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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

(*Possibly Triggering*) AIBU to feel violated, and want to complain...

100 replies

HoundofHades · 20/09/2021 12:55

I have name-changed for this, for fairly obvious reasons.

Let me preface this by saying the following: I am 45 years old, a survivor of CSA and rape, and I am disabled. I have a degenerative brain condition which, until fairly recently, was pretty much invisible – however, following an admission to hospital 3 months ago, my mobility is now reliant on aids. I walk with crutches and have had to have a stair lift installed, because I lack the strength to safely haul myself anywhere. I still have full mental capacity.

After my release from hospital, I reluctantly agreed to have a team of carers enter my home. I live with my teenage son and adult daughter (who has severe MH problems, herself)... and I have a dog. I'm not one of these people who believe that their dog lacks the ability to be aggressive – whilst she's friendly and thrives on social interactions, at the end of the day she is an animal. She is also a rescue dog, whom I've worked hard with to train and do everything in my power to stop her from perhaps one day biting someone. She is extremely attached to me. She also barks to alert me to things (people entering/leaving our home being one of them) and I am alert to her body language at all times.

The team who came into my home for the first 8 weeks were the “rapid response” carers. I appreciate how lucky I was that my request for no male carers be assigned during this period was respected, and that the ladies were all “dog people” (my dog revelled in this, because she had 4 new “friends”!). These carers also listened to me, and encouraged me to start regaining my independence – when they last saw me, I was being helped to independently use the stair lift and go downstairs for a few hours during the day, having been cooped up in my bedroom with only the odd hobble along the landing to the bathroom every now and then. They also helped me to strip-wash, change my lower half of clothing (I struggle to put my legs into trousers/put socks on or off) and wash my hair over the sink. But the bits I can clean? I was allowed to. They understood that I'm embarrassed by “needing” carers at all (it's a learning curve) and that my independence is very important to me.

On Friday, I had an assessment with the agency of carers who were going to take over from the “rapid response” team, with the view to having one carer coming in twice a day to help me on my journey to regain as much independence as I can, and assist me with using the stair lift to go downstairs/back upstairs with a hot drink in the late afternoon. The supervisor who came out was almost ridiculously enamoured with my “sweetheart”of a dog, and agreed my parameters of the assigned carer being “dog friendly” and not treating me like I'm incapable of doing absolutely anything for myself. I explained that I feel almost humiliated by even needing a carer at all, still, and that my condition is severely aggravated by stress (it triggers flare-ups which may put me back in hospital). I also made it very clear that I don't require help with medication(s) and that my children help me prepare the evening meals - the supervisor said that they understood “completely”. All well and good, I thought, and agreed to “Julia” starting on Saturday morning...

Since then, the following has happened:

Saturday - “Cheryl” arrived instead of “Julia”. Used the key safe to open the front door and shout 'hello' repeatedly as she very obviously stood in the doorway – which caused my dog to bark more than she usually would from the top of the stairs where (and this is important) I could see her the whole time. Her tail was wagging and she kept looking to me for reassurance, because this new carer was confusing her. After a few minutes, my dog gave up and returned to lie on the bottom of my bed. At this point, “Cheryl” marched into my bedroom and started to scream at me, aggressively, about my “nasty”, “vicious”, “aggressive” dog. I'm not someone who intimidates easily but I genuinely felt as though she were about to hit me. She then demanded my Nomad as she “had” to give me my meds – and got even angrier with me when I said that (a) I didn't need help with them and (b) had taken them a few hours prior. At this point, my daughter appeared from her bedroom and very politely asked her to leave. What was my “aggressive” dog doing whilst this was going on? Lying on the bottom of my bed looking bewildered. “Cheryl” flounced from the house and I called the agency to pretty much say “WTAF?!” - I was assured that it was a mix-up/miscommunication and they'd send someone else out on Sunday. No afternoon visit as “too short notice”, so I had to have a partial wash under my own devices/remain upstairs (both children were out with friends from just after “Cheryl”'s departure until late evening). Fair enough, I thought; these things happen...
Yesterday (Sunday), there was a knock on the front door which generated a few barks from my dog and my daughter thinking it was her parcel being delivered. She opened the door, having told the dog to wait upstairs (which she did) – and saw “Carer #2” retreating up the road. From my bedroom at the back of the house, I could hear this woman yelling about how my dog is “angry” and “vicious” and she was going to call the agency and tell them to stop “all care” as a result. I (accurately) concluded that “C#2” doesn't like/is frightened of dogs and called the agency myself. I spoke to someone who sounded as though she couldn't give a flying fuck, and said that she would “see what [she] could do about [today]'s visit”. Day two of limited strip-wash and confinement upstairs. I spent the day alternating between being grateful the carer didn't know anything about the key safe – and wondering what would have happened if my daughter wasn't home to immediately open the door...? Obviously, I would have been without care, regardless, as – right now – I am unable to get to the door and answer it safely.

