, “aggressive” dog. I'm not someone who intimidates easily but I genuinely felt as though she were about to hit me. She then demanded my Nomad as she “had” to give me my meds – and got even angrier with me when I said that (a) I didn't need help with them and (b) had taken them a few hours prior. At this point, my daughter appeared from her bedroom and very politely asked her to leave. What was my “aggressive” dog doing whilst this was going on? Lying on the bottom of my bed looking bewildered. “Cheryl” flounced from the house and I called the agency to pretty much say “WTAF?!” - I was assured that it was a mix-up/miscommunication and they'd send someone else out on Sunday. No afternoon visit as “too short notice”, so I had to have a partial wash under my own devices/remain upstairs (both children were out with friends from just after “Cheryl”'s departure until late evening). Fair enough, I thought; these things happen...
Yesterday (Sunday), there was a knock on the front door which generated a few barks from my dog and my daughter thinking it was her parcel being delivered. She opened the door, having told the dog to wait upstairs (which she did) – and saw “Carer #2” retreating up the road. From my bedroom at the back of the house, I could hear this woman yelling about how my dog is “angry” and “vicious” and she was going to call the agency and tell them to stop “all care” as a result. I (accurately) concluded that “C#2” doesn't like/is frightened of dogs and called the agency myself. I spoke to someone who sounded as though she couldn't give a flying fuck, and said that she would “see what [she] could do about [today]'s visit”. Day two of limited strip-wash and confinement upstairs. I spent the day alternating between being grateful the carer didn't know anything about the key safe – and wondering what would have happened if my daughter wasn't home to immediately open the door...? Obviously, I would have been without care, regardless, as – right now – I am unable to get to the door and answer it safely.

Which brings me to today. “Mary” arrived and, luckily, is a dog-person. However, “Mary” also spent time berating “the dark lady” who is frightened of dogs and has subsequently labelled mine as “extremely aggressive” on my file with the agency – because she barked in excitement at a knock on the door! I got the impression that “Mary” doesn't like “#2” because of her skin colour... which sits very uneasily with me. My daughter is biracial. However, by this point, I was desperate for a hair wash and help with cleaning the bits I struggle to reach... I explained my needs very clearly – particularly that I use pH friendly feminine wipes and that I clean that part of my lower half myself...

Well, perhaps needless to say, “Mary” took it upon herself to not give me any choice in the matter. Subsequently, in spite of my verbal protests at the time, not only was shower gel infused water on a sodden flannel rubbed all over and into my vaginal area... she smacked my hand away from trying to stop her, as though I were a naughty child. Luckily, my son wasn't here (he'd left for college before she arrived) but my daughter – who is working remotely right now – stepped onto the landing to find her mother nakedly vulnerable and on full display, due to “Mary” having decided to open the bathroom door because my dog – picking up on my distress – was whining and scratching to be let in! “Mary” was asked to leave, and my daughter had to help me get dry and dressed once more.

I feel violated. My stress levels are through the roof. I absolutely do not want any more “care” from this seemingly incompetent agency, and am about to complain... but AIBU for wanting to complain to Adult Social Care, who employed them to come into my home, about them? I can't help but wonder how many elderly clients are being abused/violated in the same way as I've been over the last few days – and how many have been left without care because, despite the agency being told about dogs living at the address, they've sent people who are frightened of/by dogs out to them? How many survivors of sexual assaults have been left feeling as violated as I do right now (2 hours later, and I'm still shaking)? Yes, I know that things are stretched to near breaking point, but I also know that this level of “care” simply isn't good enough – especially as I want to regain as much independence/quality of life as I possibly can, was on the road to so doing, but know that this agency's staff aren't interested in helping me to do so. They'd be happier if I'd agree to lying immobile in bed all day/every day for the rest of who knows how long! “Mary” announced as soon as she set foot in my bedroom today that I “need” a fridge, a table, a kettle for hot drinks in here. Which no; I don't – because I have a fully functional kitchen downstairs! That place which I was being encouraged to spend time in by the “rapid response” carers only last week! The more stressed I am, the less likely to recover I am – and despite my children's offers to care for me... I don't want them to. That'd humiliate me far more than strangers doing it.

