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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

(*Possibly Triggering*) AIBU to feel violated, and want to complain...

100 replies

HoundofHades · 20/09/2021 12:55

I have name-changed for this, for fairly obvious reasons.

Let me preface this by saying the following: I am 45 years old, a survivor of CSA and rape, and I am disabled. I have a degenerative brain condition which, until fairly recently, was pretty much invisible – however, following an admission to hospital 3 months ago, my mobility is now reliant on aids. I walk with crutches and have had to have a stair lift installed, because I lack the strength to safely haul myself anywhere. I still have full mental capacity.

After my release from hospital, I reluctantly agreed to have a team of carers enter my home. I live with my teenage son and adult daughter (who has severe MH problems, herself)... and I have a dog. I'm not one of these people who believe that their dog lacks the ability to be aggressive – whilst she's friendly and thrives on social interactions, at the end of the day she is an animal. She is also a rescue dog, whom I've worked hard with to train and do everything in my power to stop her from perhaps one day biting someone. She is extremely attached to me. She also barks to alert me to things (people entering/leaving our home being one of them) and I am alert to her body language at all times.

The team who came into my home for the first 8 weeks were the “rapid response” carers. I appreciate how lucky I was that my request for no male carers be assigned during this period was respected, and that the ladies were all “dog people” (my dog revelled in this, because she had 4 new “friends”!). These carers also listened to me, and encouraged me to start regaining my independence – when they last saw me, I was being helped to independently use the stair lift and go downstairs for a few hours during the day, having been cooped up in my bedroom with only the odd hobble along the landing to the bathroom every now and then. They also helped me to strip-wash, change my lower half of clothing (I struggle to put my legs into trousers/put socks on or off) and wash my hair over the sink. But the bits I can clean? I was allowed to. They understood that I'm embarrassed by “needing” carers at all (it's a learning curve) and that my independence is very important to me.

On Friday, I had an assessment with the agency of carers who were going to take over from the “rapid response” team, with the view to having one carer coming in twice a day to help me on my journey to regain as much independence as I can, and assist me with using the stair lift to go downstairs/back upstairs with a hot drink in the late afternoon. The supervisor who came out was almost ridiculously enamoured with my “sweetheart”of a dog, and agreed my parameters of the assigned carer being “dog friendly” and not treating me like I'm incapable of doing absolutely anything for myself. I explained that I feel almost humiliated by even needing a carer at all, still, and that my condition is severely aggravated by stress (it triggers flare-ups which may put me back in hospital). I also made it very clear that I don't require help with medication(s) and that my children help me prepare the evening meals - the supervisor said that they understood “completely”. All well and good, I thought, and agreed to “Julia” starting on Saturday morning...

Since then, the following has happened:

Saturday - “Cheryl” arrived instead of “Julia”. Used the key safe to open the front door and shout 'hello' repeatedly as she very obviously stood in the doorway – which caused my dog to bark more than she usually would from the top of the stairs where (and this is important) I could see her the whole time. Her tail was wagging and she kept looking to me for reassurance, because this new carer was confusing her. After a few minutes, my dog gave up and returned to lie on the bottom of my bed. At this point, “Cheryl” marched into my bedroom and started to scream at me, aggressively, about my “nasty”, “vicious”, “aggressive” dog. I'm not someone who intimidates easily but I genuinely felt as though she were about to hit me. She then demanded my Nomad as she “had” to give me my meds – and got even angrier with me when I said that (a) I didn't need help with them and (b) had taken them a few hours prior. At this point, my daughter appeared from her bedroom and very politely asked her to leave. What was my “aggressive” dog doing whilst this was going on? Lying on the bottom of my bed looking bewildered. “Cheryl” flounced from the house and I called the agency to pretty much say “WTAF?!” - I was assured that it was a mix-up/miscommunication and they'd send someone else out on Sunday. No afternoon visit as “too short notice”, so I had to have a partial wash under my own devices/remain upstairs (both children were out with friends from just after “Cheryl”'s departure until late evening). Fair enough, I thought; these things happen...
Yesterday (Sunday), there was a knock on the front door which generated a few barks from my dog and my daughter thinking it was her parcel being delivered. She opened the door, having told the dog to wait upstairs (which she did) – and saw “Carer #2” retreating up the road. From my bedroom at the back of the house, I could hear this woman yelling about how my dog is “angry” and “vicious” and she was going to call the agency and tell them to stop “all care” as a result. I (accurately) concluded that “C#2” doesn't like/is frightened of dogs and called the agency myself. I spoke to someone who sounded as though she couldn't give a flying fuck, and said that she would “see what [she] could do about [today]'s visit”. Day two of limited strip-wash and confinement upstairs. I spent the day alternating between being grateful the carer didn't know anything about the key safe – and wondering what would have happened if my daughter wasn't home to immediately open the door...? Obviously, I would have been without care, regardless, as – right now – I am unable to get to the door and answer it safely.

