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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU To think this is an urgent appointment?

153 replies

Glitter99x · 14/07/2019 13:52

Hi bit of a sensitive topic here. My DP’s grandmother has suspected dementia. All the classic signs- forgetting often, asking things multiple times etc. Over the past year it has gotten worse, even her brother who lives in Fife and doesn’t have that much contact with her, has noticed within a few months how much she had changed. She thinks DP and I live together, we don’t and we have said this before, she was adamant once her daughter (DP’s aunt) was mad at her when she had been there the day before. That his mum hadn’t taken them shopping when she had that day earlier. I may be not that accurate about the last two incidences but they aren’t far off if they are a little wrong.

Anyway, my DP’s grandfather who lives and is married to his grandmother is worried sick, they are elderly. It’s too much for him to cope with, he has us of course but he is struggling. He confided in the pharmacist when getting his medication. The pharmacist without even being asked booked an appointment for DP’s grandmother, which was really kind. DP’s grandmother is Very stubborn, and there is no way she would of gone if she wasn’t told it was for a checkup. We thought it was with a doctor she would be seeing. It was a nurse. DP’s mum went with them as she was worried DP’s grandmother would kick off 😂. This nurse was pathetic. She didn’t know what grandmother was there for, DP’s mum had to actually tell her she was there for a blood pressure test and blood tests. They had thought she would be seeing a doctor regarding what we think is her dementia. DP’s mother and grandfather went to the receptionist and told her it is urgent, she needs to be seen ASAP. They were told a three week wait. AIBU To think that they should be prioritising a dementia appointment at the doctors? That is should be an emergency? DP’s mum said it is an emergency to us, but not to them, as it doesn’t affect them. I’m sorry but surely a dementia appointment is more important than a person with an infected toe for example?! She is elderly!!!!

OP posts:
MacInTheBox · 14/07/2019 14:11

Was dropping in to say the same thing re: UTI. They can cause confusion, although you say that this has happened over a year so less likely.

I'd be looking at what can be done to rally around as a family and provide support. There are many great resources online for caring for people living with dementia and managing certain behaviours.

Obviously, long term this needs an assessment, care plan, maybe adjustments in the home, respite care, etc. But it's a process that needs to be followed and falls outside of urgent care.

Runmybathforme · 14/07/2019 14:11

Sorry, but YABU. You say this has been developing for some time, why has it suddenly become so urgent ? FYI, other patients are not necessarily there for what you consider to be trivial reasons. ( an infected toe is very serious for a diabetic ). What do you think the G.P will do ?He/she may ask a series of questions to test her memory, or refer her to a specialist unit for proper diagnosis, she may be prescribed medication, but in reality, it’s going to be down to you and your family if your suspicions are correct. Help with washing and dressing may be suggested following an assessment by social services, if your Gran would agree to this.
I’m so sorry this is happening, my Mum had Alzheimer’s, it was a bloody nightmare. Wishing you lots of luck.

Fireinthegrate · 14/07/2019 14:12

Agree with AnnieOH1
Get her urine tested. UTI’s can cause confusion and dementia like behaviour

Glitter99x · 14/07/2019 14:12

@Fireinthegrate thank you for your support, this is a very difficult subject for me to breach. I’m not sure others understand the impact dementia has on a family. It’s absolutely heartbreaking.

OP posts:
Sorryisntgoodenough · 14/07/2019 14:13

And if it has been going on a year there has been plenty of time to get an appointment rather than being an emergency now

^^ this. Also any infection is going to be urgent because of the risk of sepsis.

This nurse was pathetic. She didn’t know what grandmother was there for

Charming. Nurses aren’t psychic. How would she know what she was there for if it wasn’t on the booking notes?

lovelylilyx · 14/07/2019 14:13

It’s not an emergency OP. I understand it’s frustrating and worrying for you but they cannot give urgent appointments to people based on their partners’ health.
She’s highly highly highly unlikely to deteriorate further and 3 weeks really isn’t a huge amount of time based on how long most people live with dementia.
It’s not as simple as you’re making out with medication and it won’t cure it or even slow the progress of the dementia

Glitter99x · 14/07/2019 14:14

@Runmybathforme we just want the diagnosis really so we can get that closure of what it is, and support her from there on out. For us it is an emergency, I’ve always been taught it was, and for us it definitely is.

OP posts:
Glitter99x · 14/07/2019 14:14

@lovelylilyx I know it won’t cure it, but even if it slows it down a bit that would be nice. It’s very despairing

OP posts:
SpuriouserAndSpuriouser · 14/07/2019 14:15

Glitter99x the dementia would need managing by a doctor, however practice nurses tend to be really good at organising care for elderly patients and liaising with social services, so if the home situation is becoming difficult then she may have been able to get the ball rolling in terms of help at home.

I do understand it’s difficult and you want your DP’s grandmother to be helped right now, but you have to work with the professionals so they can do their jobs properly.

Glitter99x · 14/07/2019 14:15

I will let them know RE UTI. But unfortunately my gut is saying it isn’t that. Hopefully it is wrong but I don’t think it is.

OP posts:
itsabongthing · 14/07/2019 14:17

He could have a carers assessment but if she is not needing substantial help eg with personal care then I’m not sure he would be considered a carer yet, and similarly it sounds from the info available that suggesting residential care is completely inappropriate at this stage unless she can’t be left alone, is “wandering” at night, or being physically aggressive or something.

hormonesorDHbeingadick · 14/07/2019 14:18

I have only read the first page but agree that an issue that has been going on for over a year is not an emergency.

