I am coming from a very minority viewpoint, in that my ds (10) is cev
...having to redo his hospital passport on the instructions of his learning disability nurse, back in April, to include information about his human rights in the time of Covid, was very hard. Hearing 'anti lockdown' people proposing focused protection, whilst never considering people like ds is very hard. Listening to people discuss the value of a person's life when it comes to stretched medical care, as a point of discussion on chat shows and social media, is very hard. Knowing that the value this society places on people with Learning Disabilities is pretty low, leading to avoidable deaths and poor health outcomes even pre Covid, is very hard. Hearing the words, '....they did however have underlying conditions' is very hard. Hearing the fear in the voice of my friend (whose child has a life limiting condition) when we are discussing how we just have to make sure our children don't end up in hospital this year, is very hard. Knowing a vaccine isn't on the horizon to protect him (yet...hopefully), is very hard.
I know lockdown is hard, I've worked with vulnerable families, I have left my job, and seen friends lose theirs, I know people are struggling. Ds has been shielding for most of the year since last March, he will miss most of his last year at primary school and his transition to secondary. I'm furious that lockdowns were necessary, because the government failed to get a decent test, track and trace system in place, that they have fucked up continuously along the way...meaning that now, with new variants and cases, hospitalisation and deaths as high as they are, that lockdown is necessary.
I know it is very hard, all of it.
has been shielding for most of the time since March. Selfishly I want the world to get back to normal for him, because this is his last year at primary, it is going to be an incredibly difficult transition to secondary