Donor consent law is being changed...

[flirtygirl]

Aibu to have expected more information before they changes the law, did they do a consultation? I feel miffed that it is now going to be deemed consent and you have to opt out.

But what if the system is down or the opt out which is digital and online, did not get stored properly? What about when you move and change address? Do you have to tell every medical practitioner manually as well?

There is no info it seems on what this will mean. If you have info or any helpful links please let me know, thanks

@Puzzledandpissedoff

I'm probably being a bit obtuse (I'm tired!) but I'm not clear on what you're saying.

Do you mean that because a donation can legally go ahead without NOK consent if the donor is on the ODR that an opt-out doesn't add anything to this?

Some forms of Judaism forbid cremation or any form of treatment, such as embalming, of the corpse beyond ceremonial washing. The deceased is buried soon after death.

As the mother of a child who died (she was not able to donate anything due to disease), I agree, Break. I am so sorry for your loss .

I do think if you're not on the register you shouldn't be eligible for an organ yourself, not donating is the very height of selfishness. If you're dead you don't need it, and if you think it's wrong due to your religion then you shouldn't be keen to receive one anyway.

I also think it's bonkers that families can veto the deceased's decision - luckily DH and my DParents are well aware of my views and share them, but it's terrible that people are actually dying from the selfishness of others.

I'm against presumed consent. I've been on the donor list since I applied for my provisional license aged 17 so am not against donating, I just don't think the state should be able to assume that someone who hasn't opted out is okay with donation. I accept that my own history and feelings towards consent in general is a big factor in that but I'm fighting the urge to opt out because it makes me feel so uncomfortable.

However I find the idea of receiving organs (and blood) repulsive so none of you need to worry that if I do decide to opt out, that I'd take an organ.

I really wish I had not seen this thread..

Keira and Max’s family have fought so hard for this law.. what they have managed to acheieve has only done good.

Max now lives a wonderful healthy life, and beautiful Keira will always be remembered for the sweet amazing girl she was, giving a final gift of her organs, and not only just to Max

If you don’t want to donate, opt out. Very very simple. There will be no hard feelings or questions from anyone. If you want to donate your organs this will happen now if you are unfortunately no longer able to use them. There will be no missed cards, no pressure on family to confirm that it what you want even if it breaks their hearts

I am bowing out. But I am forever grateful to Keira and her family x

As someone who is going to need a new kidney in a few years time, selfishly, I welcome the change to the consent law. Hopefully this will mean more organs will be available for those of us who would do anything for a few more years to watch their children grow up, and maybe, if we are lucky, see them have children of their own.

To those of you not opting out, thank you so much

but it's terrible that people are actually dying from the selfishness of others.

They are not, they are dying for disease. You are equating people who do not donate to involuntary manslaughter. That is astounding.

Max now lives a wonderful healthy life, and beautiful Keira will always be remembered for the sweet amazing girl she was, giving a final gift of her organs, and not only just to Max

Dead children are remembered for the beautiful people they were, donors or not .

Would it be more acceptable if we had a law that people MUST declare (say at time of voter registration) what their preference was about donor organs? If we can make it a law to register to vote, why not make it a law that you have to tick a few other boxes on same bit of paper? Doesn't seem like it would add a big administrative burden.

Thanks Starbucks, I've updated my details so they can have the lot except my tissue.

If we can make it a law to register to vote,

But 'we' have done no such thing. It is a choice to register to vote, and should be.

See what a delicious slippery slope it is?

EXACTLY, NopeNi, even more so when you consider the emotive language and morality around even this discussion. This idea that somehow death is better if you have been able to donate. I can soon see how this can become if your loved one was unable to donate or for whatever reason, did not. It's quite sobering, tbh, but unsurprising given the level of victim blaming that already goes on for diseases, conditions or illnesses which can, or not, be caused or influenced by lifestyle. Deserving v. undeserving has already caused untold misery in this country for the disabled as it is.

It should have been introduced a long time ago. I think there will be a huge increase in organ donors this way.

The way I imagine it, people are too lazy to register themselves as an organ donor. Maybe they've thought about it, but never get around to doing it.

So by already being an organ donor, if you are dead set against it (I have no idea why anyone would be, what do you, as a dead person, needs your organs for?) You can opt out in your own time, if you're too damn lazy or forgetful then maybe you might end up saving someone's life anyway.

Do you mean that because a donation can legally go ahead without NOK consent if the donor is on the ODR that an opt-out doesn't add anything to this?

Not quite; for me the NOK consent's a separate issue, and if they can try to object when the deceased signed up to the register themselves, it's perhaps even more likely if they feel in their distress that their loved one was "forced into it"

Overall, my real objection is to government signing folk up for something they've not actively agreed to ... pointless in any case, since in the circumstances where donation's a possibility, the team will almost certainly bring it up with the NOK anyway

This is not new or recent.
I live in England and opted out early last year or late 2017.
Completed form on the NHS website and they sent confirmation by post.

That's confusing, I thought electoral register was compulsory! School Day.

@adiposegirl2 if you dont mind me asking. Why did you opt out?

Not to spark a debate, or judge. But I would be interested to hear from.the opposite point of view.

I agree with the PP who said that they would prefer to donate, but above all, prioritise their remaining family's feelings in the specific time over a wish to donate.

I won't be there, so I can't know whether there is any doubt over the particular circumstances in which I die - will it distress my children more to see me wheeled off to theatre still breathing? Are the particular medical staff giving my family the impression that they care more about donation rates than my potential for recovery? I expect neither of those will be the case and would be happy to donate, but I want my family to have the final say. I don't know if I can make that happen rather than just rely on usual practice.

I believe anyone who opts out shouldn't be allowed an organ.

If you're not willing to contribute then you shouldn't get to benefit.

And how do you measure contribution? People who want to donate their bodies to medical science will need to opt out. Would you say these people can't have an organ? After all, in order to receive an organ, someone has to be trained to perform the operation in the first place. Plus, the increased know from research has it's place as well.

I need to read more on how this law will work, but I don't agree in principle to an opt-out system. Because it massively shifts the position on consent.

I am on the donor register, my family and I have had the conversations, so they know my wishes.

And if it's true that an opt-out system doesn't generate more donations than an opt-in system, why change? Perhaps what was needed was to ensure that anyone on the donor register under an opt-in system couldn't have their wishes overrided by NOK.

I don't think it's as black and white as some people suggest.

Would it be more acceptable if we had a law that people MUST declare (say at time of voter registration) what their preference was about donor organs?

I think you're in danger of bringing common sense into it (), but yes, I think that could have been an excellent idea ... because it leaves the primary choice with the individual

But 'we' have done no such thing. It is a choice to register to vote, and should be.

But you can be fined for refusing to register to vote.

I'm still alive because a selfless man was on the donor register. He saved my life and allowed me to watch my children make new memories.

Last summer I attended British Transplant Games and over 1500 people walked together because heroes allowed them to!

If you don't want to donate then don't!

There are some really stupid twisted people on this thread saying that those who opt out shouldn't get an organ if they needed one.

I wouldn't opt out, I don't really care what they do once I'm gone, but I know someone who probably would opt out, if they were even aware of this law, and it's largely down to mental health.

How else do people measure people undeserving to be saved? If you've never donated blood, should you not be entitled to a blood transfusion?

What about people who've damaged their organs through addiction, or doing extreme sports, are they undeserving too?

What about criminals, do they deserve an organ? Or any medical treatment at all come to that?