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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be scared to death that my OH is seriously ill?

338 replies

maz2003 · 15/08/2019 18:50

My OH developed what looked like an eye infection the week before our twins birthday in March. He refused to do anything about it that week but halfway through their party decided to seek advice from the pharmacy (leaving me to deal with the party.)
That was 22 weeks ago.
His whole right face is swollen as is his nose. The swollen area is very red sometimes verging in purple. He has seen his GP ( not the same surgery as me) and she has been consistently hopeless. He has had no blood or labs done. He is a smoker ( smoked 30 a day for 45 years... he is 58). He told her he quit 6 years ago but he didn't.
He has been seen by ophthalmology who say it's not an eye issue. They refused to say what they thought it was. They suggested dermatology. It's taken 8 weeks to get a dermatology appointment.
I am very concerned that this is very serious, however he is old school and thinks the GP always knows best.
I recently betrayed his trust by showing pics of his symptoms to a friend's husband who is a well regarded ENT specialist and he tried to help by suggesting how he could be seen at ENT quickly but my oh is insisting the GP knows best.
AIBU to try and speak to his GP? Is this just unethical. We have 3 young kids and he is a stay at home dad (retired). The children wouldn't do well without him.
I am very scared.

OP posts:
maz2003 · 02/09/2019 13:27

@worriedaboutray as I have said numerous times before I feel rage towards both him and latterly the GP.

OP posts:
Span1elsRock · 02/09/2019 13:36

Honestly, you are directing your anger at the wrong people here.

Your DH is deliberately neglecting his health when he has dependants.

I'd start using some of that anger towards protecting your DC from the fall out of all of this, as hard as that may be. I wouldn't expose my DC to this, and would remove myself from the situation before you go mad too. This stress isn't good for any of you Flowers

TatianaLarina · 02/09/2019 13:48

I think if you think you can find the wherewithal to report the GP to the GMC, which, despite her shortcomings, I don’t think is actually appropriate here; surely you can find the wherewithal to tell your DH you wrote to the GP.

I understand you’re pissed off with both of them, but your DH should really be the focus.

It’s not for the GP to insulate you from the problems in your marriage or your DH’s personal shortcomings.

I do think she has been slack - she could have telephoned him as a follow up and called him in for more tests; but at the same time I understand her not wanting to get involved in a domestic. What if your DH found out and reported her?

InSpaceNooneCanHearYouScream · 02/09/2019 13:52

The OP is asking for help from the GP and the GP agreed to help- and hasn't done so. She is justifiably angry about that AND angry at her pig headed husband. GPS are not infallible.
Op have you tried a direct : 'worrying about you is making me ill- please go back to the doctor's'?

maz2003 · 02/09/2019 13:53

@TatianaLarina - the relationship wont withstand that, hence the letter.
Neither of us is in a position to leave the family home sadly, otherwise I might consider that. It wound also not be in the interest of the children either. So, for better or worse, we are stuck together.
I will be waiting until there is some kind of resolution before pursuing the GMC. Now is not the time.

OP posts:
maz2003 · 02/09/2019 13:55

@Span1elsRock - not sure what you are suggesting. Take my kids away from their father ( the primary caregiver) because he is ill? Subjecting them to what exactly?

OP posts:
SandyY2K · 02/09/2019 14:01

At this stage your OH has seen the dermatologist hasn't he? They have diagnosed him with rosacea?

His GP may feel a Specialist would have uncovered something more if there was anything else.

I know doctors can misdiagnose, but pursuing this further requires the patient to be on board...that's the real problem here...he's not onboard with digging deeper, probably due to his fears.

Focus on your DC and yourself. As a unmarried couple....look into financial protection.

You could need it and your DC are very young.

You need to be there for them, as he may not be, so constant worry will drive you round the bend and it will invariably affect the DC. They need one healthy parent...and he's not doing enough to be responsible.

I agree with the pp who suggested you take a break from it all if possible. Go away ...see family if you can.

maz2003 · 02/09/2019 14:21

@SandyY2K -agree. It would not be good if the children picked up on any anxiety. I have no option but to step out.

OP posts:
Tonnerre · 02/09/2019 15:44

She isn't failing him and your family hmm your husband is a grown man, not a child. He should make his own appointment.

Well, of course he should, but the GP having said she'd call him in it's not unreasonable to expect her to follow up on her promise. After all, if it is something serious it's in the NHS's interests as much as everyone else's to catch it as early as possible.

KingaRoo · 04/09/2019 15:01

OP I’m really sorry you’re going through this and don’t understand why you’ve been getting such a hard time on this thread. I hope you manage to get to the bottom of it soon.

Does your OH know how worried you are? Will he not go to the GP for your sake at least?

AlexaAmbidextra · 04/09/2019 20:03

Does your OH know how worried you are? Will he not go to the GP for your sake at least?

Have you actually read OP’s posts?

maz2003 · 05/09/2019 09:56

Progress with OH. We bumped into an American friend who noticed his face. She was treated for the condition I suspect he has six years ago and despite few difficulties is very well now. ( I actually didn't know she had suffered from the condition)
She immediately brought up the swelling and rash and showed him a picture of her face the day she was biopsied. She also linked the condition to statin drug usage which he has been on for 7 years.
The penny dropped almost immediately- he is spending today reading the clinical papers to prepare for seeing the GP for bloods and a private referral to a local specialist.
While this could be just the start, I feel we have progress.

OP posts:
LoveGrowsWhere · 05/09/2019 10:56

Everything crossed that it is.

FannyFifer · 05/09/2019 11:26

Good news, hope this is the turning point to getting the answers & correct treatment.

TatianaLarina · 05/09/2019 12:55

That’s fantastic news OP.

justasking111 · 05/09/2019 13:13

He has been on them for seven years though. OH had side effects almost immediately. Was awful we had an argument I said stop taking the bloody things and see what happens. They are not for everyone. He had no health issues was just a here you go take these.

SandyY2K · 05/09/2019 13:18

That's good news. It's probably not as bad as he thought and he feels relieved.

EleanorReally · 05/09/2019 13:27

Good to hear

KingaRoo · 05/09/2019 13:55

@AlexaAmbidextra there is no need to be so rude. I have read the whole thread and cannot see anywhere that the OP has been able to communicate to her OH about the effect that this is having on her own mental health. She has told him how worried she is about him and his health but it’s not clear if she has managed to communicate to him how this situation is affecting her personally and her own mental health.

kryztinababy · 05/09/2019 14:18

Hi @maz2003 he's a grown man so really what can you do if he won't help himself first? Maybe tell him you're scared that he will die and leave you with three young kids to care for?

AlexaAmbidextra · 05/09/2019 16:33

I am ill with this. My OH knows that.

there is no need to be so rude. I have read the whole thread and cannot see anywhere that the OP has been able to communicate to her OH about the effect that this is having on her own mental health.

KingaRoo. I think her statement above conveys that she has communicated to her husband.

justasking111 · 05/09/2019 19:19

It is frightening when your OH is ill like this for a long time. We are on this road at the moment.

The OP did not say if they were married or living together.

HMArsey · 06/09/2019 09:01

OP, what is the condition you suspect he has? I was assuming a cancer of some kind, but now I'm not sure since your update.

Great news that he has been jolted into engaging more with all of this.

maz2003 · 06/09/2019 20:10

@HMArsey I suspect Dermatomyositis which can be linked to malignancy or a risk of malignancy.

OP posts:
Weenurse · 07/09/2019 01:04

Thank goodness for that meeting.
Good luck going forward

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