To deal with this myself

[allergicProblem]

Backstory is that I was accused of making up allergies and went through hell. It was like Chinese whispers and all involved seemed to be incapable of actually checking properly which would have shown I wasnt lying

Anyway.......my youngest clearly has an allergy but because of what happened I feel like just dealing with it myself. Ordering him a special milk and food, avoiding what he reacts to , I have Epi pens etc anyway so it’s just easier.
My dm says I’m being ridiculous but after what happened nothing would surprise me as it was a total muck up from start to finished
AIBU to just deal with this without any nhs input

Yes I can see how it’s the right thing to do. My instinct is just to shut down and not trust people after this. I can’t get across how intrusive and scary it was and I wasn’t as easy as I thought it would be to sort of.
I always trusted 100% and sought advice when needed and followed all advice so this was all just a shock. It made me want to just hide away.
The panic as well initially as he had a reaction but then my heart sank thinking oh no is this going to cause the same problems again as ss had basically said any similar issues or referrals they’d re investigate

Hi AP I'm sorry that you went through this, it sounds like a dreadful experience. Have you any idea why someone would report you? Children get have allergies and are diagnosed all the time... why do you think that you stood out and someone reported you?

I think you said you’re under a different GP / practice now?

Here’s my advice:

• Take someone with you (even crappy doctors tend to be very different when there’s someone with you - take DH if you can since he’s also a witness to the reactions and the first lot of tests / problems)

• Explain what happened last time: an admin error at your previous practice essentially led to you being investigated by social services and you’re anxious about this happening again, but it’s very important that your child is tested to be kept safe

• Ask the doctor to ensure that, when the results are back, any allergies are recorded immediately in the most visible way on their system (as an alert, on their system’s summary page or whatever setup they have) so that anyone who accesses the system can see the information immediately rather than having to go digging through letters (to be honest this should be done anyway)

• Once you’ve had the tests, make an appointment to see the GP to get any necessary prescriptions and at the same time double check that they’ve been listed obviously on his digital record / any paper record. (Eg. When a doctor opens my digital notes, an alert pops up with my allergies)

• Keep copies of all test results, letters etc. If you’re not sent them automatically (which you should be if it’s letters), ask for printouts. If you are ever questioned about it simply hand over the results and ask them to speak to Dr X who is fully aware of the case, but with the alert system / prominent note it shouldn’t matter who they talk to.

With the same gp surgery as nowhere else we could change to. Yes I think I will need support to help me get across how important it is things are done properly so we don’t have this happen again

Even better - in that case the practice are aware of how badly they screwed up last time. You could ask to meet with the practice manager to ask what steps they can take to make sure that this doesn’t happen again.

Please don't give your child a diagnosis and intervention without medical input. By doing so you are putting your feelings ahead of the safety of your child. That will raise questions.

I suspect this time you might find the process easier. You understand it. You know how badly things went last time.

If you are calm and rational from the start, it will be easier to explain your case.

For example; you believe child x might have developed similar condition to child y. There is a hereditary element (if there is). You are concerned that after CP involvement last time that your concerns will not be taken seriously again, but this is your child's life you are concerned about.

Get your husband to go with you to all the early appointments. He can both back you up and advocate for his child, especially if he wasn't listened to last time.