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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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Donor consent law is being changed...

895 replies

flirtygirl · 16/03/2019 10:39

Aibu to have expected more information before they changes the law, did they do a consultation? I feel miffed that it is now going to be deemed consent and you have to opt out.

But what if the system is down or the opt out which is digital and online, did not get stored properly? What about when you move and change address? Do you have to tell every medical practitioner manually as well?

There is no info it seems on what this will mean. If you have info or any helpful links please let me know, thanks

OP posts:
formerbabe · 16/03/2019 12:22

I believe anyone who opts out shouldn't be allowed an organ. If you're not willing to contribute then you shouldn't get to benefit

You can't apply morals to clinical decisions.

Do you think someone who gets in a car whilst drunk and crashes it should be left to die at the scene?

Tixywixy · 16/03/2019 12:23

Blimey, no one's saying that the state owns bodies (are people who say this American because this sounds like the vehemence you get in the US about any state services?).

Everyone has the power to opt out and NOK have the power to veto it in any case. Although I'd like the right to veto my NOK's veto because, you know, what about MY bodily autonomy.

I've seen lots of information about these changes for years.

NopeNi · 16/03/2019 12:25

To me, there is something hugely creepy to me about the thought of my organs being removed, even though I'll be gone and oblivious. I hate the thought. I also hope to god I never need a donation, it makes me feel strange.

I don't know if I'd ever actually "opt out" but I truly, irrationally hate the thought, and there must be people out there with some religious beliefs who would object more viscerally.

It also feels not-okay to me that the government can say "your body is ours".

And yes, it's crazy and irrational, I know that, but we're not always rational creatures.

Totaldogsbody · 16/03/2019 12:26

It's been ok for people to opt in for years which many people have done, so now its going to work in reverse, people will need to opt out. Whats the problem here? If you don't want to donate simply opt out. A lot of people are very superstitious and although would donate their organs are to afraid to do so that choice has been taken out if their hands now. For anyone to say I would not accept an organ, well be in the position that you'll die if you don't receive one and I bet your perception changes.

ballsdeep · 16/03/2019 12:27

I struggle to understand why anyone wouldn't want to donate?
You're dead, your organs will either get burned or buried and there they will rot. There are mothers, babies, fathers, children who are desperate for organs.
I think it's selfish if you don't.

crazycatgal · 16/03/2019 12:29

The arguments that people opting out shouldn't receive an organ are stupid.

I don't give bloody because I'm terrified of needles and blood. Does that mean that I should never receive blood if I need it?

formerbabe · 16/03/2019 12:29

user1480000680

How uncalled for.

I'm a cunt because I don't think the government should effectively own us. Righto

I hear North Korea is lovely this time of year if you like that sort of state control.

TaraBoomdieh · 16/03/2019 12:30

Lockheart

@Cherrysoup I've opted out as I will be donating my body to medical research; I've already signed up to donate my brain to the Parkinson's brain bank.”

Anyone interested in doing the same should be aware that this has to be organised directly with the medical school you are intending to gift too prior to your death, you have to sign all of the necessary paperwork yourself, a relative can’t do so after your death. The Human Tissue Authority has an helpful guide on its website.

formerbabe · 16/03/2019 12:31

I think it's selfish if you don't

People are allowed to be selfish. Opting out isn't actively hurting anyone...it's just not helping them. That's allowed.

MumUnderTheMoon · 16/03/2019 12:33

Some countries already operate this policy and it is very successful the fact is that no one really wants to talk about when they die to family members so if something does happen families are grieving and in shock and say no because it's easier than saying yes. Let's face it the human race is apathetic and basically lazy and the average person will "get around to" registering as an organ donor one day but don't. People are far more likely to object to something they really don't want than volunteer for something.

Lockheart · 16/03/2019 12:33

Yes @TaraBoomdieh I know. I already linked cherrysoup to the HTA in a previous post....