Which brings me to today. “Mary” arrived and, luckily, is a dog-person. However, “Mary” also spent time berating “the dark lady” who is frightened of dogs and has subsequently labelled mine as “extremely aggressive” on my file with the agency – because she barked in excitement at a knock on the door! I got the impression that “Mary” doesn't like “#2” because of her skin colour... which sits very uneasily with me. My daughter is biracial. However, by this point, I was desperate for a hair wash and help with cleaning the bits I struggle to reach... I explained my needs very clearly – particularly that I use pH friendly feminine wipes and that I clean that part of my lower half myself...

Well, perhaps needless to say, “Mary” took it upon herself to not give me any choice in the matter. Subsequently, in spite of my verbal protests at the time, not only was shower gel infused water on a sodden flannel rubbed all over and into my vaginal area... she smacked my hand away from trying to stop her, as though I were a naughty child. Luckily, my son wasn't here (he'd left for college before she arrived) but my daughter – who is working remotely right now – stepped onto the landing to find her mother nakedly vulnerable and on full display, due to “Mary” having decided to open the bathroom door because my dog – picking up on my distress – was whining and scratching to be let in! “Mary” was asked to leave, and my daughter had to help me get dry and dressed once more.

I feel violated. My stress levels are through the roof. I absolutely do not want any more “care” from this seemingly incompetent agency, and am about to complain... but AIBU for wanting to complain to Adult Social Care, who employed them to come into my home, about them? I can't help but wonder how many elderly clients are being abused/violated in the same way as I've been over the last few days – and how many have been left without care because, despite the agency being told about dogs living at the address, they've sent people who are frightened of/by dogs out to them? How many survivors of sexual assaults have been left feeling as violated as I do right now (2 hours later, and I'm still shaking)? Yes, I know that things are stretched to near breaking point, but I also know that this level of “care” simply isn't good enough – especially as I want to regain as much independence/quality of life as I possibly can, was on the road to so doing, but know that this agency's staff aren't interested in helping me to do so. They'd be happier if I'd agree to lying immobile in bed all day/every day for the rest of who knows how long! “Mary” announced as soon as she set foot in my bedroom today that I “need” a fridge, a table, a kettle for hot drinks in here. Which no; I don't – because I have a fully functional kitchen downstairs! That place which I was being encouraged to spend time in by the “rapid response” carers only last week! The more stressed I am, the less likely to recover I am – and despite my children's offers to care for me... I don't want them to. That'd humiliate me far more than strangers doing it.

If anyone's gotten this far... any advice would truly be gratefully received right now. I will be complaining – but I do need to calm down slightly before doing so. My daughter's offered to do so on my behalf, but she's furious and it wouldn't end well, not to mention the fact that I'm worried about her own MH suffering if she causes a complete withdrawal of care for me.

OP posts:
guiltynetter · 21/09/2021 21:07

I am one of the 'rapid response carers' (not who came to you!) and this is sadly a story we hear a lot when our care gets taken over by a care agency. I don't know any with a good reputation :( definitely complain to the agency, they should be absolutely doing as you wish and listening to your needs. Unfortunately a lot of care agencies give their staff too many visits, they will be rushing to get to their next person so not listening to what you want properly.

