"it shows that GPs are on the whole failing to manage it in primary care;"
Because usually it's not even dx in primary care let alone properly treated! Mainly because it CAN'T be, many endo sufferers NEED surgery, particularly if it's in certain areas which are messing up body systems including reproduction.
As I think a pp said, and I've certainly had gynaes say it to me - by the time they see sufferers often damage has been done by the condition that can't be truly undone!
"So in fact dentists are like GPs...oh except you pay again for them above your taxes." There's another BIG exception ime - dentists LISTEN to patients, they don't arrogantly dismiss them as clueless with regard to their own bodies! My dentist was the one that motivated me to insist on a referral to an ent specialist for the recurrent very painful sinusitis I was experiencing, after again YEARS of dismissiveness from GP's. Turns out I had some scarring believed to have been caused when I'd had an ng tube years before for another issue. A minor procedure to remove the scarring and no more sinusitis!
Ingrown toenails - my "aunt" (uncles long term gf) is a podiatrist. She despairs at how long GP's are leaving patients in pain with these. In her opinion (and she's in her 50's hardly a newbie!) salt baths etc are a bloody waste of time! She even thinks it's pointless repeatedly treating the infected ones as while the CAUSE (repeated invasion by the nail) goes untreated they'll just recur. And that was my personal experience too. Both my big toes were buggered, due to injuries. Overall took 5 YEARS until as a result of moving to a different area where I was able to self refer to podiatry and they took them off and treated them so they don't grow back. The previous area I was under had me doing the salt baths, taking repeated antibiotics (where is the wisdom in THIS when we're meant to be REDUCING antibiotic use?!), having the nail "pruned" by a practice nurse, EVENTUALLY had them removed but they wouldn't agree to the treatment to stop them growing back. They grew back and the whole palava started all over again! While I was trying to get them to agree to just take the damn things off I moved (for other reasons) and as I say at this GP surgery patients self refer for such issues. Podiatrist took one look and said "well let's get rid eh they're doing you no good whatsoever" booked in for the following week, whipped them off, treated so they don't grow back - pain & infection free ever since!
And at the end of that long patronising post we get the REAL reason:
Specialist appointments are hugely expensive
And even IF that's a consideration (which it bloody well shouldn't be! The primary consideration should be what's best for patients and frankly if as an hcp you don't agree with that you shouldn't be doing the job!) SURELY as I said before its ACTUALLY CHEAPER to NOT fob off patients with ineffective treatments, leaving them in pain and suffering and REPEATEDLY treating the SYMPTOMS rather than actually doing your job and establishing the cause and treating that!
Theredjellybean - I'm guessing you must have some idea of the costs involved so:
How much did 14 years of treating symptoms of endo (pill, tranexamic acid, mefenamic acid, co-codamol, 8 a&e admissions including ultrasounds, migraine meds, anti-emetics, 2 mc inc one partly ectopic) cost the nhs? And how much would a referral to a gynae, lap & endo removal surgery, pro-stap once every 8-9 years have cost?
How much did 5 years of NOT properly treating the ingrown toenails (GP appointments, nurse appointments, antibiotics, dressings changed every other day for several weeks at one point - done by a practice nurse) cost the nhs? And how much did the final successful treatment of removal & chemical treatment to prevent regrowth cost?
How much did not properly dx & treating the cause of the sinusitis for 4 years cost the nhs? (repeated GP and dentist visits, antibiotics, inhalants, painkillers) and how much did the minor procedure that solved this cost?
How much did my dds disability going undx (I don't usually say but I will for this - hms but possibly eds or even marfan - still being investigated) (8 years of me being at the point I thought something was wrong - not being familiar with the condition. When she was v young I just thought she was "clumsy" plus she was born with a lazy eye, slightly wonky ankle - which were noted but never followed up by hcps - I now know these should have alerted hcps to the possibility along with other physical indicators - but even aside from that 8 years of sprained, swollen joints, repeated visits to a&e including X-Ray's, strapped up joints and even at points her being on crutches, digestive issues, horrendous issues with infection of mucous membranes resulting in lots of antibiotics and anti-inflammatories) cost the nhs? How much did referral to specialist, dx (tentatively) and treatment including orthotics and physio, just having the dx on her records (therefore meaning when she starts with an infection in a mucous membrane she's taken seriously rather than it being ignored until she ends up in hospital for up to 3 weeks on drips) cost?
How much did my mum going repeatedly to GP for 3 years with gall stones symptoms and being fobbed off with antacids, pain killers and bloody antidepressants, ending up an emergency admittance and having her gall bladder removed via open surgery as it became a far more complex issue cost the nhs? Vs referral and probable keyhole surgery instead?
How much did it cost the nhs to treat my aunts cervical cancer symptoms (I'm afraid I'm unsure of exactly how long she was having symptoms for as she doesn't like to discuss this - but I know it was several years) (bleeding, pain, constipation, Incontinence, repeated visits to GP & nurse, antibiotics despite no other infection indicators, and again - anti-depressants! Then FINALLY when it was discovered thanks to locums referral - full on cancer treatment - full hysterectomy inc ovaries, Chemo & radiotherapy, mh therapy to help her come to terms with the fact at 29 she'd not have her own DC? Vs if she'd been referred at first sign of the clear symptoms? (She was told she'd probably have needed far less radical surgery, perhaps not have needed chemo or even radiotherapy, maintained her fertility)
so tell me again how VERY expensive it is to see a specialist and how we're ignorant and selfish for wanting this
"Anyway, I don't think anyone has suggested self-referral to consultants - what is being requested is self-referral to the department." Exactly!
