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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think the way I spend my child's DLA is fine and does benefit them?

135 replies

Catoninetails · 17/08/2019 09:20

Bit of background, I'm a single parent with 2 DC, my youngest who is 7 has ASD and ADHD with sensory processing disorder as well. They haven't been able to attend school full time for over 12 months. As a result of this I had to cut my working hours significantly. I get child and working tax credits and partial housing benefit, and I also claim DLA on behalf of my disabled child (low rate mobility and middle rate care, which adds up to £327 a month plus a child tax credit premium for them).

I use this as follows:

-Seam free pure cotton clothing (needed for sensory reasons)
-Music lessons (recommended by occupation therapist for improving coordination and getting both sides of body working together better)
-Saving for an appointment at BIBIC (for assessments and therapy that the NHS can't afford to provide)
-Running a small elderly camper van so we can spend nights at the seaside etc (they cannot cope with sleeping in strange places so this gives familiar surroundings, these nights away are the only holidays we ever get and my child loves them, it's not a luxury motorhome by any means, just a van with beds and a cooker fitted into the back and it's our only vehicle)
-Buying items like a laminator (for making social stories and signs and lists to go around the house), a docking charger for their tablet (to stop the charging port getting fucked AGAIN from being carelessly plugged/unplugged), the sort of things that makes life that bit easier for them and therefore us!
-Magazine subscriptions for them (expensive special interest magazines that they love)

All of this is stuff that I couldn't afford if not for the DLA. And IMO it all benefits my child. But the DLA also goes towards the general running of the house now that my earnings have dropped - bills (higher now we are in the house more rather than being at work/school all day on weekdays), takeaways when we've had an awful day and I can't be arsed to cook, taking my older child for a treat day every couple of months when my younger child is with their dad (older child is classed as a young carer so they need to have that sort of time made for them). The camper van is also used as our daily vehicle for shopping trips etc.

I've seen posts on a DLA for children Facebook group saying that DLA should only be spent on the child it's paid for. Some parents saying they write down every penny of it and how it's spent, or have it paid into a seperate account in their child's name to keep track of it, or take it out weekly and keep it in an envelope and account for how they spend it all. They seem to think it's tantamount to financial abuse and fraud to do what I do 😕 and now I'm worried that I'm not spending it appropriately or keeping records of how it's spent etc.

OP posts:
tillytoodles1 · 01/06/2020 20:58

You sound like a fantastic mum, taking full time care of a child with special needs can't be easy. You're son obviously is your priority and all the money you spend benefits him.

BlackeyedSusan · 01/06/2020 21:29

mine will be going on a new fucking bedroom fucking door... and probably a new bathroom door too... it went on a new sensor in the shared area too.

Dee1975 · 01/06/2020 21:45

Sounds like you do spend it on your child, your child’s home .. all beneficial for your child’s wellbeing. Sounds like you spend it as you should! What do you think you ‘others’ think you should be spending it on?

sofacushions · 01/06/2020 22:04

OP,

I think I know the dla group you're talking about. You'll always get people that take it to extremes. My ds (6) gets DLA- HRC, LM and I get carers allowance. It sounds like a lot but I gave up a 40k a year job to care for him. He's hard, hard work but I love him with every fibre of my being. Everyone seems to have an opinion on what you should spend DLA on though. The amount of times I have heard 'thats what his DLA is for' from all sorts of people, including healthcare professionals just beggars belief. Unfortunately I cant tell them to wind their necks in like I do with MIL
I got his DLA this week. And so far I've spent it on the following that would have the people in the group and my cowbag of a MIL squawking:

Packed lunch stuff for dd's school lunches this week. She's been at school for the duration due to ds' needs and how the impact on her. School's her respite and if she wants the fancy crisps in her lunchbox then I'll bloody well buy them out of DLA. She gets a rough ride as is.

16kg flour. Ds has a diet that's entirely gluten free. He likes his baked treats and often likes helping plaster himself in cake mix. It would be easier to buy crack than it would to buy gf flour at the moment where I am. We all eat the gf cakes/bakes at the moment. it was choc chip cookies tonight and they were good.

My mobile phone bill. I have an unlimited data package because when I was out with ds pre-lockdown one of the ways a meltdown could be avoided in public would be to give him my phone and let him watch youtube videos of his obsession du jour. I'm using the data at the moment.

Amazon music subscription. When he's in the car he likes to listen to music, currently its Abba. I'd choose music over a meltdown in a confined space quite frankly. I also have my own playlist though and listen to it when washing up.

A case of disposable gloves that I persuaded a company that dont usually sell to the public to sell to me. Ds has issues with continence and will ONLY accept me supporting him if I'm wearing gloves (because they do at school). I did use a pair of gloves earlier when handling the raw meat I was cooking for tea.

4 bottles aerosol suncream. Yes, its probably not the best for the environment but trying to apply liquid suncream to a child who is tactile defensive (touch avoidant) is like trying to apply suncream to a fucked off octopus. An angry, fucked off octopus at that. He will accept the spray on suncream as it means I dont have to touch him to apply it. I sent dd to school with one bottle and I used some myself earlier.

Even if you spend it on booze, fags and scratchcards I still wouldnt give a damn. Caring for a child with disabilities is hard, exhausting, relentless work. So if fags, wine and scratchcards make you feel better in yourself then thats indirectly benefitting your ds as well.

pinktaxi · 01/06/2020 22:10

Brilliant way to spend the DLA. All benefit the child so don't worry about it.

Sewrainbow · 01/06/2020 22:13

Sounds perfectly reasonable spending that benefits your child

A82971151 · 01/06/2020 22:14

My DS gets the same rate and I never note down what it’s spent on. Some months most of it might go on DS but other months it may go on bills more.

Sometimes it goes on diesel because I find (pre lockdown) that we spend more on diesel getting out and about to keep ourselves sane!

Sometimes it goes on his school dinner bill.

Sometimes it goes on a food shop, a day out etc!

Often used for water bills. My son absolutely loves water and our water bill is higher because of it.

Don’t beat yourself up!

funinthesun19 · 01/06/2020 22:18

I’m currently saving my DS’s DLA up for a car. He gets very overwhelmed and can be quite silly on public transport and it restricts us hugely as a family. He’s better in cars, so this is the obvious answer to us having a normal life where we can get from A to B easily.

workercovid · 01/06/2020 22:23

Your fine. And to the person who said diagnosis is relevant. It isn't my son got high rate mobility and care without a diagnosis. It's based on need.

averythinline · 01/06/2020 23:19

Have you checked your universal credit entitlement! It often works better than tax credits with DLA ..,
Ignore what people say you spend it on what you need to spend it on...

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