Charlie Gard Case 3

[LovelyBath77]

A new thread to carry on from the previous ones about the case

I agree, octopus ... in fact it might not even come to the parents sacking this latest lawyer if they decide to chuck it in themselves (especially given that they're working for nothing)

If I can offer one small chink of light, though, I not sure we need to worry too much about the Barmy Army storming GOSH, using bazookas, attacking the judge and all the rest. These idiots are big on keyboard activism but less keen about actually doing anything - as the pitiful numbers at the "rallies" shows. The huns might spit and snarl, but I don't think they're much good for anything else really

They say a little knowledge is a dangerous thing....a very little knowledge must be lethal because some of the comments on CA are just

Discussing the pharmacology of morphine suggesting anti epileptic drugs (original judgement said he's already on 3!) Instead and saying he is healthy...they just ignore every little thing that disputes the fact Charlie Hard is a very poorly, intubated little boy, probably in pain without any meaningful way to communicate that to anyone. It's heartbreaking.

*Gard sorry autocorrect!

Still interested to know why one of Rozenberg's tweets was pulled almost the instant he hit send: it being a tweet that Gollop asked something on behalf of GOSH about the parents making the 10% claim via media. Wonder if that breached the reporting restrictions in some way or if the BBC weren't comfortable sharing that.

It looked unfortunately as if there may not be any new evidence and this may turn out to be about the parents wanting to stall for two more weeks, in which time they hope considering more public pressure or foreign intervention or something will turn up to sway things in their favour. I'm very glad the judge refused to let things go on past this week.

Hope to goodness the senate throw this nonsense out tomorrow and they don't start getting involved.

I may have missed a bit of the story, but I don't think the Pope has been "fighting" for them. AFAIK, hasn't he issued a statement saying that he is praying for them and he hopes they can "be there for Charlie" - not at all the same thing? The Bambino Gesu hospital director said that Connie Yates had contacted her. So it feels like there's some muddying of the waters there.

LyraTheDaemon, thanks.

Maybe, but there only needs to be one who does a bit more than keyboard activism, doesn't there?

Also, having read more of the tweets now, yes I agree the parents counsel is going to be spectacularly pissed off, at a minimum, if the parents knew about the morphine but never disclosed it until now. He might also be professionally embarrassed, if they're going to try and argue he was aware of evidence they now say is significant. Could be left with no choice but to stop representing.

He must have known about the Morphine.

This whole situation just gets so much more bizarre and sad, the more I read about it. The court hearing today sounds like an utter farce. Although does seem like GOSH knew full well they had no further evidence, so was calling their bluff. Evidence off of the mother's phone FFS?

As for CA, a bunch of less intelligent, less deplorable people I cannot imagine. I do wish Facebook would shut down their page. With all the threats, slander, liable etc. on there I don't see how it is allowed to open remain. Although when I looked at reporting it I couldn't see any obvious category to report under, so maybe it's not breaking any FB rules.

At this point I also question the intelligence of the parents TBH. Desperate or otherwise they are acting like fools and denying medical facts (like his head not growing), it just doesn't make any sense. I do wonder if they have the intelligence to grasp what is happening and Charlie's state of health, which is further confounded by being egged on by the idiots that make up CA. Or maybe I am grasping at straws to understand why they are refusing to believe the evidence before them. IDK. I have never been in their position, and I imagine I would want to die, but other parents who have been through the unimaginable horror have put across their stories and the way Charlie's parents are acting does seem at odds with the majority.

can i just say hav thy mad up this 10 % chanc thing to stall turning off his life support?

last friday thy were willing to say goodbye then all of a sudden these claims came

it just doesnt add up

thye shold hav been removed for heckling the judge anyone else would have

CA are saying the morphine is because GOSH want to euthanise him and they're wankers that need investigating by Trump
FFS. Anyone that's so against the treatment by the hospital that means he is still alive now rather than dying straight away should have their NHS number revoked. Feel that strongly that the doctors are murderers, fine. But don't expect to receive any treatment from them then

At the end of the day if they don't let him have the Treatment then their saying murder is ok so at the end of all this if he doesn't get it we can kill all the horrible people who are involved because they think it's ok to do.

This from CA Facebook. The family need to shut that page down now. This is essentially a threat of murder no? Obvs I've reported it.

Not these tweets about the 10%?

I have lost all respect for these parents now. Do they not have any dignity left?

Let the poor baby die peacefully - not with this shit storm swirling all around him.

I have had a glimpse at the CA FB page and note that some idiot one had heard of a child with the same condition who had been given a special powder to put in their milk, which cured them. They were suggesting that as parents, C&C had a right to give Charlie a bottle of milk with this powder in Not realising of course that the poor child can't even breathe on his own, let alone swallow a bottle of milk!! If only it were that simple!!!

fakenamefornow I remember that, all I can say is that I did not join in and it was nothing in comparison to threatening to kill Drs and nurses, plus accusations of attempted nurder etc.