Which brings me to today. “Mary” arrived and, luckily, is a dog-person. However, “Mary” also spent time berating “the dark lady” who is frightened of dogs and has subsequently labelled mine as “extremely aggressive” on my file with the agency – because she barked in excitement at a knock on the door! I got the impression that “Mary” doesn't like “#2” because of her skin colour... which sits very uneasily with me. My daughter is biracial. However, by this point, I was desperate for a hair wash and help with cleaning the bits I struggle to reach... I explained my needs very clearly – particularly that I use pH friendly feminine wipes and that I clean that part of my lower half myself...

Well, perhaps needless to say, “Mary” took it upon herself to not give me any choice in the matter. Subsequently, in spite of my verbal protests at the time, not only was shower gel infused water on a sodden flannel rubbed all over and into my vaginal area... she smacked my hand away from trying to stop her, as though I were a naughty child. Luckily, my son wasn't here (he'd left for college before she arrived) but my daughter – who is working remotely right now – stepped onto the landing to find her mother nakedly vulnerable and on full display, due to “Mary” having decided to open the bathroom door because my dog – picking up on my distress – was whining and scratching to be let in! “Mary” was asked to leave, and my daughter had to help me get dry and dressed once more.

I feel violated. My stress levels are through the roof. I absolutely do not want any more “care” from this seemingly incompetent agency, and am about to complain... but AIBU for wanting to complain to Adult Social Care, who employed them to come into my home, about them? I can't help but wonder how many elderly clients are being abused/violated in the same way as I've been over the last few days – and how many have been left without care because, despite the agency being told about dogs living at the address, they've sent people who are frightened of/by dogs out to them? How many survivors of sexual assaults have been left feeling as violated as I do right now (2 hours later, and I'm still shaking)? Yes, I know that things are stretched to near breaking point, but I also know that this level of “care” simply isn't good enough – especially as I want to regain as much independence/quality of life as I possibly can, was on the road to so doing, but know that this agency's staff aren't interested in helping me to do so. They'd be happier if I'd agree to lying immobile in bed all day/every day for the rest of who knows how long! “Mary” announced as soon as she set foot in my bedroom today that I “need” a fridge, a table, a kettle for hot drinks in here. Which no; I don't – because I have a fully functional kitchen downstairs! That place which I was being encouraged to spend time in by the “rapid response” carers only last week! The more stressed I am, the less likely to recover I am – and despite my children's offers to care for me... I don't want them to. That'd humiliate me far more than strangers doing it.

If anyone's gotten this far... any advice would truly be gratefully received right now. I will be complaining – but I do need to calm down slightly before doing so. My daughter's offered to do so on my behalf, but she's furious and it wouldn't end well, not to mention the fact that I'm worried about her own MH suffering if she causes a complete withdrawal of care for me.

OP posts:
Mermaidpool · 20/09/2021 14:04

As a carer I am horrified by the way you have been treated. A massive part of care is maintaining dignity and independence, something this agency clearly do not promote. Call the agency but also the local adult social care team and tell them. Hopefully they can find a more suitable agency to come to you soon

ForTheLoveOfSleep · 20/09/2021 14:07

Complain to the CQC. Do not let the "care" company you are using know you are doing this. www.cqc.org.uk/contact-us/how-complain/complain-about-service-or-provider

LaikO · 20/09/2021 14:17

Sorry I have no advice, but you absolutely should complain, you've been treated appallingly.