As for the dog I do think that is a grey area, I am a little apprehensive of dogs and actually the rule is with our service is dogs must be put in another room while we come... Obviously if the dog is quiet and not jumping up then that is fine but if they are barking loudly I wouldn't like that.

bewilderedhedgehog · 21/09/2021 21:08

OP you clearly need to complain. Your care needs should be documented and recorded. I would start with that - it should definitely record who is giving (or not in your case as you can do it yourself) medication, and your specific needs. If you don't have that - I would get that organised asap. It is then easier when the carer comes. Secondly, I would make notes of what happens on each occasion as another record. Thirdly, be very clear about the resolution that you would like. Rather than phone them - initially I would email -you then have a written record. Hope this helps a little

Smashingspinster · 21/09/2021 21:20

We had a similar experience with my mother - the emergency carers were amazing. The other agencies - absolute crap. It got to the point where we felt we had to watch them the whole time to ensure they were doing what they were supposed to. Complain to everyone you can think of - I think this sort of stuff also has to go to MPs and government. Care agencies struggle to get staff so employ a lot of crappy people along with the good ones and do not always get rid of them when they do stuff which is shamefully wrong. The thought of what happens to people who cannot advocate for themselves or dont have someone to do it for them used to keep my up at nights. Flowers.

Evergibbon · 21/09/2021 21:45

I'm moving my mother into a residential care home on Friday and it can't come soon enough.

The care agency has no consistency they come at 7am, 10.30 am, whenever. And some are great but most just don't seem to be bothered at all... I hate it, and it's not happening to me.

I would definitely complain to social services and see if they can put you back under the rapid response team until they swap you to another agency. Could they instead put the funds towards named person?

DamnUserName21 · 21/09/2021 21:51

[quote Rosscameasdoody]@DamnUserName21. I would have thought the OP would already be in receipt of PIP at some level, given the severity of her condition. DLA is no longer an option past the age of 16, and the independent living fund was closed to new applications in 2015.[/quote]
I knew I was out of date with my info somewhere.
I may be thinking of direct payments????
Anyway, OP, would likely be better served sourcing her own carers if possible.

Is there a carers hub in your area, OP?
You can Google private carers.

www.carersuk.org/help-and-advice/practical-support/getting-care-and-support/direct-payments#:~:text=A%20direct%20payment%20is%20the,the%20local%20council%2Ftrust).

www.which.co.uk/later-life-care/home-care/organising-home-care/how-to-employ-private-carers-aszsg4j2q80m

www.carersfederation.co.uk/services/training/

3amgoogle · 21/09/2021 22:07

I'm a nurse

You were assaulted by a carer. You did not consent to being cleaned in your intimate area and you communicated this clearly. It's awful and I'm so sorry. Please complain so they can be hopefully sacked learn.

ASC is in crisis now, in my area they are struggling to find care agencies and it's causing massive waits. It sounds like they've taken on a duffer of an agency out of desperation.

Speakuptomakeyourselfheard · 21/09/2021 22:08

Something that I don't think anyone has mentioned in previous responses OP, is can you afford to install a video camera in your room, as evidence of the sort of care you receive could prove to be extremely important? I really hope that you NEVER experience anything as traumatic as what has already happened to you ever again, but having a record of what goes on, really can't hurt in this day and age. In the meantime, as well as making your complaint known to the various parties suggested, I would highly recommend sending a copy of your post to your MP, and getting them onboard. It's surprising how much clout they actually have if they decide to get involved, as I know from my own difficulties in dealing with the DWP over my PIP claim.

Rosscameasdoody · 22/09/2021 10:02

@DamnUserName21. Sorry - I didn’t mean that to come across as rude and hope you didn’t take offence. I think it was probably direct payments you were thinking of, but these aren’t as straightforward as payments were via the ILF - it involves a LA assessment for care in the community and the recipient has to meet a range of eligibility conditions, including financial. They also have to accept that they, or a ‘suitable person’ acting for them, will effectively become an employer, with all the responsibilities that brings. It’s aimed at keeping people independent and able to continue living in their own homes by buying in their own choice of care services. It does give more control, but it comes with responsibility that not everyone is willing or able to accept. DLA started to be phased out and replaced with PIP in 2013. Anyone reaching retirement age by 8 April of that year will stay on DLA for as long as they continue to meet the eligibility conditions. DLA can also be claimed by under 16’s, and then, providing they meet eligibility, once they reach 16, they are migrated onto PIP - it involves a full reassessment as eligibility for PIP is a lot different than DLA.

