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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To expect my husband to acknowledge my pain?

117 replies

TammySwansonTwo · 09/09/2017 14:00

I have endometriosis as well as other conditions and I'm in pain every day and my periods are horrific. The first day of each period is always the worst. Last month, I got really upset with him because I was sat there in tears due to the pain and he literally didn't acknowledge it. He did all the practical things (sorting out the twins etc) but the fact that he could let me sit there in so much pain and not even acknowledge it really hurt me. I told him this and he said he thought I wouldn't want to dwell on it - I said I would never let him sit there in pain and not mention it, he said he understood.

Cut to today, next period day 1 and it's literally the worst pain I've had for over a decade. I've taken all the morphine I can and it's still making me cry out, been contemplating a trip to hospital but fortunately it has now calmed down. He's been to the supermarket and played with the twins since I can't move, but again he hasn't acknowledged it, mentioned it, asked if I'm okay etc. I know the practical help is most important but honestly it makes it feel like he just doesn't care. I know that's not true but it still really hurts. There's no one else I can talk to about it and just because I've had it for years doesn't mean I don't struggle with it emotionally.

AIBU? Especially as we only talked about this a few weeks ago? He is a great husband and father and he generally isn't a cold person but to me this feels really heartless.

OP posts:
stopfuckingshoutingatme · 09/09/2017 21:15

You will normally get good support in here from people who understand and more critically have experienced it

Try general health and do some searches

It's does sound very very hard so you need to gee him up to help you get this sorted as god knows the NHS can be hard work to manoeuvre

Why fibro ? Just curious as sounds like your pain is very gynae - wondered how they got that that

bakingaddict · 09/09/2017 21:31

Tammy my DH isn't the best at being supportive when I'm ill and whilst I don't have endometriosis I do suffer from really heavy painful periods. Earlier today he saw me wincing in pain and said sympathetically ' have you got really bad pains' it felt comforting that he acknowledged my pain. Severe pain such as yours must be incredibly isolating and more so having a DH who fails to offer a few words of commiseration.

Amaried · 09/09/2017 21:37

God this takes me back.
My sister who was pregnant last year developed terrible back pain and found standing really hard . The whole family rowed in to help obviously with the practical stuff but god she was hard to be around. How awful the pain was, how unfair it was. If anyone had the nerve to talk about something else, she would groan loudly a few times and then if that didn't change subject back to her get odd that no one was sympathetic to her. There are only so many times that we could say poor you, yes it sucks etc .
It was a very very long 9 months for All of us.

Chocolatefudgecake100 · 09/09/2017 21:44

Op ur not alone i have endometriosis its horrible isnt it i know how you feel just a cuddle could help couldnt it?nobody understands unless they have it because we look fine but really life is hard with this illness i was in tears tonight your not aloneFlowers

TammySwansonTwo · 09/09/2017 22:17

I've had joint pain and weakness in addition to the gynae pain for years - painful but manageable. After I had the twins I developed upper back pain, which I put down to pumping and had a course of physio but it didn't really improve. Over the next few months it worsened and now I have pain all over - mainly hands, feet and back, worse in the night or when I've been still for a while but it's really making life difficult. It's nothing compared to this period pain, but it's constant and hard to manage when you're trying to run around after twins! For years they've been saying that my daily pelvic pain is caused by nerve damage from years of untreated pain before diagnosis and surgeries etc, but could be that it's actually related to something else. I don't know - I've been fighting to get help for so long, pushed to see specialists, been all over... I don't really have any hope of it improving to be honest.

OP posts:
TammySwansonTwo · 09/09/2017 22:23

Amaried - yet again, that's not what I'm saying. Not sure how you can equate constantly going on about something with not mentioning it at all. I hope you never have to deal with pain like this, but if you ever do I suspect you'll look back on that situation rather differently.

