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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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Donor consent law is being changed...

895 replies

flirtygirl · 16/03/2019 10:39

Aibu to have expected more information before they changes the law, did they do a consultation? I feel miffed that it is now going to be deemed consent and you have to opt out.

But what if the system is down or the opt out which is digital and online, did not get stored properly? What about when you move and change address? Do you have to tell every medical practitioner manually as well?

There is no info it seems on what this will mean. If you have info or any helpful links please let me know, thanks

OP posts:
Oliversmumsarmy · 18/03/2019 14:47

My issue would be if there was a mistake.

In the case of Dp who is terminally ill, apart from having his spleen removed completely and virtually every other organ not exactly being in great shape he might come into a hospital from having a traffic accident.

We have an issue in that in our area there is another person with his exact name who was also shares his exact birth date.

Every time he goes to the drs if this other person has been to the doctors Dp has to re register, if he goes to the hospital his file had been deleted because when this other person has been to the hospital he obviously hasn’t had dps illnesses so they think it is a mistake and dps file is binned and vice versa.

The NHS has merged them as one person and no matter who you speak to they cannot seem to separate them.

We have had the police at our door because of one incident which involved the other person giving his name at reception of A&E and then being verbally abusive to the nurses.
When police saw Dp he had to prove his name and date of birth as he didn’t match up with the other man.

This has been going on for over 2.5 years and we have had to live with the fall out.

So forgive me if I think this although well intentioned is a recipe for disaster.

user1457017537 · 18/03/2019 16:15

I know what you mean. I have had my email address since email began but I cannot log on to certain sites as they say it is not me! Or I am already registered. It must be a nightmare for you and your DH to keep having to reregister. Files and info are always being lost as well, as are scan results.

morningstress · 18/03/2019 16:17

Why wouldn't you want to donate?Hmm
You'll be dead, won't need them and someone else's live could be saved/improved! I think it should be a law we all have to donate our organs and give blood regularly (obviously those that opt out for medical reasons don't have too!) but everyone else should imo.

formerbabe · 18/03/2019 16:22

I think it should be a law we all have to donate our organs and give blood regularly

@morningstress

What a horrendous idea.

How do you propose the criminal justice system deal with the people who don't donate blood? Imprison them? Get the police to march them down to a clinic in handcuffs and forcibly hold them down to draw blood? What about grieving traumatised parents who've lost a child and don't want their child's organs to be used? Can you imagine the potential scene in hospital?

Sick, just fucking sick.

teyem · 18/03/2019 16:26

I think it should be a law we all have to donate our organs and give blood regularly

Jesus. The human body as a natural resource. That's never ended badly.

morningstress · 18/03/2019 16:27

@formerbabe I agree the blood giving is a bit too far tbh as people will be busy and may not have time etc. But I do think we have a moral responsibility to donate our organs if they can be used to help other people!

Obviously I sympathise with people who have lost family members and god forbid young children, but surely donating would turn something tragic around a little and you would be able to help someone else?

Regarding the young babies, it's really rare that the organs are good enough to use unfortunately so I doubt that would come into equation much.

I am glad that it's now automatically set as you are opted in, maybe people will think and research before making the effort to selfishly opt out.

People being marched to jail does sound a bit ridiculous, you're right.

morningstress · 18/03/2019 16:28

@teyem Hmm I am all for it being used as a natural resource if it saves lives. I am however, against 'renting women' for sex or surrogacy.

formerbabe · 18/03/2019 16:29

Obviously I sympathise with people who have lost family members and god forbid young children, but surely donating would turn something tragic around a little and you would be able to help someone else

Thank god, I have never been in that situation of losing a child...I have no idea how I'd react and I'd make no judgment on a parents decision either way.

morningstress · 18/03/2019 16:30

@formerbabe I hope I'm never in that situation too, but I know I would donate as much as I could if it could change another child's life. Turn a negative into a positive.

teyem · 18/03/2019 16:30

What about for fuel then? There's a lot of energy in the human body - there must be a way we can harness it and get it on the grid. It's only spare, anyway...

Bluestitch · 18/03/2019 16:31

All these posters positioning themselves as the 'good guys' whilst saying that the NHS principle of medical need should be replaced by quid pro quo, mocking people's worries and now advocating enforced donations. Just grim.

morningstress · 18/03/2019 16:34

@teyem I had no idea it could be used for fuel, that's interesting.

I'm talking about purposes involving helping another humans life eg blood donation and organ donation in turn, save another humans life.

morningstress · 18/03/2019 16:36

@Bluestitch I've never mocked somebody's worries. Forced donations I agree was a bit extreme but I think it should be widely encouraged over just not doing it. You don't need your organs when you're dead!

