I was reading various posts last night and came across a wonderful lady named kerry annable.
I have dithered over posting but her post is public so i will share- if anyone feels it’s inappropriate please report. I am never sure of the protocols here.
But this is so beautiful and so eloquent, it is everything te needs to hear: especially the end paragraph where she says her little boy “won”.
*With all of the heartbreaking stories of children in the media at the moment I want to explain to people how I carry on. How I don't let the heartbreak of Harry make me sink.
Harry was adorable. My second and very much wanted and loved baby. But Harry suffered a great deal. I sadly belief people are confused over disability and illness. Harry had no quality of life. He was born ill. That is the big burning issue... what is quality of life? I know I have my views on what that is.
Harry was not a fighter. He was brave. He was courageous. He had a progressive illness that tortured his little body. The only fight going on was our fight to get him the best care and comfort until he was ready to leave us .
I actively told specialists to stay away. I refused appointments. Because ultimately he only wanted myself and his dad. Sadly sometimes there are no medical answers. There wasn't any sadly in Harry's case.
So what helps me carry on. The fact that in the end my little boy won. He told doctors, nurses, everything he hated to do one. He's no longer in pain and suffering. And that it what consoles me. Every waking moment.
#missyouHarry #Forever3*