If anyone's gotten this far... any advice would truly be gratefully received right now. I will be complaining – but I do need to calm down slightly before doing so. My daughter's offered to do so on my behalf, but she's furious and it wouldn't end well, not to mention the fact that I'm worried about her own MH suffering if she causes a complete withdrawal of care for me.

OP posts:
Mumoblue · 20/09/2021 13:00

You are absolutely NOT being unreasonable and I think you should complain to whoever you can!

I’m sorry I don’t know anything about these types of situations, but I didn’t want to read and run- the way you’ve been treated by the agency and their employees is absolutely shameful!

Hopefully someone with experience in pursuing complaints like this comes along and sees this. Flowers

TheQueef · 20/09/2021 13:07

I've no advice but Flowers
Adult social care has deteriorated so much.
I think most would be shocked at what passes for support now, it certainly isn't care or caring.

Workinghardeveryday · 20/09/2021 13:10

My goodness you poor thing!!! That is absolutely shocking.

I would definitely complain to someone very senior. How dare she do that to you!! Your feeling are very justified and this should absolutely not have happened to you.

I hope you are ok @HoundofHades xx

Umbra · 20/09/2021 13:12

That sounds hideous. No advice as no experience, but YANBU.

JustHavinABreak · 20/09/2021 13:15

I don't have any first hand experience of needing a carer but what you've described goes against everything that I thought the caring profession was about.

First and foremost should be maintaining a person's sense of dignity and showing them respect. You've been offered neither.

While it's been unpleasant for you, at least you've had enough control to send them packing (with the help of your daughter). What happens if it's someone more vulnerable who doesn't have family or friends to intervene on their behalf?

In your position I would most definitely complain and demand proof of their having changed their training and procedures. Otherwise I'd be drafting a press release to the local paper to "help" others avoid this agency at all costs.

SylvanasWindrunner · 20/09/2021 13:20

No advice but just validation that YANBU. The whole thing sounds disgusting and I'm not surprised you feel violated. It definitely deserves a complaint.

Coronawireless · 20/09/2021 13:21

I’ve often thought that surely one of the worst things about having a significant disability must be being forced to depend on other people, many of whom are incompetent or horrible (and/or very poorly paid).
Most of what you describe is worth listing and specifically going through with your agency. I sincerely hope you can find a more caring and considerate approach going forward. It may take a bit of negotiation but don’t give up and try not to take it too personally if at all possible.
The one thing I would say is that many people are genuinely frightened of dogs, often for good reason. And your dog does bark at them. So it may be that when you know someone is coming, your dog may have to be out of the way for that time until they get to know each other.

LST · 20/09/2021 13:27

I have no advice. But wow op I am so sorry this has happened to you. Please complain to anyone that will listen. These people should not be carers

Nancydrawn · 20/09/2021 13:29

I would certainly complain to senior management.

toooothacheee · 20/09/2021 13:29

The treatment you have received is disgraceful and you absolutely should complain to anyone and everyone capable of taking appropriate action.

Even an idiot should know that if a dog is getting over excited or seems unsure you shouldn't bawl and shout and make a fuss or it will antagonise them more. It's part and parcel of the job to sometimes need to deal with the presence of customers animals.

Just because an adult needs some help and care doesn't mean they are unable to take control of their medication or look after themselves in other ways. I would have thought a carer should be switched on to know what level of care they are there to provide. They need retraining before being allowed to work with customers again.

Lillygolightly · 20/09/2021 13:31

I’m so very sorry to read what you have suffered and the terrible time you’ve had.

I have experienced of adult social care, the care was for my MIL (Alzheimer’s) and was only x2 mornings a week and was supposed to help me get MIL ready to attend the day centre she went to twice a week.

Adult social care is such pot luck and the carers themselves are put on strict time schedules and they often have no consistency in the clients they see. I think they usually have a 15-20 minute time slot to see a client, help with meds, food and wash etc and really for most that’s just not enough time.

Now in my own case with MIL we had difficulty getting the carers to do any actual care, this is because Alzheimer’s MIL would tell them she didn’t want them there, or would just shout at them and just generally be difficult as Alzheimer’s sufferers often are. So as soon as MIL raised her voice, or was difficult and say she didn’t want them they would leave. In the end I cancelled the carers, as they were turning up and then just leaving moments later, and I was having to take care of MIL myself anyway. It was absolute waste of time and resources.

