Charlie Gard Case 3

[LovelyBath77]

A new thread to carry on from the previous ones about the case

I fear for the parents too - they don't seem to have anyone they can rely on for true support. Anyone is either whipping them up or has an ulterior motive.

Very, very sad.

Thanks all for flowers and so sorry for outburst

agree with TheWeeWitch

I agree mrgrumpy I have thought the same. Someone needs to sit them down and give them proper support not keep whipping up false hope like their "supporters" are. Someone needs to advice them to take a step back from the media and social media too.

Do you think the comments they made "He's not in pain" could be as he is on pain meds. So therefore they feel he's not in pain?

Re the morphine, lots of posts saying GOSH have either lied about him having it or have just put him on it now to strengthen their case / use it to commit murder etc. Saying that the parents can't have known he was on morphine otherwise they would have told them, not claimed he wasn't in pain etc. Assuming they did know he was on morphine they really ought to say so rather than keep letting doctors be accused of drugging and murder.

That's the problem. Family are on the Charlie's Army group so stirring the things on there. Then if they read posts it's all about GOSH being wrong and it's all a conspiracy. Then you have outside agencies waddling in and out with promises and hope then going again. The American doctor probably didn't help either but then if misfed information doesn't help either.

Doesn't seem to be much level headed support.

This all just needs to stop .....

I am currently in hospital with my own mito child who unfortuntly came down with sepsis.
I can see both sides of this however my DD although life limited thankfully has not had her brain function effected.
But does rely on 16 hours of ivs daily / central line and numerous other things.
I fight for her but she does have a life ( walks talks dances etc )
I always promised myself when the time comes I would make the decision for her and that would be to let her go.
I have never left her side, I will not until the day she decides enough is enough.
I trust the doctors at great ormand street who DO have a mito specialist who is very good.
I understand mito like it is my second language.
Charlies army and the brain mri they have no idea what this all entails and its making me feel sick.

Yes. Because if they were to let him go, now, they would be letting down all those 'supporters'. It's all horrible.

Muckypup im not going to search back but comments like 'she's singing on the page ' ' oh, who? Where?' 'There'll be a single next' etc - bit like looking to be outraged.

I may disagree with the parents'actions but I absolutely defend their right to question the doctors' decisions and judgements. They are exercising their legal right to the courts.

All this wait til HMRC get their share/where's the money going/ why isn't he a ward of court/ what do they need it for - it's just gossipy tittle tattle and projection. Like it's not bad enough their son is dying, they need financial and social services sanctions as well.

I think it was one post about sunglasses out of over 2000 posts, not really fair to then present that as the basis of critism of the whole discussion.

It's been an intelligent, fair and measured dissection of the events.

Having a sick child does not make you untouchable to scrutiny, in fact, that is why this situation got so out of hand in the first place (in my opinion).

They are not saints,not necessarily altruistic and not beyond reproach.

Having said that, I do feel huge compassion towards their situation and am hoping that Charlie will be comfortable while this drags on.

Will a Judge even consider unpublished research as seems to be the offer from the Italian hospital? Especially when it hasn't been attempted on a human, only mice? It seems unthinkable that they would.

Wise words Sostenueto and lots of hugs.

So, I stand by my previous comments re Charlie's welfare etc.

But realistically, these morons (the CA posters that is) are generally restricted to the internet. They talk about the wish to storm the hospital, to kill doctors, to declare them murderers, to kidnap Charlie etc. But all they are are keyboard warriers who have the courage to post what they post from behind their keyboards.

The very fact that they've had to create a facebook group which they have to moderate and approve all postings and do not feel at liberty to post their bullshit in the public domain speaks volumes about just how much power they don't actually hold.

By cutting and pasting and screenshotting their posts here and elsewhere surely people are just giving them free airtime and publicity? Yes, to the majority of us we know that they are halfwhits who clearly don't have a clue about the world beyond their laptops. But for every one who reads their posts here and rolls their eyes in horror that people with such uneducated conspiracy views actually exist, there will be some who read, digest, and then go and join their page to spew their own level of bile there.

Wouldn't it be better to talk about the court case, to talk about the hope for a peaceful time forward for Charlie, and let these muppets disappear into obscurity where they belong?

The fact that Donald trump has tweeted means nothing. There is not a chance in hell that this child is going to be granted US citizenship and swept out of the country. So even if they believe that can happen, let them. Whatever their cause is this week, next week it will be something else...

I'm sorry to hear Lonelymummy about your daughter.

Totally agreeing with Noeuf

I may disagree with the parents'actions but I absolutely defend their right to question the doctors' decisions and judgements. They are exercising their legal right to the court

They are not quietly challenging in the courts though, they are deliberately spreading hate about the people caring for their son in a very deliberate campaign on social media.

They have been posting from their personal accounts and whipping up the nastiness.

My concern is also for the medics and other staff being subjected to death threats when they had every opportunity to call a stop to it all.

muckypup73 i don't understand why there's a us page??
They're calling the judge corrupt too and complaining that chArlies been given morphine
I've never looked before as i don't have facebook, but there are loads of 'charliesarmy' pages!
This partlicular one was saying all of this crap.

Lonelymummyof1 Please don't look at all the craziness. I will hold you and your lovely DD in my thoughts

I've made my feelings on this case pretty clear and have found this thread generally very measured and informative.

However I do not think it's fair to criticise CA for blocking posters on FB yet harass and tell people who support Charlie's parents that their views are not welcome on these threads.

That's not to say we should not disagree or debate, but should do so with courtesy.

Equally, I think it's possible to have sympathy and compassion for the parents whilst not agreeing with all of their conduct - but again being respectful that they in a place of profound hurt.

Sostenueto no need to apologise. I hope your remaining days bring you and your family such happy memories.

I have a tiny girl waiting to give you a hug on the other side much love and strength to you and yours.

Lonelymummyof1, I have been thinking about you, sending all my hopeful thoughts to you and dd.

I'm scared that the parents have cut themselves off from sources of effective psychological support. I hope very much that there will be professionals able to help them that they feel able to trust. You can certainly see that they are barely able to look after themselves at the moment.

I agree with this, it's painful to see them too, not just Charlie.

Hopefully they can use some of the donations to access private counselling and therapy as I doubt they will want to engage with the NHS. They will need a lot of support in the near future to deal with what is, sadly, inevitable.

I've just looked at the Charlie's Army USA Facebook page. The level of ignorance is astounding. Apparently GOSH are colluding with the Government to "kill" Charlie.

It took all my strength to walk away and not post a counter arguement on every single comment.

Lonelymummyof1, sorry about your child,butits nice to know you will not see her suffer and also its great you never leave her side,because you do not know how long you have with her, and to be honest, theres a few things that annoy me about this,and one of those things is that their child is dying and all they would rather be doing is banners and protesting and tv and interveiws than actually dealing with it and spending quality time with their child who does not have a lot of time.

Sostenueto massive hugs to you