TheNavigator · 16/03/2019 12:34

Well, people can have all the tantys they like about the change in the law & their view of it. The fact is the law is changing, for the better, and lives will be saved. If you don't like it, opt out, but spare us your 'outrage' - nobody cares Grin

TaraBoomdieh · 16/03/2019 12:35

Indeed, thats why I said anyone else. Sorry if that was unclear. Trying to help 😁

NopeNi · 16/03/2019 12:35

"If you don't want to donate simply opt out"

When and how though? Do I have to look a doctor in the eye and feel them pressuring me, while I try to admit "yes I'm a fucking asshole who doesn't want this"?

Most people won't dare and they know it. It's coercive control.

And I don't know why I don't want to. Is that selfish? Yes, but then everything we do in life is, including continuing to live and take up air and space, and continuing life when it naturally should be at an end.

formerbabe · 16/03/2019 12:36

nobody cares

You absolutely should care about decisions the government make that affect us all.

coffeeismyspinach · 16/03/2019 12:36

Listen to the language surrounding this: it's scolding, hectoring, downright abusive ('cunt'), even equating people who elect not to donate akin to involuntary manslaughter ('allowing people to die!'). This is why, even though I am an organ donor, consent to donate should not be presumed, IMO, obviously the law does not concur.

TaraBoomdieh · 16/03/2019 12:37

Lockheart

Yes @TaraBoomdieh I know. I already linked cherrysoup to the HTA in a previous post”

Indeed, that’s why I said anyone else, sorry if that was unclear. Trying to help 😁

TacoLover · 16/03/2019 12:38

I don't give bloody because I'm terrified of needles and blood. Does that mean that I should never receive blood if I need it?

That's not the same as organ donation is it? That happens after you're dead. There is no way that organ donation can harm you. Which is why people find it selfish to not choose to help someone when they can do it so easily, with no repercussions. It's not the same as going through a highly stressful experience as it would be for you to donate blood.

C8H10N4O2 · 16/03/2019 12:38

You’re dead... I don’t understand human obsession with what happens to your body when you are dead

There are many human foibles I find odd but that doesn't give me the right to override them. Its no secret that in some belief systems require bodily integrity for funeral rites and do not support organ transplantation (in or out).

We do not yet (thankfully) live in an ideocracy enforcing yours or their views.

Additionally the person may be dead but their relatives are not and presumed consent rather than required consent also affects the living.

There have been successful campaigns run to increase numbers of donors and training programmes around "required request". Of course its much cheaper to presume consent, especially if the public are largely unaware of the situation and the opt out process.

This policy is not widely understood, probably because for two years now we have been buried under Brexit to the exclusion of most else. However the first time something goes wrong with presumed consent it will rebound badly and potentially damage the programme because of the lack of public discussion.

Bobbycat121 · 16/03/2019 12:40

I will be opting out.

Lockheart · 16/03/2019 12:41

Ah, sorry Tara! My mistake.

Nanny0gg · 16/03/2019 12:43

I do still have a problem that your NoK can override your decision.

Mine know my wishes and I hope they honour them but they shouldn't have a choice.

TheNavigator · 16/03/2019 12:44

You absolutely should care about decisions the government make that affect us all.

Yup, I care about that & very much support this decision. I don't care about the precious hissy fits of people who want to opt out - I don't give two hoots about them Grin

Nanny0gg · 16/03/2019 12:44

Additionally the person may be dead but their relatives are not and presumed consent rather than required consent also affects the living.

And I hope they can live with themselves when their decision of cremating or burying a lifeless body is more important than allowing someone else's loved one to live.

myhamsteratefreddiestarr · 16/03/2019 12:45

The law is Max and Keira's Law and has been widely publicised for months. It was going to be Max's Law, but he asked for it to be named after his donor Keira as well, which was lovely of him.

I know of Keira's family. I have seen Max and his family speak at a local Show. Keira's family were devastated by their loss and the father made the difficult decision to donate, and Max was the lucky and grateful recipient.

Keira saved 4 lives. I cannot even begin to imagine having to make that kind of decision if it were my child in that position, but when you look at Max and think that Keira saved him, it brings tears to your eyes and you can see why he has campaigned for this Law.