I've been watching this for a while. My two cents.
I feel so sorry for Charlie, but I also feel sorry for his parents. I think they started something that is now completely out of their control, and in a way holding them hostage. They have no opportunity to accept that Charlie won't get better because according to the narrative of the campaign that would be letting him down, giving up on him, or not valuing his life.
They are being exploited by people who are involved in this case for their own reasons and who don't have Charlie's best interests, or even the parents best interests, at heart. Some of these motivations are obvious (like the American right's healthcare agenda, but the CA also have their own motivations- being part of something, sticking it to authority)
When the inevitable happens, and I think after the decision today it will be very soon that it does happen, the crowds and the 'supporters' will fade away and move on with their lives or move on to other 'causes'.
Chris and Connie will be left angry and bitter, and due to the lack of trust and the animosity that has been whipped up against health professionals who don't tell them what they want to hear, they might be unwilling or feel unable to seek counselling and appropriate support to deal with their extremely difficult loss.
In addition, they will know that there is a 1 in 4 chance that if they have another child it will be the same thing all over again. (Plus, I would imagine that if its a condition that can't be screened for during pregnancy social workers would be keeping a close eye on the family due to the likelihood of non-engagement with health services- something that will be all the more difficult because of the level of professional distrust).
I think the vitriol that has been directed towards GOSH is appalling and that Charlie's parents are not acting in his best interests, but I really do believe that they believe they are, and that what they are doing comes from a place of love. I really hope they will be able to make peace with this eventually, but I fear that they won't.