to think that peeing gallons of blood & having a fever is an emergency?

[Trying2Heal]

I've a history of urinary tract infections progressing to kidney infections since I was about 3 years old. 18 years ago I was diagnosed with bladder cancer, but following treatment it has been in remission since then.

After an extremely stressful life experience I had what I thought was yet another urinary tract infection but yesterday it progressed to blood literally pouring out of me whenever I urinate, and I'm having to urinate at least once every 20 minutes. During the night I counted the number of times I had to get up to pee it was 21 times. And each time I peed blood my urine is quite intense red, and it is EXCRUCIATINGLY painful. I am shivering and sweating. I called 111 and they told me a "local service" would call me back. The local service was this awful rude woman who told me to just drink lots of water and to try to get a GP appointment later this year and just kept asking me if I have friends and a support system. She was so rude and eventually hung up on me.

The last time I had these symptoms I ended up with a serious kidney infection and hospitalised for several days. Clearly I need antibiotics.
Am I to just sit here getting progressively more ill?

The totally red thing doesn’t chime with my experience.

@Janegrey333 my goodness there are some oddballs on this forum

[quote Trying2Heal]@Janegrey333 my goodness there are some oddballs on this forum[/quote]
Is this your first time on MN?!

Glad you're on the mend OP. Well done for getting seen. Hope you feel better soon.

The totally red thing chimes with me!

I was asked to do (another) pee sample at the GPs once (having gone in to ask for ABs for a UTI) because they couldn't be sure the one i'd provided (which was pretty red) was sterile.

The few agonised drops i produced for the second sample were like tomato soup. Ugh.

Glad you're feeling better OP.

[quote Trying2Heal]@Janegrey333 my goodness there are some oddballs on this forum[/quote]
You should see the oddballs at the place to which I alluded...🤭

@legalseagull. I've not seen such a bizarre attitude as this person who says she questions the "veracity" of my post. What sort of person invests time in writing such a weird and hateful message to a complete stranger?

Thank you for your warm wishes. I'm still on the mend but I feel significantly better than I did yesterday. It's a relief knowing that at least I'm taking meds to kill the infection

@Laiste. Yes, it's bloody frightening to see isn't it? It was seriously freaking me out. My pee was actually red. There was no bleeding aside from when urinating. Put the fear of God into me. It looks so dramatic.

@Laiste. was it a UTI you had? Did they put you on nitrofurantoin? That's the one they seem to like to prescribe for UTIs but the doc I saw prescribed me Amoxicillin instead.

I had very similar symptoms including the lots of blood in urine - initially I didn't realise as there was so much blood I thought it was a period starting and so 111 prescribed 3 days nitrofunatoin which cured uti pain but left the dizziness, back pain and bleeding and massive headache. Messaged doctors and got a reply on the Monday and they diagnosed a kidney infection andgave me 10 days cefalexin. That stopped the bleeding and most of the back pain but I got increasingly dizzy and confused and as soon as I stopped it after a couple of days uti reappeared. I then started another 7 day course which took uti away after 1 days but at 3 days doctors said to stop it as getting very itchy and very dizzy / drowsy again and they thought reaction to the drug. I've been off now about a week and so far OK but lots of white particles in urine and odd black one so not totally convinced its completely OK but at least I feel human again.

It's good you are getting a urology check up. Mine's basically gone now but I wonder if there's something like kidney stones but will just see if it happens again. Glad you are improving.

Glad to hear you’re feeling a bit better now @Trying2Heal; I’ve had 2 UTI’s so far this year where I’ve been peeing blood and passing clots too - thankfully neither time was I sick enough to end up in A&E but that’s probably down to having a GP surgery who answer their phones and see you within a couple of hours of calling!! I have in the past been prescribed nitrofurantoin and trimethoprim for them as these are the standard 1st line treatments followed by amoxicillin unless mc&s shows a resistant bug requiring something different. Because I’m breastfeeding I’ve been prescribed pivmecillinam (Selexid) for the last 2 infections - but not before being given a 3 day course of trimethoprim and then getting a phone call after 2 days telling me it’s the wrong treatment and to collect another prescription!!

That's terrifying @KoalaRabbit. Has your doctor offered you any kind of further follow up to see what's going on?

I've got a 7 day course of the Amoxicillin. I hope it will be enough to knock out the infection

@Rememberallball sorry to hear you have had two UTIs this year. Are you feeling better now?

Hope 7 days is enough for you. I haven't got a follow-up, just told to get back in touch if symptoms reappear. Think if I get it badly again will just go to A&E but atm its fine. Had one previously which just kept coming back for 9 months, eventually went when I went into hospital and got double antibiotics for 14 days. How are you feeling now, I'm allergic to pencillin that's why I didn't have amoxicillin though think I might be allergic to the one they gave as well but it worked at least.

Why are you posting here? Go to a&e

Why are you posting here? Go to a&e

She's been and come back with the update

@YukoandHiro

Why are you posting here? Go to a&e

Why are YOU posting this here and now? OP has been to A&E, been seen, been treated and is now home. Do try to at least read the OP's posts to ensure that you keep up to speed with the thread.

I am thanks @Trying2Heal. The first one I had the Selexid prescribed by the surgery paramedic and it worked within about 3 days and I felt better; the second time the HCP said I had to try the trimethoprim first as that’s the recommended antibiotic (or nutrofurantoin which I can’t take as breastfeeding) so it took a lot longer for it to work and for me to start to feel better but I’m there now - and hope you will be soon too xxx

'I've got a 7 day course of the Amoxicillin. I hope it will be enough to knock out the infection'

So pleased you're on the mend. It must be reassuring for you that you are on oral antibiotics and you didn't need to be admitted for IV antibiotics.

I think it's shokcing that your gp practice don't answer the phone! You should complain. Do they do E consults because if it happens again it may be an idea to try that, ime response is fairly prompt and you'd get a prescription without the need to go to A&E.

@GetOffYourHighHorse. Yes they do do e-consults. That's how I've always communicated with them in the past. In an e-consult they get back to you the next day which is absolutely fine for a non-emergency but not ideal when you need antibiotics urgently.

I may actually change to a new GP practice as mine honestly do never answer the phone

@Trying2Heal

Sorry - late to answer. Yes it was a UTI. I think it was amoxi which is usually given to me and it always works.

I get struck with cystitis apx twice a year and i always try to treat it at home when the symptoms begin (gallons of water and cystem (sp?) powder) but 9 times out of 10 i end up at the docs asking for ABs. Nowadays they look at my notes and believe me but that GP wanted a sample ...

Hope you are feeling much better xxx

@WingingItSince1973
Thank you. Still feel a bit shit but the frightening symptoms have gone

Thats good they have gone. Hope you get better soon xxx

Passing blood! A&E now FFS! Why are you wasting time posting on line or bothering with 111?