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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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AIBU to withdraw consent for hpv vaccine

281 replies

Ilovehamabeads · 08/11/2017 21:15

Signed the forms ages ago for DD to have the HPV vaccine tomorrow. I didn't really read up on it, other than the NHS info leaflet she bought home with the consent form.
Tomorrow is the day she's due to have the first jab. I'm now regretting signing that form so readily, having read more about it. I know in my head that the stories I've read are just the very, very few that went wrong out of millions. But, at the same time I'm thinking what if..
Would it be totally ridiculous to change my mind at the last minute? I think I just need a few people to tell me I'm an idiot for believing the evidence of a few, over the evidence of many!

OP posts:
CoteDAzur · 11/11/2017 01:09

"Gardasil is a vaccine, licensed for use in June 2006, by the FDA. It targets four strains of human papillomavirus (HPV) -- HPV-6, 11, 16, and 18. HPV-16 and HPV-18 account for about 70% of all cervical cancers."

Our paediatrician has told us that a new vaccine, Gardasil 9 is coming on the market soon. It covers many more strains of HPV.

Cathmidston · 11/11/2017 09:33
hotbutteredcrumpetsandtea · 11/11/2017 13:50

One post completely full of nonsense!
If you actually read the clinical trials of the actual drug, it has not been trialled long enough to suggest it protects people for 15 years. There is not enough evidence to show the protection and yet the government insist it is the better

Rubbish. A hundred million doses in a hundred different countries over a decade. And years of trials before that. There is plenty of evidence.

They have now stopped routine smears (not to be confused with suspected cancer) as it is more costlier than this vaccine. This is why it has been favoured. Cost!

LIES. They have not stopped routine smears. The vaccine is not cheap and yet you get it for free for your children. How about thank you instead of lies?

teenage girls are given the vaccine but actually how many strains is it covering given that there are thousands of strains of the hpv virus

2 strains cause 70% of the cancer and it covers those, and 2 more. It vaccinates against the dangerous strains, and not the ones that won't harm you. What is your problem with that?

Why do u think many health professionals and doctors refuse the flu jab?

They don't. More lies.

When people talk about "doing their research" they mean listening to this kind of bullshit from these people who know nothing about it. They understand nothing about the science, they have just convinced themselves they know something they don't. And then try and convince other people not to give a vaccine to their kids that could save their lives.

Who are you going to listen to, this bullshit or the experts who actually know

7Seas · 11/11/2017 13:58

Dd didn't have it. She was in the first group to be offered it. I was concerned for lots of reasons. Instead I paid for private smears. I don't know if I made the right decision or what I would do next time. So far so good though.

Wormysquirmy · 11/11/2017 14:28

God hot crumpets every thread you are the same. Do you ever question anything?!

Anyway, it currently looks like Gardasil lasts at least 6 years.

When people talk about doing their own "research" it means reading more than the leaflet given by the NHS.

The vaccine is probably safe for the vast majority and the benefits outweigh the tiny risk of a problem. But the NHS makes this decision for you. Many of us like to consider the tests underaken before the vaccine is offered and its effectiveness.

No vaccine is 100 per cent safe or effective.

hotbutteredcrumpetsandtea · 11/11/2017 14:29

I question everything. Which is why I know more than you on the subject.

What other thread have I been "the same" on? Please share?

helpmum2003 · 11/11/2017 14:34

I work in Sexual Health. My dd had Gardasil and I'll be paying for my son to have it privately. It also protects against genital warts which are extremely distressing to have. It also protects against other cancers such as an alternative cancer.

Abra1d · 11/11/2017 14:36

The nurse at the school my cousin's daughter went to were proper arsey with my cousin for refusing, but it had fuck all to do with them.

Perhaps she has seen women like my friend who died of CC this year. At one stage the tumour ate into her digestive system making her vomit up her own faeces. Sorry to be graphic but you have no idea how awful a disease CC is. My friend had regular smears and was very fit and healthy, but hers was missed until it was too late. She leaves two sons.

She married her university sweetheart in her twenties. So hardly promiscuous.

Wormysquirmy · 11/11/2017 14:37

hot unless you know me personally then you have no idea about me.

I read lots of threads you are on and you make me laugh. The worst kind of liberal MN who thinks they are so clever and above everyone else. Yawn.

Many people alleging problems with Gardasil are being told the reactions are coincidental. That is why the data looks good.

Ask yourself why that is?

hotbutteredcrumpetsandtea · 11/11/2017 14:40

It's because they ARE coincidental.
Ask yourself why you want to believe silly conspiracies and cover ups.

I only rejoined last week after a long time away, so I think you must be mistaking me for someone else. Unsurprisingly.

hotbutteredcrumpetsandtea · 11/11/2017 14:40

It's because they ARE coincidental.
Ask yourself why you want to believe silly conspiracies and cover ups.

I only rejoined last week after a long time away, so I think you must be mistaking me for someone else. Unsurprisingly.

Wormysquirmy · 11/11/2017 14:44

How do we know they are coincidental? They might be and I hope they are.

But they aren't recorded. It's flatly denied.

I believe there is a class action in Australia just now.