OP, as your condition dictates, you could also consider selling up and moving to an assisted living facility - you can rent or purchase - and you then choose the appropriate care package, depending on your needs. The care is available onsite 24/7 and is paid for monthly. It can be expensive, but you may be eligible for various benefits which would help pay for it.

DamnUserName21 · 22/09/2021 18:20

@Rosscameasdoody,
It didn't at all so don't sweat it! Smile

Whatiswrongwithmyknee · 24/09/2021 23:53

The carer touched your private parts without your consent and against your clearly expressed wishes. That is assault and you could report it as such. So sorry to hear about this OP.

StardewMelons · 25/09/2021 01:15

After working in a home care company myself I would never allow my family to be cared by one. I met more bad carers than good. People who wanted to make a 30 minute call last 5 minutes (and cut a shit tonne of corners) to people who litrelly had no empathy. Where I worked the pay was shite, less than min wage when you take in to account 10 minute gaps between calls and travel costs. They employed anybody. They let me start before my CRB check was even through! ... Anyway OP, Im so sorry in what happened to you, it is assault, I don't care what any one on this thread says. You told them you didn't consent to being cleaned below, and they ignored it. I would take it higher than complaining to the company again, you are entitiled to dignity, consent, security and a good level of service, none of which you have recieved.

MimiDaisy11 · 25/09/2021 01:30

I’m sorry what you’ve been through/ are going through.
It angers me that someone would think they have the right to touch you intimately against your wishes. They’re so ignorant to think they know best. They’re ableist and shouldn’t be a career. it’s assault.

lynntheyresexpeople · 25/09/2021 01:31

Former Team leader/ senior care lead here, absolutely everything you've described is shocking, completely unacceptable, and any of my team would have been sacked after what they've done to you. Complain to every channel you can, put everything in writing, detailed as possible. I'm so sorry for what you've experienced. Clear consent is needed before any form of personal care, and you were violated.

dibly · 25/09/2021 01:59

@lynntheyresexpeople

Former Team leader/ senior care lead here, absolutely everything you've described is shocking, completely unacceptable, and any of my team would have been sacked after what they've done to you. Complain to every channel you can, put everything in writing, detailed as possible. I'm so sorry for what you've experienced. Clear consent is needed before any form of personal care, and you were violated.
Absolutely this. I’m so sorry you’ve had such an awful experience. I’ve worked for an MP and if you send your post, as is, then this should be escalated on Monday. In the meantime phone and the crisis care team and explain, in these circumstances they should be able to step in.
OzziePopPop · 25/09/2021 02:07

I receive 8 hours care per week, I’m in a similar situation but also a wheelchair user. I’ve had many bad experiences in 5+ years now and my DH provides most of my care thank goodness. Obviously this isn’t always possible. Do complain, long and loud! We did after several lower level ‘could you please…’ requests to the agency, eventually adult social services took me seriously and my new social worker is brilliant.

We have three dogs 2 Beagles and a large, loud, intimidating Rottie x GSD (who is actually ancient, harmless and the best trained of the lot - still barks though. He’s a guard breed and a rescue!). Never had any problems re the dogs but DH helps again so…

I’m sorry you’ve had such a time and do complain. Waiting lists are long for new cases but we found once in the system it was quite good.

GlitterNails · 25/09/2021 02:16

I’m so sorry you’ve been through this. Sadly this kind of experience is fairly common for people with disabilities. I have a direct payment and employ PAs directly which meant I was able to employ people of my choosing, and one thing I asked about at interview was whether they like cats or not.

This home is my cats home too. They are not to be locked up, or have someone in my home regularly who dislikes them. All my PAs have been cat lovers and I’ve felt comfortable with my PAs doing things for them. My current PA has full on conversations with my cats, and can list exactly which each will and won’t eat.

The other point I wanted to address is to all those saying the OP needs to put the dog in another room - HOW is she supposed to do that? If she’s needing the carers to leave her room, then it’s unlikely she can round her dog up and do that. And the whole point of having carers is to not have to rely on her children being there either so saying they should do it isn’t an option for every day of her life.

At least with a PA you can choose a dog lover, and introduce them to your dog so they get used to each other and you can feel more relaxed about each visit. Plus with PAs you usually get more time so they can help you with other things. Mine takes me to appointments, helps me organise things and all sorts of other things I’d struggle to do alone.

