Charlie Gard Case 5

[LovelyBath77]

A new thread to follow on from the others about this case.

Watching Victoria Derbyshire now. I don't like the way they are reporting this, it seems very skewed towards the CA viewpoint, and the idea that this is a viable treatment that is being denied to a child who will live if they have it.
Or is this another case of both "sides" of a coin viewing the BBC as biased?

I noticed that some were complaining that their friends on FB were ignoring their shares and comments about CA and saying it's because there is no freedom of speech in this country.

Popping in after lurking on all these threads over the last few days - they, and you lot, have been inspirational amidst the madness all over social media. to those struggling with illness yourselves (& loved ones), thank you for sharing your stories.

Praying for the best outcome for Charlie today. I feel desperately for his parents but I'm afraid they've been so misguided by poor support It's beyond me how you could have anything but respect for the team having looked after your baby boy for months.

Time for a new thread again..

Pansy, thank you, I will go and buy some stuff for the R McDonald houses on Amazon. My brother and SIL were given a room at a R McDonald house for 8 months, it was the only way they could be with their child.

That's awful rhodiola

My cousin and his partner had to make the heartbreaking decision to turn their son's life support off after he sustained a horrendous head injury in a car crash, he was only 14 months old. He fought for 3 days in ITU, had numerous operations to try and relieve pressures in his brain but there was no hope for recovery. His parents knew that their little boy was suffering and that if nothing could be done then it was right he should be allowed to pass away. They certainly weren't weak or lacked the power to fight, they were just doing what was right for their child. It was very sad.

There is a nurse who I have previously worked with who is part of the CA FB group but I haven't actually seen her post anything, her picture just shows up in the members list of people within the group that I am friends with.

My local PICU has a charity and we also have a RMHC too so I'm going to set up a regular donation to both. I'm going to ask the PICU charity if the donations help with the parents to eat, etc. They're an incredible charity set up by parents who have had children in PICU. They have funded 3 paediatric ambulances.

My DS had to stay in paediatrics in a different hospital when he was 5 days old, thankfully not in PICU and the level of care was amazing for both of us. I was fed as if I was a patient, we had a lovely room with a bed for me next to his cot. The staff took him for a feed in the early hours so I could sleep. Two wonderful nurses came in first thing with toast and jam for me as they'd seen I'd been missed off the breakfast list due to transfer. They made sure I had lunch. They looked after him so I could shower. My DH was allowed to stay until 10pm and come back at 7am. I was truly humbled by the wonderful care we received and that was just in a normal paeds unit. The abuse directed at the staff of GOSH horrifies me, it really does.

Writer, I am so sorry for your cousin & their family. It is exactly this sort of thinking in the CA that is dangerous, making other parents who have had to make the difficult decision feel awful or wrong about what they did. They are adding a whole new level of guilt to these people. It really angers me.

I just read one post on there and had to leave before I joined and said something! They are questioning why he can be transferred to another hospital but not be allowed to be brought home. Maybe the needs he has have to be cared for by a team of medical professionals?

SlothMama,is not being transferred to another hospital, 7 hospitals have already refused Charlie.

I'm a paeds nurse and this is a lovely thing to do. All hospitals have charity's and it's often the less known hospitals that have the less money.

I feel even more sad for Charlie's mum and dad having read the Daily Fail quote upthread (in which Connie said she is not religious).
They must feel so, so grieving and desperate to have called on everyone for help as they have.
I really hope that in the end they will be well supported by all the groups who have weighed in on this to get on to the public stage, rather than having their dying son's interests in mind. The cynicism is awful to see.

The Victoria Derbyshire Shiw just had someone on quoting the 10% chance figure. Why won't they challenge it?!

I know he isn't they are questioning why he can be moved to a hospital but not home

Someone posted on the USA CA page to ask the supporters to stop telling the Gard family to 'keep fighting', that it's not fair on them.

It was such a sensible post, I doubt it's still there but it was clearly from someone with a few more brain cells who had decided that they had enough of the hysteria.

Shatners I have no friends who are in the CA group.
I also haven't seen any of my friends post or share on my feed about Charlie.

CaveMum they're quoting it as being what the lawyers for the parents will say, not stating it as fact. They also said that GOSH lawyers will argue that it won't work. It's just a precis for the news.

Slothmama he's ventilated, which is usually only done in an icu environment. Plus I think it would be fair to say that relations between hospital staff & the parents are strained (to say the least) that it would be inappropriate to have staff in their home. Imagine having to run the gauntlet of CA army at the front door, inappropriate use of social media, verbal abuse etc.

Poor DH was just subject to a rant when the news quoted 10%!!

should I start thread 6?

NEW THREAD HERE: www.mumsnet.com/Talk/am_i_being_unreasonable/2978456-Charlie-Gard-6?watched=1

new thread here www.mumsnet.com/Talk/am_i_being_unreasonable/2978460-Charlie-Gard-case-6?watched=1

BeyondDrinks isn't it the reversability or otherwise of the brain damage which is going to be key, as opposed to this 10%/ other% thing?

Shatners I am on the page but only to follow the updates and to see what absolute tripe they come up with next, I have never commented and I never will as I don't agree with what is going on. I would never dream of having another persons child as my profile picture as that is wrong to me, I don't even use my own children as my profile picture as I know anyone can copy them!

I really dislike all these protests and nasty comments that are going on about GOSH, I have my own personal experience with them which wasn't great but that doesn't cloud my judgement as I know how many children, my own son included, they have helped and cured over the years. Comparing it to places like Auschwitz is completely wrong and disrespectful. I honestly don't think the people who are making these comments have a clue just what they are saying and if they do then they must be extremely uneducated. I think the situation has got totally out of hand and his parents have backed themselves into a corner and they can't get out. This should be about what is best for Charlie.