If your concern is over his Grandfather is coping then you also need to ring adult social services and ask for a carers assessment.

lovelylilyx · 14/07/2019 14:18

@Glitter99x It won’t slow it down at all I’m afraid. I’m sorry your family is dealing with this- it’s a horrible thing to happen Flowers

itsabongthing · 14/07/2019 14:20

Also - assuming we’re talkinng about England - remember social services won’t usually fund help with cleaning or housework, and if the person had above £23500 in savings anyway they would need to self Fund any help so not anything to be gained from a social care assessment to be honest, may as well just crack on and arrange help themselves.
Day centre can be good if the person enjoys that, and can give the spouse a bit of a break.

Floralnomad · 14/07/2019 14:20

I wouldn’t class it as urgent , diagnosis will probably require quite a few investigations and I doubt a GP will start prescribing anything without knowing a diagnosis . It’s difficult because obviously you are concerned about the effect on the grandfather but even with medication things will probably get harder from here . Sorry to be so pessimistic but been there , done it and got the t shirt .

NoBaggyPants · 14/07/2019 14:20

I understand your distress, but to suggest that others commenting do not understand is completely unfair. Most families will experience dementia at some point. We know it is heartbreaking for all involved, but also that a wait of a few weeks is not going to change a thing.

When your relative does have her appt, don't be disappointed if she doesn't walk out with a diagnosis. Pathways will vary between areas, but in most she'll be referred on to a memory clinic or other specialist service before any diagnosis is confirmed.

MacInTheBox · 14/07/2019 14:20

Regarding the things she gets confused about. It really is best to enter her reality. If she says you and DP live together, then you do and change the subject.

I used to be a dementia carer and it was always so heartbreaking to see family members trying to insist on how things actually were. It's really quite distressing for the person living with dementia. It's easier all round to go with the flow.

Babyblues052 · 14/07/2019 14:22

It's not really an emergency u less she doing things that would put herself in harms way or risk hers or other life. A 3 week wait seems like 3 years when you're as worried as you all are but best book the first available appointment ASAP. I'm sure other have give advice on what to do I. The mean time and others you can contact Flowers

chuttypicks · 14/07/2019 14:24

I had a similar issue with my elderly aunt who lived on her own and was showing clear signs of dementia. I spoke to her GO and she was referred for an assessment but the appointment was not for another 2 months. She dies in the meantime. It's not ideal that it's a 3 week wait to see her GP (who no doubt will have to refer her in anyway), but how would you prioritise patient care if you could then....? Is dementia more important than cancer? Alcoholism? Drug addiction? Heart disease? Diabetes? Is DP's GM more important than young children with health problems etc? What about more important than pregnant women?

I don't think it's as easy as simply saying she should be prioritised because she has dementia. Besides which, she has family to support her, she's not alone. There are a lot of people a lot worse off. You're always welcome to pay and have her seen privately sooner if you'd like @Glitter99x .....

Corrag · 14/07/2019 14:24

As previous posters have said, getting a diagnosis is a long procedure. I've gone through it with a relative and from the first appointment with her GP to starting medication was the better part of a year. It took several weeks just to get an appointment at the memory clinic. You'll need to be patient about this otherwise you'll end up frustrated and angry, which won't help the situation.

Medievalist · 14/07/2019 14:25

I’m not sure others understand the impact dementia has on a family. It’s absolutely heartbreaking.

Absolutely I do. But am also struggling to see why this is an emergency and why you feel 'someone ought to do something' but it's not up to you. All you need to do is get her to the gp with a fictitious excuse (routine checkup etc) and contact the dr in advance to tell them your concerns. They won't discuss another patient with you but they will listen and take notes. We did it with MIL and the dr was very grateful for the heads up.

It can take months to get a dementia diagnosis. Even when my dm was claiming that my ds was one of the drs at the hospital she was in (he was 15 and at school), my MIL was in the bed opposite (she was 300 miles away) and her own dm was coming in to visit her (she's been dead 50 years) we weren't able to get a dementia diagnosis. 3 weeks is nothing.

Teachermaths · 14/07/2019 14:28

This isn't an emergency. She's been getting worse for a year, a few days won't make much difference. The drugs don't really help that much either. They can only do so much. Dementia is awful and harrowing for family and friends to watch. However you need to be pragmatic, first steps are get a diagnosis. This can take a while. Then start thinking about care options and how much each family member can reasonably do.

DuckbilledSplatterPuff · 14/07/2019 14:28

You could take the appointment and ask to be put on the cancellation waiting list and also in the meantime have a chat with the local Age Concern charity who might be able to advise you what services are in your area, so that you are more informed about what you might need when you do see the GP.
Also ring social services if your grandad is struggling to cope. They might be able to help speed up the process of getting help and what benefits are available to your granddad as a carer.

TanMateix · 14/07/2019 14:29

Unfortunately, it is not an emergency. She has people who care for her and dementia is, also unfortunately, a very common part of the ageing process, which can have a gradual or rapid decline that nobody has much control about it. With thousands of cases around the country, as long as she have a supportive family around and is not doing anything extremely dangerous, I think she will be deemed fit to wait for an originate appointment.

This obviously brings a dreadful feeling of helplessness but there is not much you can do about it, apart of fighting her corner, from time to time.Flowers

TanMateix · 14/07/2019 14:30

Ordinary not originate appointment