If you are interested in the process of applying for direct payments, please do feel free to message me. They can feel a little overwhelming at first, and of course do have their flaws - but I would never, ever use a care agency.

The amount of my friends that have had visits skipped, times that don’t suit them pushed upon them, been left stuck in bed or unable to get to bed, had unsuitable carers, been left without meals or drinks and so much more is beyond a joke.

WellThisIsShit · 25/09/2021 02:46

I’m so sorry you’ve been through this.

As a disabled person who has to rely on carers, it all sounds terribly familiar.

I actually have PTSD from my initial experiences with agency ‘carers’. Also about violation stuff, and abusive, cruel behaviours. Horrible.

Xxx

guiltynetter · 26/09/2021 22:37

I wonder if the OP ever came back to read her responses...

HoundofHades · 29/09/2021 22:26

@guiltynetter

I wonder if the OP ever came back to read her responses...
Yes. I did. All of them. Thank you to everyone who took the time to reply, too.

I'm in the process of direct payments being authorised, following (many) lengthy phone calls to ASC - and actually interviewed with another agency today. The first few calls to ASC, however, involved a lot of frustration because their expectation was that I'd calm down if I slept on what had happened. It was only when I suggested that I forward my dental bill to them, given that on the Monday night following the assault that morning, I had extreme night terrors to the point where I actually shattered a tooth at the gum... that I was taken seriously. It didn't help matters that the "carer" who assaulted me re-entered my home that same evening, and wouldn't leave until my daughter actually called the police. I had to explain and reiterate to ASC the concept of consent, assault, and trespass, too, which makes me genuinely wonder at the mentality on their part. Because no; it's not acceptable. In any concept of the word.

With regards to shutting my dog away - certainly, on two days a week it would be physically impossible for me to do so. Not to mention the fact that she has separation anxiety and screams if she's parted from me. Someone from my immediate family has to be with her, if I physically cannot - and she's inconsolable until I return. My hospitalisation made this worse. So it wouldn't be something that I'd consider, lest it create an actual problem. The new agency would send dog-friendly/confident carers in, as a given. Naturally, I'm a little wary of a repeat, but only time will tell.

I'm sorry I didn't respond immediately, but I've had hospital and dental appointments going on, plus two angry children to try to convince I'm okay when really? I'm not. But I will be.

OP posts:
TonkinLenkicks · 29/09/2021 22:44

Practical advice- perhaps you would be better suited to having a direct payment so you could choose your own agency. Or even better what about a direct payment to employ a PA? the local authority will support you to recruit a PA but it would mean that you’d become an employer and would need to manage it yourself. Don’t want to make any assumptions about wether or not you’re able to manage it yourself but you do mention about stress, do you have anyone that could support you with a direct payment? Just an idea, might not be suitable but might give you better control over your support.

Totally agree though, domicilary care is crap (and I say this as someone who has experience of frontline care work and also commissioning services for the LA)

TonkinLenkicks · 29/09/2021 22:45

So sorry, should have RTFT Blush sounds like you’re on the right track now though

ChristmasPlannier · 29/09/2021 23:14

OP I feel so angry fir you reading your update. I have no advice but really hope you source appropriate care ThanksThanksThanks

faithfulbird20 · 29/09/2021 23:40

Complain and make change!!! I am so sorry you had to experience that! What the devil is wrong with people these days?! Honestly!

pippapoo62 · 30/09/2021 09:23

I have been a carer in my early days, the abuse that I saw is still with me now , one home I worked in ( night shift ) we had to change the bottom sheet if the person had wet it in the night . Only the carer didn't ,they would turn the sheet upside down and place the wet part at the bottom of the bed. One morning I was so mad at seeing the stain top and bottom ,that I stripped every single bed that had a wet sheet on it and made up with clean bedding,
I believe it was just over 6 beds I had changed completely. The abuse I got the following evening for doing this was really terrifying , the reason was because the day workers didn't want to be washing and drying sheets all day , I saw a lot of abuse during the 3 weeks I worked there and finally left but not before putting a complaint in and the home was closed 3 moths later.

Yoksha · 30/09/2021 09:45

This thread is so heartbreaking regarding how the vulnerable are treated. OP, pleased that you have family who are so protective of you, and all the upbuilding comments from posters. 🌻

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