Mossstitch · 20/09/2021 14:21

I work in an acute hospital and, although horrified by what you have been through, am not surprised because of some of the stories told to me by patients and people who need carers refusing them based on past experience. Your post is very eloquently put and I agree with the poster who said to send it to the manager of the care agency and adult social care asking if they can get the rapid response team back in whilst a suitable carer is organised. The financial side of it is not my area of expertise but I have had patients who have 'direct payments' whereby they have the opportunity to have money paid directly to them so that they can interview and employ their own carer, perhaps that might suit you better. Adult social care should be able to advise you of this. Like you I worry about the patients with dementia who are unable to voice their concerns, you would be doing them a service by complaining.

ChristmasPlannier · 20/09/2021 14:24

I have. I advice or experience but am horrified by the way you have been treated.

You are absolutely correct to complain. I can't help but imagine other individuals who are less capable than you or voicing their distress and feel so frustrated that some "care" assistants are in the wrong profession. Thank goodness for the good ones

Cabbagepie · 20/09/2021 14:24

Absolutely complain and complain again, this is totally unacceptable. We had some excellent carers for my mum and some who had clearly either not read her care plan or just couldn't care less - medication not given at the right time or at all, food/drinks left on a table out of her reach, wet/soiled bedding left piled on the floor ... I could go on. Agency addressed the issues every time they were raised but always felt we had to be on top of things every week. Regarding your dog, as much as you know they are friendly I can see this may continue to present an issue, particularly if there are different carers. Is there any way you can arrange for them to be shut in a separate room or a crate ready for the carers to visit? I say this as the owner of a friendly but vocal dog myself.

ExConstance · 20/09/2021 14:47

I run a homecare service for a community charity. You certainly should no;t be treated in this way, we are there to help promote independence not dictate what is done. Please arrange to see your social worker asap to get another care provider involved or think about taking a direct payment and employing your own team ( there is help with how to do that) We have cared for younger ( 30's, 40's) with progressive conditions in the past and the approach needed is very different to that carers adopt with older people with dementia, who will be their main category of service user. Please persist and try to get better support, there are some bad providers out there but in any area there will be some really good ones to.
We need to risk assess dogs before we start providing care for people, (low level tripping hazards, we call them!) As some of our staff are frightened of dogs and a few have allergies coupled with the fact that they could inadvertently let a dog out we always ask for dogs to be put in another room before a visit if this is possible, on that point I think you will have to compromise.

Whatup · 20/09/2021 15:04

I'd call the police no way would I let the agency just bury this or just give you a different carer.

Rosscameasdoody · 20/09/2021 15:16

So sorry this has happened to you. I have a degenerative disability myself, so I understand completely how hard you have to work to try to retain some element of control in your life, as the various aspects of your condition deteriorate. I realise that the care industry is being pushed to the limits, but that’s absolutely no excuse for the way you have been treated - the carers are there to help you, not to bully you into submission. To that end I think you should contact the care co-ordinator and complain - a previous poster suggested that your original post should be copied and pasted. I agree, you’ve described the treatment you received calmly and clearly. But I do think you need to make it clear that you consider the carer who washed your private parts, to have assaulted you. You explained to her that you do that part yourself, and for very sensitive and personal reasons. You did not give consent for her to touch you and she went ahead anyway - it’s a serious breach and it need to be addressed. Nothing else I can say really - sending you a big hug. 🌷

Innocenta · 20/09/2021 15:55

Please seriously consider switching to direct payments. Then you'd be able to hire someone yourself and you can ensure they love dogs as a requirement, plus have the same person consistently.

I'm so sorry this happened. I've been disabled all my life and dependent on caters for about ten years now. It's so difficult if someone isn't a good fit. Thanks

Innocenta · 20/09/2021 15:56

*carers (not caters!)

LakieLady · 20/09/2021 16:13

I agree with you @Rosscameasdoody.

OP, you have capacity and the (so-called) carer touched you intimately without your consent. That is completely out of order, and I'm sorry this happened to you. Definitely complain.

Saz12 · 20/09/2021 16:45

That is beyond appalling. I would be tempted to complain to CQC, as this goes way beyond a misunderstanding of your needs and a fear of dogs! Saying “I don’t want you to do that” and having that ignored...!

Complain in writing to care agency.
Ask for an immediate review with adult social worker. Is it possible for DD to be present at any meetings?

Cheeseplantboots · 20/09/2021 16:52

Yanbu complain to the CQC or equivalent.