No of course. And posters did stop with the 'don't give up' message. I would bet in the early days of this the people around CA parents drowned out the factual information the medics were giving.

Yes, fair point.

there only needs to be one who does a bit more than keyboard activism, doesn't there?

That's true, but I imagine the hospital / legal security people could cope with one idiot and it's not as if they lack forewarning; it's more the threatened "mass invasions" I was thinking of

I also agree that the lawyer must be completely hacked off, but wonder if this is such a bad thing. After all, if he's kicking the office cat he won't be spending time finding some "expert" who'll back the case for a (large) consideration

Pop I quoted one of them on another thread a few days ago.
She said "death to those who want to end Charlie's life. If they take a life they should loose [sic] their life. thats what it should be" someone agreed with her and she went on to say ""agreed if they murder him they need to be murdered".

I reported it but FB took no action except to suggest I block her. I'll be interested to know what happens with your report.

Chris Gard and Connie Yates are prolonging Charlie's suffering, so they don't have to acknowledge their own.

This is not the natural order of a parent's duty to their children.
Report me if you want, I don't care. This is not what parents do.

I'm staRting to wonder who are worse tbh, the Charlies army mob or people who are obsessively posting about people who they don't even know, from their facial expressions, to the fact the child dad had his sunglasses on his head (( God knows what people think of me, i'm currently sat with my sunglasses on my head and reading glasses on my face )) when all I see is two people who.are wasting away from the hell of it all.

As for Charlie, my initial thought was hell, let him go........but thinking on it I know a few little Charlies, children who are pretty much unresponsive, they have machines breathe from them but are loved amd adored by their families. Should every child in this position have their breathing apparatus removed (( and there are many, I live in a small town of 60000 people and can name 3 off the top of my head )) These are children who are ventilated 24 /7 and paralysed. In fact my friends son goes to respite care at our local hospital, he's blind, deaf, he cannot breathe or move and has lived like this for 12 years. There's a patch on the back of his hand which we're pretty sure he can feel and we rub and tap this as we communicate with him. He cannot make sounds but can move his mouth at times but rarely, i've only seen him do this once. His respite care consists of being parked at the nurses station and monitored. Should all these children be put out of their misery ?? Should MN begin a campaign to have them put down ?? I think we're stepping on very dodgy ground if we start to suggest that everyone who is ventilated and non responsive should ve put out of their misery.

I've gone from thinking let him go to let him have the damn treatment, which is apparently a medication. It probably won't work now, he's too far gone. He should have been allowed it back in November (( and how unstable is this child if a couple of weeks ago they were able to transport him to the roof garden, theyre obviously able to move him )) the treatment will bring closure, they'll be able to.say we tried and it didnt work (( being left so long won't have helped )) and that's really important for a couple who have had their child turn into a toddler in front of them whilst he's dying at the same time.

I think that FB page is doing their cause more harm than good.

And if Pastor Chuck (or whatever his name is) is really trying to pass off today as some sort of victory for the Gards, he should take a look at Connie and Chris's faces when their lawyer was reading a statement outside court on their behalf. They looked broken and clearly had been sobbing at length.

Anyone know what that fracas was behind the BBC cameras (on BBC24) earlier? At around 4.30- 5? Some sort of skirmish and a bus in the background screeched to a halt. I tried to rewind but accidentally changed the channel instead!

From what's being reported it looks like there is no new evidence as such, just new medics that back the idea the drugs should be trialled on Charlie. I do not understand why they didn't appear in support at the last trial? When the U.S. Doc described himself as a 'lone voice'? Clearly he wasn't was he? Nothing can possibly have changed in terms of the scientific developments in 10 days and the drug has still only been trialled on animals. The sudden emergence of these experts after 2 of the most influential people on the planet have become involved is all very weird. I think we are very protected in the UK as our system is not for profit. In other countries where health care is profit driven doctors will have different views on what is accepatble treatment which the U.S. Doc kind of admitted in the original trial.

thatdearoctopus Comments on Twitter indicated somebody was hit by a news van... but it was just randoms on Twitter, so take with a massive pinch of salt.

Is he really a growing 'bonny baby' though or is that just oedema?

I've seen some utter hogwash on my fb suggesting that he is thriving and doing so well he is now on a diet. Chances are he is on a fluid restriction and as he is tube fed that looks like a diet instead. If an individual is oedematous you don't want a single drop more than the body can cope with

I've also seen it happen where the parents are at odds with the treating medical team so instead of the focus being on the sick child the focus shifts to battle mode.

Not a hcp by the way, just a parent of a child who has spent time in hospital

gizzafavour A doctor posted on the previous thread that he might be gaining fat because he can't move, so all calories are being converted to fat instead of muscle. Oedema also a possibility, maybe from organ failure. She said you can't tell from a photo.