Something I've noticed on this thread, my thread and other similar discussions here and elsewhere - is that patients who've repeatedly gone to GP's about the SAME issue FINALLY get the referral/treatment they need when they see a locum GP.
This has certainly happened to myself and my family too.
Mums gall stones symptoms finally taken seriously by a locum.
Dds disability - referral done by a locum after again several YEARS of GP visits - now know that dd has visible physical characteristics AS WELL as the symptoms being clear indicators of the condition - ignored by "regular" GP's. Again specialist stated lack of GP referral a real issue in this area.
Aunts CANCER - clear symptoms ignored - referred by locum. Just in time in terms of her life, too late to save her fertility though.
Anyone else found this?
"Yesterday in evening clinic I had three patients demand referral for.. An Mri because they had a headache for two days, a neurologist because they had tingling fingers (easily diagnosed as carpal tunnel and advice as per nice to try nsaids and wrist splints first) and the third wanted to see gastro for her ibs."
And I've read and heard examples where the reality was (speaking hypothetically but you'll get my point):
The patient with the headache was having repeated, long lasting, severe unexplained headaches.
The patient with carpal tunnel turned out to actually have an undx injury or arthritis or something.
Ibs isn't even a dx - it's a description of a set of symptoms - and it's often a misdx of any number of conditions including endo (happened to me - despite me being clear I was only having symptoms just before/during period), coeliac & other food intolerances/allergies, crohns, diverticulitis, ulcerative colitis, colon cancer, bowel cancer, ovarian cancer... It's a bullshit dx that means nothing.
"or just needs reassurance" reassurance that well known cure for a headache that's lasted 2 days! 🤔
"but some will insist because they read it in the paper or they are waving a printout from the Internet... Or they know someone who knows someone who had the same headache and they had a tumour." People who are worried enough to go looking.up their symptoms to try and find what's causing them are usually doing so because it's a continuing issue and they don't want to keep suffering.
Not all GP's no - but too many yes. I've had a few good GP's who've been very supportive, excellent advocates and thorough practitioners. But they shouldn't be in the minority which has been my experience.
"Within a few years they all dropped this requirement as they found it wasn't reducing the number of specialist visits and wasn't worth the administrative cost." That shows to me that it's a false economy. The USA healthcare system seems to err too much towards keeping costs down for whoever is paying that's not the patient be that private insurers or govt - many problems with that BUT on this issue it shows that the nhs way of short sighted cost saving really isn't saving money!
Many claim that one of the main reasons nhs not providing best care is lack of funds - well I think there's a strong argument for not wasting money fobbing patients off & only treating symptoms when I'm sure it's cheaper to dx properly & treat!
Gwen - I believe it is the case in many countries. I have friends and family all over the world, including in supposedly less developed countries, who can see a gynae whenever they feel the need and in many cases it's standard to see them annually for a "check up" even if asymptomatic. I believe rates for outcomes for female cancers in these countries are significantly better than in uk.
"Most insurance policies have allowed this for ages" again (shocked I'm agreeing with USA healthcare practices to be honest) this shows to me that those insurers have likely assessed it's CHEAPER to facilitate early dx & treatment than dismiss patients. I'm fairly sure they're not doing this altruistically.
"Why do women believe they need to see a gynaecologist for gynae primary care? Genuinely puzzled by this.. What is it about a gynaecologist that makes the better at doing smears than the nurse at your gp surgery?
Or prescribing the pill
Or inserting a coil?" Are you serious?! Go and read the NUMEROUS threads on gynae issues on mn alone and you will find MANY MULTIPLE examples of
Mners who've had shitty, painful, uncaring experiences of smear tests- myself included. I'm sick of inexperienced and uninterested practice nurses who don't listen when I request a smaller speculum and inform them that due to the endo and a weird shaped cervix smears are at best uncomfortable for me.
Prescribing the pill - I am fundamentally opposed to the coil for several reasons, the pill worked better for me for a number of reasons but particularly in recent years the hard sell of the mirena coil in particularly WHENEVER I try and discuss contraception or hormonal prescription for the endo is EXTREMELY tiresome.
Inserting the coil - again! Go read the numerous accounts of mners who've had problems with practice nurses or GP's wrongly inserting coils AND Then read the even more horrific accounts by in some cases suicidal mners and other women online who, upon finding for whatever reason (and this includes serious pain, bleeding and other side effects) the coil doesn't work for them, then face a ridiculous battle to get the damn thing removed! It's a scandal this isn't a scandal to be honest.
"Plus why do women need a yearly check up with a gynaecologist?" Again - given my own personal experience, that of friends and family and the experiences I've come across elsewhere - the answer would be - because generally GP's are pretty shit at taking gynae issues seriously! And gynaes - the specialists - generally agree!