Looubylou · 20/09/2021 16:53

I'd love to know why someone has voted YABU - I sincerely hope it was a mistake. Please complain 💐

goldfinchfan · 20/09/2021 16:58

I spent 28 years having "care" as I am ill and disabled.

It began reasonably ok..
Sometimes I had amazing carers.Poeple who became friends even.

But over the years the whole thing deteriorated to a travesty of the word care.
The carers are from agencies that treat them badly, but it doesn't excuse the carers bad behaviour.

I am afraid many seem to do the job in order to have some kind of power over vulnerable people. They seem to hate those of us who are not very old and worse those of us with out brains still working.
In the end the stress caused, making me far more ill, far outweighed the help I received.

I no longer get enough help but I can't face more interference and abuse.

I complained at one point but to be honest nothing ever became good again because the Govt have taken the money away from the Councils and no-one wants to pay enough. I had to pay and it was more than I could afford but in return I kept being sent people that were useless.

Don't put this in the Chronic Pain section because it will be good for general people to read about what goes on and is usually hidden.

gettingolderbutcooler · 20/09/2021 17:02

Maybe you could do what my mum did- ask around the village/community/friends to see who might like to come along to help?

MrsPelligrinoPetrichor · 20/09/2021 17:03

YANBU , a relative is going through exactly the same at the moment, the stress is awful and so is the (lack of) care.

Heartofglass12345 · 20/09/2021 17:09

Oh my god I can't believe what I have just read! Most definitely complain to the care company and put in a complain with care standards (depending on which country you're in) that woman should not have done that to you at all and she requires disciplining and retraining (personally I would sack her if I ran the company)
With the dog, if you know roughly what time they are coming could you put him in a different room for a while? He doesn't sound like much of a problem but some people just don't like dogs. I used to do home care and visited a woman who had 2 dogs who used to jump up and nip my fingers and poo all over the floor Hmm at least yours doesn't do that!

CousinKrispy · 20/09/2021 17:10

I am so sorry, OP, and for everyone else who has experience similar. it is an appalling violation of your dignity and such shoddy service. I am so glad your daughter was there to help but I can imagine you don't want her stressed out by these situations either.

Definitely lodge a complaint. I hope you find better individuals to perform this service.

Orang3ry · 20/09/2021 17:10

Can you request to be moved over to Direct Payments? It should give you more flexibility/freedom to choose a PA who suits you and your family circumstances. So sorry you’ve been through an awful experience though. Wishing you well with your recovery

Waternoice · 20/09/2021 17:12

@Innocenta is absolutely right, demand to switch to a direct payment and then use this to recruit and employ your own personal assistant.
It can be a bit of a faff to get started as you have all the legal responsibilities of being an employer, for example just as you would if you were employing a nanny for childcare. But you will retain your choice and control over your life, and your local authority should have a team or organistion that can help you recruit and set up the PA.
In the meanwhile, complain to the social care team about the personal care, and the inappropriate touching. Outrageous.
Flowers for you.

blubberyboo · 20/09/2021 17:16

Yanbu to complain about the verbal abuse, lack of care, incompetent agency not paying heed to notes and Mary forcibly washing you.

However some people are very afraid of dogs and as are as triggered by them as you are by your abuse history

Vodka1 · 20/09/2021 17:17

Please complain to qcc and anyone else you can.

I will know from experience they will put you down as a complainer for daring to ring them.

In care it is very very fucking hidious the way it's all run. 80% of carers are amazing 100%. Office staff? Rarely. Management is a total hit and miss.

Have you had a full care plan done and ready for them to read when they get there? The carers should be allocated extra time on their first call to you to allow time to sit and read through it / have a chat with you.

And no one should ever wash you without your full permission.

Even for a full dementia patient there is a 3 ask limit, you have to be smart about how you word it.

I know carers have had a tough time for the past 2 years but that does not make them all saints.

Complain and complain and hopefully you can be a voice thats heard so someone else doesnt suffer this. I'm sorry you had too.

RedHelenB · 20/09/2021 17:20

Definitely complain about the "slap" but I would ask your son and daughter to put the dog our the way before the carer visits. It's a badly paid job, with little to no training so the expectation that the carers will help your rehab is probably too high. I wonder if you could try employing your own, at least you'd get sone consistency.