Hell, I'd give a kidney to someone right now if I could help them and still be okay myself.

teyem · 18/03/2019 16:37

Saving another human life is admirable. Donating is admirable. Dehumanising a dead body to spare parts to achieve a seemingly noble goal might seem reasonable but you can't put that genie back in the box.

morningstress · 18/03/2019 16:43

@teyem I guess I'm not to bothered by it, I don't consider a dead body a human. Donating to medical science for students is a great idea too to help benefit future doctors/surgeons etc.

As grim as it is, it helps!

pootyisabadcat · 18/03/2019 16:44

I think it should be a law we all have to donate our organs and give blood regularly

WTAF?! Are you fucking for real? Hey, why stop there, you know, force everyone to donate all bodily tissues, sperm, eggs, bone marrow, working uterus to surrogate, if they have a healthy kidney, one of those, too. That is some fucked up Republic of Gilead line of thinking Hmm.

Bluestitch · 18/03/2019 16:45

It was a general comment on the tone of some of the posts on this thread morningstress. Apparently coming from the moral high ground but repeatedly stating 'what do you care, you're DEAD', to people who may not feel that way, or have religious beliefs, or other worries and concerns or have seen family members on ventilators and looking normal and still warm and not seeing them as a dead body to be harvested.

pootyisabadcat · 18/03/2019 16:48

Obviously I sympathise with people who have lost family members and god forbid young children, but surely donating would turn something tragic around a little and you would be able to help someone else

I've read a lot of warped, whacked out things in my time here, but this one takes the fucking prize. The very idea that a child or young person's death is anything but an utter fucking tragedy and that such pain is ameliorated by anything is the most profoundly ignorant, disgusting thing I've read. You don't have sympathy with such people. You have anything but. You don't even see their child as a human being, just parts. Shame on you! Vile!

Bluestitch · 18/03/2019 16:50

I guess I'm not to bothered by it, I don't consider a dead body a human.

Then why have any legislation or codes of practice around how people's bodies, and the bodies of their loved ones, are treated at all then? I guess what happened at Alder Hey was just fine then, and come to think of it why is necrophilia even a crime?

morningstress · 18/03/2019 16:54

@Bluestitch Okay, hold on. Don't bring necrophilia into it- that shits fucked up. Let me rephrase, using the body in a medically beneficial way I agree with. Obviously I don't encourage people digging up bodies and licking them for gods sake.

But yes, a dead body is a shell, it's no longer human.

morningstress · 18/03/2019 16:55

@pootyisabadcat I said turn something tragic around A LITTLE. I didn't say it would fix everything and cure grief and the trauma involved. Jesus Christ.

teyem · 18/03/2019 16:56

But yes, a dead body is a shell, it's no longer human.

If it's no longer human then there is no more crime to raping a dead body than a blow up doll.

Bluestitch · 18/03/2019 16:58

Tell the bereaved family members who spend time with their loved ones after they have died, who tenderly wash them, and do their hair, and pick out their favourite outfit and cuddle up to them that their loved one is now a non human shell.

N0rdicStar · 18/03/2019 17:00

No loosing somebody you love and donating doesn’t make it less tragic it makes it 10 times worse.

I lost my dad in a tragic accident during which we battled to save him. In 10 hours we lost him. The consultant in ICU apologetically asking us about donation just after we were told there was no hope a few moments after our lives changed forever.At a time that was already horrendous we had to think about it which was just awful and made things 10 times worse. My mum was in such a daze she said yes. We then had to wait alone whilst they sent somebody to the hospital to deal with us. Allegedly for support but they really weren’t. They basically sat on a phone elsewhere ringing round to see if he was suitable popping into ask questions. We were left alone in a side room for ages.During this time we realised my lovely dad was going to be kept alive whilst brain dead and alone in surgery whilst they cut him open and harvested him. As time went on and nobody came in to update we started to regret our decision as didn’t want him going through this alone. I was starting to find the idea incredibly traumatic.Going backwards and forwards at a time he should have been aloud to die and we should have been able to have the nightmare end and be able to grieve we finally thought we’d go through with it. I left the ultimate decision to mum but was really struggling with it whilst trying to keep it to myself. Eventually somebody came and said he wasn’t suitable for anything which felt like a big insult and made things even worse. Then everything was switched off and he was finally aloud to die. The whole thing made everything worse for me, 10 times worse and took away some of my dad’s dignity.

Just awful. I will never put my dc through it and would urge anybody to think very carefully. It’s not like some Hallmark film but your loved one at the worse time of your life when you are in deep shock. I don’t think any family should be put through it unnceccesarily. I also don’t think anybody should be lecturing how others should deal with things at such a hideous time. Such an awful arrogant thing to do.

Bluestitch · 18/03/2019 17:00

And I don't see why necrophilia is irrelevant. You are dehumanising people's bodies so you ought to think about where that leads.

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