I think vaccines are wonderful but we have to maintain and open and transparent testing and recording system. That doesn't happen and people lose faith. Rates go down.

a proper vaccination yellow card system wouldn't just consider short term effects.

MissWilmottsGhost · 11/11/2017 14:48

Most of the NHS professionals I know have had the flu vaccine.

Of those that didn't, most were because they weren't able to take the time out of their busy jobs to spend an hour queuing in the long lines of other NHS professionals getting the flu jab.

The rest missed the vaccinations because they already had colds or other viruses.

I'm very sceptical about the link between CFS type conditions in teenage girls and vaccines. I have had a CFS type condition since I was a teen with no vaccine. It is worth noting that diagnosis is much better now, so increased rates could be due to better recognition of the condition rather than blaming laziness like my DM did. I'd does rather remind me of the autism/mmr 'link', I remember my DM blaming MMR for my brother's autism during the scare, until I pointed out he was far too old to have had the MMR and had actually had the single vaccine that the scaremongers were demanding Hmm

CoteDAzur · 11/11/2017 18:28

“Many people alleging problems with Gardasil are being told the reactions are coincidental.”

Statistical analysis is very important. In a country where nearly all girls have the vaccine, you would have to see far higher numbers of adverse reactions to suspect that the vaccine is causing them.

Wormysquirmy · 12/11/2017 00:04

That's just it - that assumption is made and so small numbers are dismissed and ignored. We don't even know the true numbers because they aren't collated.

People lose faith in the system and read reports and rates go down.

CoteDAzur · 12/11/2017 07:42

Why do you believe information isn’t collated?

If 15 teenage girls died of heart attacks in the year before Gardasil started in the UK and one dies today, days after her vaccine, it doesn’t look suspicious. If 1,000 dies within days of their vaccines, that will certainly get noticed.

Wormysquirmy · 12/11/2017 08:23

I'm amazed at this. The hundreds of families proclaiming serious side effects from the vaccine are told there is no link to the vaccine. It's not discussed. So the data isn't collected. So the stats look fine.

I have no idea if they are connected or not. Maybe it's all a big coincidences. But maybe it isn't. There is a UK charity for girls injured by the vaccine. All the parents say these thing. Maybe you view a few hundred lives ruined an okay price for the protection of the majority against cervical cancer for a decade. Who knows the right answer to that one. (But my children will probably not receive it in 5 or so yesrs unless I see more research)

londonlookout · 12/11/2017 08:29

I didn't consent to the vaccine. As a new vaccine I don't think there is enough info yet. I told dd she can get it when she wants though. From what I read it offers most protection if given 6 months before regular sexual activity commences, which she isn't intending yet so I don't see any rush.

lettuceWrap · 12/11/2017 09:45

www.sciencedirect.com/science/article/pii/S0264410X17308083

Information is being collected, analysis is being done. Here is one such analysis (a really big one covering several years of a whole country cohort).

Wormysquirmy · 12/11/2017 09:56

Yes - and quite. But who is going on these registries in the fort place? In the U.K. is seems they are not hence lower incidence

annandale · 12/11/2017 10:05

Wormysquirmy I am equally amazed by your posts. Information was collated about the number of autoimmune and neurological diseases in adolescent girls before the introduction of the vaccine. Then information was and continues to be collected afterwards. Some studies did show an additional 2 cases per 100,000 vaccinations, hence Japan stopping the compulsory hpv vaccination, but larger and better studies since that have not borne out that additional risk.

To me, with a husband with a chronic severe mental illness, it all shows that people just do not accept the brutal physical effects of mental illness. It is possible to lose practically all physical function, 'just' from mental illness.

herethereandeverywhere · 12/11/2017 10:18

I read recently that HPV is now also thought to account for many cases of head and neck cancers (so mouth/throat etc). Death from head and neck cancers are set to become more prevalent in the US (where the data was from) than cervical cancer.

I wish this vaccine had been around when I was a teen. I have had treatment for CINII and years of additional smears/biopsies etc due to exposure to this virus. I now know I may have a chance of it causing cancer in my head and neck one day too.

I only have daughters but I'd be paying for my sons to have it if I had any.

helpmum2003 · 12/11/2017 17:35

I work in Sexual Health and

  1. my dd had it and I'll be paying for my son to have it 2)it also prevents genital warts which are psychologically very distressing
  2. it prevents anal and head and neck cancers
  3. it is possibly naive to assume you'll know when your dd is 6 months prior to 1st Sex!! There is an upper age limit on receiving it in the NHS. I saw a woman recently whose parents had not consented for her to have it. She wanted it now but as a student could not afford it. Awful.
  4. having private annual smears means you are looking for abnormalities to treat not preventing them. Treatment is damaging to the cervix.
  5. the NHS doesn't introduce vaccines lightly - they have to be proven to be effective, safe and good value. Internationally we were later than other countries in introducing it and slow to move to Gardasil from Cervix.
helpmum2003 · 12/11/2017 17:44

And the NHS has not stopped routine smears. HPV screening is being piloted as an option which means smears which are HPV positive get detailed screening. It may reduce the frequency of smears for HPV negative women.

Lellochip · 13/11/2017 15:20

My area is doing the HPV testing for smears, just got a negative result through. So the vaccine would be a good idea? Wish it was cheaper to get it privately though