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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Charlie Gard Case 5

999 replies

LovelyBath77 · 12/07/2017 09:13

A new thread to follow on from the others about this case.

OP posts:
Thread gallery
13
TartanDMs · 12/07/2017 17:49

How do you know if FB have reviewed reports and the outcome? I have reported a few threatening posts on FB and I don't know how to check what happened.

Yamayo · 12/07/2017 17:50

Think its 10 o clock.

nina2b · 12/07/2017 17:51

I like SomeDyke's thinking, too and welcome a voice of reason.

goodbyestranger · 12/07/2017 17:51

10.30am

GinSoakedTwitchyPony · 12/07/2017 17:52

Tartan, they'll send you a notification and the result of their review.
I reported a couple of posts last week and it too about 3 days to get a response. Not sure if they respond quicker if there are more reports IYSWIM.

I notice the NHS employee who wrote that a QC acting as counsel for an NHS hospital should have a hammer in the face - both those posts she made are still there.

nina2b · 12/07/2017 17:53

I like SomeDyke's thinking, too, and welcome a voice of reason.

Puzzledandpissedoff · 12/07/2017 17:54

Moving away from Facebook and Twatter and returning to Charlie - who's the one who matters here - I agree with Darth in very much hoping Charlie's parents are with him now, rather than spending what may be his last days on social media, yapping with silly pastors, etc

I also think that, if the same judgement's reached tomorrow, it should be carried out quickly; yet more time "to say goodbye" seems unwise as there's no reason to assume it would be used this way. It's unfortunate that the parents have spent so much time elsewhere already, but this was their free choice and I don't believe Charlie should have to suffer yet more to make up for it

And it's now nearly 4 hours since the deadline for "new evidence" to be produced, with no comment from any family member. Given that everything else has quickly been posted online, it's beginning to look as if they haven't been able to produce anything ...

nina2b · 12/07/2017 17:55

That is not a surprise.

Dustbunny1900 · 12/07/2017 17:55

CA is nothing more than a cult/weird religion now. With Connie (and Chris but especially Connie) with a halo round her head like the blessed virgin. None of it's built on facts or science, all blind faith and cognitive dissonance and if you don't take what Connie says as gospel (he's not in pain or brain damaged folks! Numerous world renowned doctors be damned, mothers have mystical supernatural powers of insight dontcha know) then you are ex communicated and practically burnt at the stake.

I remember asking a simple question about what good protests are going to do if every court has ruled against them..I was met with an avalanche of blithering unreadable crap raging on about how c&c were incredible parents and how dare I and I need to leave. The decipherable parts anyways. I never once questioned their love for Charlie or even brought them up.
I can see how the Christian Right have latched into this, and I'm so sad Charlie's name and memory has been tied to these hateful people who would dare use a dying baby for their agenda . they do this with victims of every kind over here though so it doesn't surprise me.

But the whole holding his toy monkey thing, posing him with his passport, writing ridiculous quotes underneath pictures of his face like "please save me!" . Just incredibly vile and manipulative. And grossly disrespectful.
Sorry just had to vent lol

Incitatis · 12/07/2017 17:57

Can I just ask how to send a message of support to gosh? I am on fb, but I can't get messenger app to work. How do you bypass this as it won't allow me to send a message without using messenger?

ChattyLion · 12/07/2017 17:59

I don't want to derail but speaking as a patient I'd rather a student HCP/nurse or doctor was pulled up for breaking their professional guidance on social media activity now, before they were let loose on patients and acted like that while speaking with full professional authority.

In the case of a practising HCP/dr/nurse who is posting calling for violent or inappropriate stuff on social media- equally they have been given very clear professional guidance against doing this so even less sympathy there.

Not making a full time job out of reporting shit behaviour doesn't mean that shit behaviour shouldn't be reported by anyone when it's apparent. It should be challenged properly via the right channels.

One of the (many) reasons I find this case so disturbing is the disregard for professional process, expertise, ethics etc which some people are using poor Charlie Gard's situation to encourage more widely.

Calling for (at its worst) violence against doctors, lawyers, judges etc purely on the basis of them appropriately fulfilling their professional duties is self-defeating madness. particularly in health care when we can be highly vulnerable.

How would we, the general public, possibly come out better than now, out of any scenario where professional expertise, regulation and process etc etc has been let go of?

Professional standards are there to protect professionals and patients in what is obviously an unequal power relationship and to uphold public trust which is the foundation of a functioning health system.

Tidr; deviating from professional standards is a good thing to report.

Zoflorabore · 12/07/2017 18:00

Just to say that on every one of these threads so far (5) there has been one or two people suggesting that we watch what we say or keep things nice etc as MNHQ are likely to pull the thread.

Well look, were 5 threads in, none have been pulled, this is a sensible place on the whole where opinions are welcomed and discussions are, on the whole, respectful and thankfully coherent.

After the utter shite I've read on CA, ours is tame in comparison and if our members feel the need to report on Facebook then good on them, otherwise we have persons of authority in this country who are hiding behind their uniforms and don't deserve the respect that's given to them.
That is all.

redshoeblueshoe · 12/07/2017 18:01

Incitatis - I emailed Gosh, and had a lovely reply.

Sostenueto · 12/07/2017 18:01

Does anyone know whether the gards got the new evidence to the judge in time please?

DailyMailReadersAreThick · 12/07/2017 18:02

Incitatis

You can send a message using the form on their website (scroll right to the bottom): www.gosh.nhs.uk/about-us/contact-us-hospital?wssl=1

You could also comment on their Facebook page, though that would be public.

nina2b · 12/07/2017 18:03

Hear hear.

nina2b · 12/07/2017 18:04

@zoflorabore:

Absolutely. Well said.

Lightlovelife · 12/07/2017 18:05

Smiling guess you're not going on the demo then.

rabbitnothare · 12/07/2017 18:06

Sostenueto, I was wondering that too. I can't find any reports about it.

Incitatis · 12/07/2017 18:07

Thanks, I'll try posting on the fb page.

onalongsabbatical · 12/07/2017 18:07

Zoflorabore agreed, I think the mumsnet threads are mostly a haven of sanity, reason, and goodwill.

Rhodiolia · 12/07/2017 18:09

alcin I think the CA page was set up with the best intentions, when it was about raising awareness and the funds to get Charlie the treatment before anyone realised it was futile. Sadly, it has completely changed since then, no wonder you got out.

Sostenueto · 12/07/2017 18:10

No rabbit nor can I. I suppose the media would be on it though if they had.

OhUnpretentiousSpud · 12/07/2017 18:10

It appears some of the FB posts are now being deleted by Facebook now, according to posters on CA.

I also think we should have heard a '"thunderclap'' by now if new evidence had been submitted successfully.

Sostenueto · 12/07/2017 18:11

Anything on can page as to whether that deadline was met folks?