OP posts:
sparkli · 10/09/2017 08:41

I have chronic neuropathic pain with periods of acute pain so bad I can barely breathe. I don't think you're expecting too much of your DH. There's no reason why he can't give you a cuddle or make you a cup of tea, bring meds, etc. My DH is my rock when my pain is unbearable. He never complains about me waking him in the middle of the night when I need him. I know everyone is different and maybe your DH just needs you to tell him what to do to help you. Flowers

SEsofty · 10/09/2017 10:03

Firstly sympathy. And secondly it might help to spell out exactly what you need.

I have endo as well, and a practical minded oh. He simply doesn't see the point in talking about the pain etc but he knows that I just need to be held sometimes.

On a practical note, have you tried acupuncture and also I find high strength magnesium and vitamin d help as well. And the pain is worse when tired, which with baby twins even the healthiest person would be exhausted. So be kind to yourself

gluteustothemaximus · 10/09/2017 12:42

It was a very very long 9 months for All of us.

Wow. Was it really? Or just hard when you were around your sister for brief moments?

Whereas your sister probably had excruciating pain for the whole 9 months.

If you think someone in chronic pain suffers the same as someone saying 'poor you' repeatedly, you're wrong.

OP, I do hope you can talk it through and get this resolved. It is a very hard situation coping with pain, and no one is a mind reader.

On another note, I have 2 other friends with endo, both ended up with hysterectomies and doing great now. It's not the only answer of course.

Hope it gets better for you, I know that pain, and it is indescribable Flowers

YetAnotherSpartacus · 10/09/2017 12:53

I've never been in real pain OP and I get it. I think your DP is an arse in the nicest possible way.

Mummyoflittledragon · 10/09/2017 12:58

Amaried

9 months is nothing. And you didn't even get to suffer the pain. It takes you back. What a stupid thing to say. Your dsis sounds like she was hard work for the duration. UNLIKE CHRONIC PAIN SUFFERERS, WHO SHUT UP AND GET ON WITH IT.

haveacupoftea · 10/09/2017 13:04

Sounds like he has compassion fatigue.

kittybiscuits · 10/09/2017 13:18

'Compassion fatigue' would imply that he ever showed any compassion in the first place...

TammySwansonTwo · 10/09/2017 14:18

Thanks everyone. I think we have to talk and adjust things - my periods haven't been this bad for a long time and while I've gotten used to the draining daily pain, I'd forgotten how bad this specific pain used to be before things were managed. At this point I suspect scar tissue resulting from my c section is the culprit as the bleeding isn't even as heavy as it has been but the pain is off the scale. I think he had forgotten it being like this too and we are just both caught off guard.

OP posts:
shakingmyhead1 · 10/09/2017 14:30

i think if he walks in and sees you in pain, maybe he thinks to himself "ahhhhh shit that time of the month" " i better get the kids sorted so she can rest"

in his way that is acknowledging your pain and hes doing what he can to take some of the load off your shoulders.

try not to think hes ignoring my pain, try to turn your thinking to oh thank god hes noticed im in pain and hes dealing with the kids so i can lay here in the fetal position and cry in private, God love that man!

( and it could get way worse... he might become one of those clingy men who needs to get you wheat bags or rub your back or hold your tampon for you and discuss flow rates every second of the day)

Maria1982 · 11/09/2017 21:23

Glad to hear you sounding a little bit more upbeat tammy. It makes sense that if this specific pain hasn't been like this for a while you have both forgotten. I hope you can talk with him and feel supported - and also for you two to feel closer, which is also helpful (I have joint pain which always improves over summer, and when it gets worse again around now, sometimes we have a rough few days with my OH until we realise what's happening, as when I'm not in pain I literally forget what it's like when I am..).

PS apologies if this is super obvious, but have you discussed endometrial ablation with your consultant? Could be an alternative to a hysterectomy.

Maria1982 · 11/09/2017 21:25

PS reading back through some of your posts - the pill also completely killed my libido! I was on Yasmin for 18 months, and felt completely sexless for the duration. I only stayed on it for that long because it was such a relief to have pain-free periods...

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