Charlie Gard Case 4

[LovelyBath77]

A new thread to follow on from the others about this case

On another point, sadly C&C do not understand how the media works. Maybe not tomorrow, maybe not next week, but when the media turn (which I believe they will) then they will be in an even worse situation than they are now.

If they chose to have screening/genetic testing/embryo selection type stuff for future pregnancies, their pro-life christian media circle will have a lot to say about it

On another point, sadly C&C do not understand how the media works. Maybe not tomorrow, maybe not next week, but when the media turn (which I believe they will) then they will be in an even worse situation than they are now.

If they chose to have screening/genetic testing/embryo selection type stuff for future pregnancies, their pro-life christian media circle will have a lot to say about it

Just read that the parents feel 'stitched up' because they have until Wednesday afternoon to provide fresh evidence. Why is that a problem? I thought they had these 7 (?) experts offering some alternative treatment. They're so bloody convinced there is a 'cure'. What are they fighting for if they can't produce any evidence?

Thank you reds she's doing really well now, she spent 15 weeks in three different NICU so I'm over the moon to have her home now. She's ex 27 weeker and even though 15 weeks is a long time, she had a smooth journey compared to some of the kids we met during that time. Incidentally, at least four kids we've met during our time in hospitals were saved by the gosh teams' expertise

I've emailed GOSH via their complaints department, to complain about the complaints they'll be getting. Asked them to forward my "don't let the bastards get you down" message on to ITU.

Hope they will.

Poor staff, they must dread going in to work when they're munching their cornflakes, thinking about the long shift ahead doing things they know are not in the best interests of the patient they have worked with for so long.

Rough.

Just saving a place so I can catch up.

Hashtag, that's amazing. Glad she did so well, hope you are too.

its all stalling tactics miss to put off the ineviatble

hashtag thanks for sharing your story

Has anyone actually had any luck with reporting to Facebook? I've reported stuff to them before, for inciting racial hatred and a naked baby with her genitald clearly on display and every time I get a message saying it doesn't violate their community standards! Apparently nothing does.

The staff must also be fearing someone trying to attack them or the hospital.

I just looked at the Charlie's Army US FB page - and I'm sure this has been said before - but dear god the actual Bull crap that is being spouted there. The ignorance and fantasy. If it wasn't about such a tragic situation it would be hilarious.

And the animosity directed at GOSH is beyond vile. It made me feel quite strangely defensive. And of course those spouting ignorant shit ( who are all experts in meds and scans and all the rest of course ) would be the first in line if any of their children were ill and needed help in this country.

I was thinking about the amazing opening ceremony at the London Olympics and the part with children bouncing on beds with all the medics from GSOH. It makes me really angry to see it degraded and criticised by people who are so so ignorant.

The whole drama playing out around Charlie Gard is beyond sad and so difficult. I have thought endlessly about it and swing between opinions in all honesty.

I have nothing but admiration for the tenacity and energy of Charlie's parents. I respect their resolve and courage. That probably goes without saying. I am still quite confused about the differences between Connie's view of her son's condition and the official reports. There seem to be difficult discrepancies. Which is probably where this enormous gulf between parents and hospital has sprung from.In honesty I lean to the side of the courts but I sympathise with the parents frustration. Thankful that I am not in their position.

The language and approach of their supporters to any differing opinions ( and GOSH ) is simply vile. Aggressive and vile. They do Charlie Gard a disservice.

stealth I looked at GOSH's site and I couldn't figure out how to send my support, thanks I will follow your lead tomorrow

I noticed on the official GOSH you tube channel a video from three months ago has disabled comments.

"Oh the barmy army are quite funny at times"

I agree. Here's another gem...

Shouldn't be called GOSH it's not great it's negligent (CA)

So we're going to change London street names now?

Is it just me who has no respect at all for his parents and actually finds them rather unpleasant?

Sorry.

You can also send message to gosh via their fb page. I contacted them on Sunday afternoon and they replied within 15 minutes with a very sweet message

MyPatronusIsAUnicorn I have not had any luck reporting to Facebook no.

On This Morning yesterday there was a little boy with almost the same condition as Charlie, and it was terrible to see him,sitting in a wheelchair, with a tube into his neck, no apparent consciousness about him.He is on supplements, similar to those mentioned by Charlie's parents, and the little boy's father was delighted to say that his son could now blink his eyes.... My heart went out to all of them, but especially that little boy as to my mind he had no real quality of life. Life at all costs, whatever the quality, can't be right.

I'm tempted to join CA FB page just to ray to the hate but its banging your head against a wall isn't it? We're a BCH Baby household but only by dint of geography. And I honestly believe our hospital would do the same.
The thought of our nurses having to walk through they hate, see it on FB etc breaks my heart

I've been thinking about how to show support for the PICU staff and have decided to send a big 'thank you' balloon with an encouraging message attached.

They can put it in the staff room. Most clinical areas display appreciation cards/letters etc in staff rooms.

@MissEliza

I think they believe Charlie is entitled to have this treatment, this chance as they see it.

They seem unwilling to accept how very poorly he is and do not accept he is suffering.

From everything I've read there is no new compelling evidence. They were hoping that the letter from the "scientist 7" that suggested the treatment "may" be able to pass the blood brain barrier was enough.

The judge made clear on Monday that "new" evidence from a legal point of view was that the treatment could not only pass the BBB but also reverse structural brain damage.

This evidence doesn't exist, again to the best of my knowledge.

As such they've really come to the end of the line with legal options and I suspect they have been advised of this.

What's odd, is that in the original court ruling in April "Mr Justice Francis said that Charlie’s parents “acknowledged and accepted that the quality of life that Charlie has at present in not worth sustaining”.

However, we now find at this point in time, statements from the parents that contradict this - they assert (depending on the interview you select) that he "is not brain damaged" or "he has some brain damage but it is not severe and could be reversed".

I'm not sure what caused this change of opinion.

Why all of a sudden had he been put on it. I'd say it worrying, no matter what how small the amount. I'm sure Connie and Chris have said he's not in pain. He would be crying all the time previously if he was.

Apologies if this has already been posted, have skipped the last few pages but really this has dumbfounded me how anyone could be so ignorant? The poor mite can't open his eyelids never mind cry in pain :( It's actually quite worrying how uninformed some people are.

@MommaGee there's zero point. theyve said themselves any anti ca comments will be deleted immediately