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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if your child or children have ASD

230 replies

Mumzoo · 16/02/2019 11:32

Just something I notice on every thread on mumsnet, people mention their "child with ASD". It seems so utterly common on here that it makes me wonder if there are any families out there who still have no children with ASD at all. I have one with (not yet diagnosed but quite evident) ASD and one neurotypical. Growing up I didn't know any children with ASD until a boy joined our secondary school and we were all made aware of this by our teachers in a bid to accept him despite his "odd behaviour". That was one child in a school of 1200 pupils. Now there are one or two in every class. It's quite shocking.

OP posts:
BarbarianMum · 18/02/2019 11:19

My BiL was diagnosed at 42. Until then he just had his "funny little ways". Whereas his family, colleagues and friends have always been very supportive of him, his time in education would have been so much better for him if there had been a recognition of his condition and what it meant.

Kleinzeit · 18/02/2019 14:38

It was an eye-opener to me when the language therapist systematically tested my - apparently highly verbal and communicative - DS's abilities and found the deficits. They were mostly the usual ASC ones - nonverbal language, pragmatics and emotional expression - plus a few idiosyncratic ones, like becoming non-verbal whenever he wanted something. But I wasn't aware of any of them until she pointed them out -- and I'm his mother.

So I can't imagine how the average social worker would be able to tell for sure that someone didn't have an ASC.

One of the dangers of using our own experience is that ASCs vary so enormously. Autism can be a thing of opposites. One child can be academic, anxious, articulate, intense, angry, another can be distracted, pleasant, sweet natured and forgetful. I've met or heard about quite a few high functioning children with ASCs (DS's friends, other kids in his therapy goups, my friends' kids, ASC charity work...) and they're still full of surprises.

One of my siblings thinks she has autism, but her childhood (and to an extent her adult) behaviour stemmed from trauma.

And people can have both. Having an ASC doesn't let people out of experiencing trauma. My mother had always thought that my father's unusual behaviour came from (very real and horrifying) childhood trauma until my DS was diagnosed and my mother learned about ASCs... which made her re-think. ASCs can run in families. Your DD has one. Don't dismiss your DSis.

There seems to be an overlap between ASD and attachment disorder traits.

Yes there is, and we're not really qualified to tell them apart, are we?

imip · 18/02/2019 15:50

Idris Elba was sent to special school in the 70s to manage his asthma also. He made a short film about it. I think it was for sky?

It’s possible that a lot of the lost generation of ASC adults may also be in prison or living on the margins of society. I certainly think you’d see ASC in lots of homeless people. My dd would certainly tend toward homelessness as an adult, I can really see it. I always think lots of homeless people are people who didn’t have anyone around them like us all posting here to help. They may not accept help because no one relates to them in the way they need.

LuvSmallDogs · 18/02/2019 16:32

My DS2 almost certainly has it, he is four and we have done part one of the two step diagnosis for autism. He is also being assessed for SN school (one of the panel confided in DH she thought SN school will be best). He is delayed in speaking and understanding speech, has meltdowns, stims, runs away etc. Autism crops up in DH’s maternal family a lot, there are cousins and second cousins who have it severely enough to be in SN school or require help for MS school.

I think in the past kids on the spectrum were either “weird” and left to sink or swim in mainstream schools or put in residential schools and institutions. Out of sight, out of mind.

Bekabeech · 22/02/2019 21:54

Oh I've just remembered back in the 70s and 80s there were quite a few children in no school at all but whose education consisted of "tutors" coming in for a few hours a week. I knew a few older women at church who worked as Tutors as it fitted in with their children.

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