In your position given what you have experienced in this short space of time I absolutely would complain and I would ask for the lady who assaulted you to be reprimanded/disciplined and ask for her to be removed from the list of people who can tend to you. I would make this complaint in writing so that you have a paper trail of the correspondence with the agency, send everything via email and if possible with read receipts. Make sure that they confirm they have received your complaint and ask to kept informed of how they intend to resolve matters and the possible solutions moving forward.

VanillaSpiceCandle · 20/09/2021 13:32

I’m so sorry to read this. I’m so angry this has happened to you, it’s not good enough. One of the most important aspects of all care especially personal care is maintaining dignity.

Definitely complain to the agency but I would suggest putting the dog in the kitchen/garden out of the way. This might mean more carers are willing to come to yours so you might find someone nicer/better. Also I’d suggest telling the agency when you complain this is what you’ll do so they can’t try to blame you for some stupid reason.

SylvanasWindrunner · 20/09/2021 13:34

I think the dog thing is more of a grey area – some people are genuinely frightened of dogs, so I always put DDog away in another room when someone unfamiliar is coming to the house. I don't think they're BU to expect your dog to be away safely while they are in your house – it may be that they are unable to guarantee dog-friendly people every time just due to staffing constraints. But if your dog is away in another room safely and not around them, they should be happy to come in.

The washing thing is inexcusable and disgusting.

Evenstar · 20/09/2021 13:35

YANBU that is disgusting, if you wanted advice or support with this then there is a Chronic Pain board on here and there might be people there who have experience of dealing with this situation. MN HQ could possibly move your thread if you don’t want to start a new one www.mumsnet.com/Talk/chronic_pain

CornishTiger · 20/09/2021 13:35

Who is funding your care? Do you have a case coordinator with Adult Social care? If so I’d start there.

If you are at a loss of who to contact then look at your local councils adult safeguarding website and you should get a number who can advise you.

Care should be done with consent and in line with your wishes.

AryaStarkWolf · 20/09/2021 13:35

That's horrible OP, I'm so sorry you had to go through all that. You're lucky you had your daughter around, like you say imagine how elderly people living alone are treated, awful, absolutely complain to anyone you can

Derbee · 20/09/2021 13:36

I think your “care” sounds appalling, and you should definitely complain when you’ve had a chance to catch your breath.

I do think it’s unreasonable for people to have a dog barking at them, and be expected to be ok with it. Is there any way your dog could be confined to a separate room whilst the carers are visiting? It’s not really fair for people to feel nervous or intimidated as they arrive at their place of work.

NotMyCat · 20/09/2021 13:38

From previously working as a carer
Medication - I would ask if it had been taken
Washing - whatever the person wants. I would fetch hot water/flannels and ask what they wanted me to do (this should be noted in the care plan too)

CornishTiger · 20/09/2021 13:42

Also I am scared of dogs. However I work in people’s homes and you have to learn the difference between dogs announcing your presence, getting used to you there etc.

GreenClock · 20/09/2021 13:47

I’d definitely email the supervisor (the person who came to your house first). You can pretty much copy and paste your post. I very much hope she’ll take it seriously.

ArrrMeHearties · 20/09/2021 13:48

You have been treated appalingly and I'm so sorry that you've had to put up with this treatment from an agency that is supposed to care for people. Sending you unmumsnetty hugs

Notajogger · 20/09/2021 13:49

Complain to whoever will listen. Don't be fobbed off and go to the local press if needs be!

Smorgasbored0000 · 20/09/2021 13:49

I don’t know how anyone could vote that YABU Confused

Gorl · 20/09/2021 13:52

That is horrific, I am so so sorry.

Yanbu to complain in the strongest possible terms Flowers

Teaandcakeordeath83 · 20/09/2021 13:57

What you've experienced is as far removed from "care" as I can think of. Please- complain to the agency, contact adult social services and explain to them the situation and that you require a different care agency or the rapid response team back until they can source a suitable alternative. You can also report this "care" agency to CQC as they clearly have no care for their clients and as you've rightly said- what experiences are those with reduced mental capacity having at their hands.

They are guests in your home and there to provide care whilst maintaining your wishes, privacy and dignity. They need reminding of this.