Charlie Gard 8

[cjt110]

New thread so that we can await this afternoon's hearing at 1400 (UK time)

Let's try to keep this one as sensible and measured as the past 7 threads have been.

Please note the MNHQ comment on thread number 7.

"Hi everyone,

..... We had to remove several parent-blaming posts, so we'd like to ask folk not to do this. We think we can all agree that this is a truly awful time for all involved and we just wouldn't wish it on anyone. If there's anything we could do with more of, it's support. We'll continue to remove reported posts that break TGs (if we've missed something, do feel free to let us know).

If we have to make too many deletions, we will need to look at removing the thread; which is the last thing we wish to do.

Thanks all"

They can refuse the scans but they cannot then complain that measurements are not accurate because the one clear way of clarifying it has been refused by them. Poor Charlie. I am sad for his parents but they need to be overruled now and sad as it is they need removing....or Charlie needs removing from their care.
Maybe they refuse the scans because they know deep down that this will show the things they are terrified of facing. I very between sheer horror of what they are going through and anger at them for putting their child through this. They are utterly deluded.

cjt The entire treatment is for a different strain. No one with Charlie's condition has ever had it before.

Wheres the pastor at these days??? not seen him for a few days

She can request I believe (and recall correctly) but ultimately, HJFrancis has the last say.

1112 I disagree; I think that they have provided exemplary care & have been dragged in to court by 2 parents in deep denial about their sick child, who refuse to believe medical evidence.

They are demonstrating that they are providing world-class care.

I apologise for asking this & hope it doesn't come across as insensitive but, if this legal process rumbles on much longer - which it looks as though it will - is there a possibility that Charlie just won't make it anyway?

I understand the ventilator is helping him breathe, but what about his heart, liver etc? He's such a poorly little boy and each time we see a new photo he looks to have deteriorated. Surely his little body can't just carry on forever pending a decision?

I think it's the same treatment.It's just that it has never been tried on anyone with the strain that Charlie has.

The parents need to be stripped of any rights at this point and Charlie needs to be made a ward of court. Any parent denying treatment in any other circumstance would have had their child removed by now but we're supposed to forgive all in the name of grief with no consideration as to the welfare of the child?

And IMO there now needs to be a reporting restriction as happened in the case of Charlotte Wyatt which would mean that the discussion would need to be closed on both sides.

i actually think at this point that it would be the best outcome if nature took its course regardless of intervention. Something which of course is possible at this point....

Nanny Of course. Silly me. Would what they can offer go some way to help? I say this because in cases of meningitis, they treat for the worst strain first in a worst case scenario rather than wait for lumbar results.

Hearing resumes.

Thank you again cjt it's very confusing as to who has the right to do what at the moment!

SantasLittleMonkeyButler, he could slip away at anytime,he is very poorly and his body is bloated which is a sign that organs are failing, he could die any minute I suppose. Thats why I do not get the amount of time spent in courts ect, instead of the most important thing,

Don't know if anyone answered this already but you can have an MRI and ct scan if fully ventilated. I had both. I was fully sedated and vented so I don't actually remember any of it but I believe they unhook you and use manual ventilation with the squeezy balloon until you're hooked back up to the ventilator. It's why ct and MRI are generally located on the same floor in a hospital as ICU.

WannaBe, I agree 100%

Even if we disagree you cant say the parents aren't trying to put him first

Given that four separate courts have already decided that none of this is in Charlie's interests, it's hard to see how anyone can avoid saying exactly that

I completely accept that, in their grief driven delusion, they've convinced themselves that they're doing their best for Charlie, but the repeated judgements say they're wrong

Even if it's ruled on the 25th for Charlie to have the treatment couldn't it take another 90 days+ for the treatment to be authorised through the right channels outside of court (FDA was it?)? That's an awfully long time for Charlie to be kept in limbo for treatment that no one has yet been able to say confidently the effect could be.

Sorry Gabs that was kind of my point. Charlie's Army clearly have little idea of how much is involved in becoming a doctor, in the first place, and then moving up to consultant level.

hears
Professor Michio Hirano, who offered to treat the baby, is due to examine him next week, a judge hears.
15:00, UK,
Friday 14 July 2017
Charlie Gard's parents arrive in court for latest hearing
Image:
Charlie Gard's parents arrive at the High Court for the latest hearing

@SkyFixerJim
1s
Armstrong: "it will produce an inequality of arms between the parties." #CharlieGard
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@JoshuaRozenberg
0s
Armstrong: excluding parents will produce an "inequality of arms".
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@JoshuaRozenberg
1m
Armstrong: GOSH are a party to the proceedings. So are the parents.
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@SkyFixerJim
1m
Court resumes. Armstrong says he remains of the view that the parents should be in attendance at the WHOLE of the clinicians meeting.
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@JoshuaRozenberg
2m
Armstrong: we remain of the view that parents should be present throughout experts' meeting.
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@JoshuaRozenberg
2m
Charlie Gard: hearing resumes.
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@SkyFixerJim
22m
Court rises until 1515.

Lynnm63,the parents have said he cannot have scans.

According to a member of CA, this is a feminist issue.

A lot of us are now merely repeating what we said days ago. That this is now going far beyond tolerable limits. People have bent over backwards to try and appease, help, support the parents but they are making a mockery of this. The fact they are deluded is not an excuse for what they are doing, what they have stirred up, the lies told, the prevarication caused, the vitriol spouted at GOSH etc

The Judge and others have been far, far more lenient to the Gards than many others would have based on what;s going on.

Charlie should be made a ward of court immediately and GOSH urged to carry out the previous THREE rulings on this issue for the sake of that poor baby. Because it is clear that, deluded or not, the Gards are not in any way, shape or form putting him first.

Sorry that copied shit.

Armstrong: Connie Yates would behave properly during the meeting. Chris Gard would not attend.

sorry light for misundrstanding very hard to read tone

I've lost the thread again....!