Autism.
When a parent with a child with autism asks on boards outside of the sen board, questions about challenges they are facing and answers are sugar coated.
I am an autism trainer (trains employees- psychiatrists, psychologist, nurses etc) and have worked with those on the spectrum my whole working life. Autism is not a sliding scale- if you are on the one end you are a little autistic and if you are on the other you are severely autistic, it doesn't work like that.
Autism makes up of over 400 (and counting) different traits. For one person with autism it means they have 6 of those traits, for another they may have 150 traits.
But it's when I hear 'but he must be good at maths!' 'But she must be really quirky!' 'I bet he has a really good memory!'
The reality is far far different. Parents are fighting for every bit of support they can get, firstly for diagnosis, and then in school. But it doesn't end there. This fight will continue their whole lives.
For example:- How do they now manage with their adult child who is now 6ft 2 and weighs 20st. How do they manage when they become over stimulated and challenging behaviour inevidently happens? Who is going to stop them harming themselves or others?
Often they will need to go into supported living/residential support, this can be hundreds of miles away if that is the nearest place that can adequately support their child.
But each time I read these 'sugar coated' statements of how amazing it is, and how they should be blessed to have a child with autism I want to throw my phone.