To think it’s really hard for autistic children at the moment

[Scottishmum1984]

This really struck a chord with me as my friend’s son is struggling at the moment. www.edinburghlive.co.uk/news/edinburgh-news/edinburgh-mum-shares-heartbreaking-reality-19325731?utm_source=linkCopy&utm_medium=social&utm_campaign=sharebar

Autistic adults too. It’s caused no end of problems for my friend who is a carer as her clients have lost all their sessions outside of the homes and all the structure they were used to. Everyone I know who cares for a loved one with a disability is struggling too without their normal support network

@heydoggee my son has autism and I disagree with your statement. I much prefer saying; my son has autism instead of my son is autistic. He is so much more than his diagnosis.

@reginaphalangeeee I am exactly the same with my son. I hope you’re doing okay. As well as this year being tough for my son, it’s also been tough for me.

My son also hates having his hair cut. He has kicked out at the hairdresser before and for a long time we had to do it at home with the clippers. He says having his hair cut hurts. Luckily we’ve now found a barbers he seems ok with. He also hates having his fingernails cut. Might try cutting them when he’s asleep. 🤔

@ZombieAttack I cut my sons nails when he is asleep too. Very distressing for him.

@ZombieAttack
He also hates having his fingernails cut

Something that really helped ds (who is very resistant to anything to do with self care, and has lots of sensory issues) was to squeeze the end of his finger for 3 or 4 seconds before cutting his nails...it seemed to really help with the sensation. It also took us an age to realise he hated nailclippers, and scissors were better, and to set a visual timer - so I would say this is going to take 3 minutes, and if I hadn't finished I'd just stop.

I don't know if any of that would help - I always ended up waking him up if I tried to do it in his sleep (and that was a HUGE disaster!!)

I'm lucky my son's special school cut DS nails if we can , apparently he sits there like he's having a manicure 😂,but screams blue murder when I try 🙄

You don't like high functioning autistic people, we get it. We don't count, we're not autistic enough for you, or that were all part of some sort of evil 'movement' that has it out for you. Pease leave us alone.

That's absolutely not true, why do you think that?

@DaisyDreaming - there is just zero support right now - I find it very hard

@ineedsun

You don't like high functioning autistic people, we get it. We don't count, we're not autistic enough for you, or that were all part of some sort of evil 'movement' that has it out for you. Pease leave us alone.

That's absolutely not true, why do you think that?

From what she says. Thinking we don't count and that we're conspiring to silence her son.

I don't think that's what anyone is saying, I think some people are saying that it's not OK for someone who's experience is very different from another person's, someone who's never met that person, to speak as an expert on them, or speak on their behalf.

It feels like people are angry that the lives that they're living are being judged, that they're being accused and labelled for doing what they understand to be the best for their child.