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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Charlie Gard Case 3

954 replies

LovelyBath77 · 10/07/2017 14:15

A new thread to carry on from the previous ones about the case

OP posts:
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WannaBe · 10/07/2017 17:47

I don't know if this has already been suggested as haven't read all of the threads, but if enough people joined the CA fb page and posted alternative viewpoint threads, you could surely get the page to a point where the moderators just wouldn't be able to keep up with deletions etc and people whose opinions are starting to turn anyway would start to question and/or contribute to such threads, and the conspiracy element of the page would have to die a natural death as the alternative threads would outweigh the loon ones?

So in short, flood the page with so many threads that it just wouldn't be possible to delete them fast enough......

Stopnamechanging · 10/07/2017 17:50

WannaBe I tried posting a few days ago but got so much abuse that I found it too upsetting.
Personal comments about my dc etc and my looks.

Lemonading · 10/07/2017 17:50

If Charlie's Army was made up of middle class 'respectable' people, would your views be the same?

If they talked the same parents rights fact-free conspirawank, absolutely.

Sallystyle · 10/07/2017 17:50

"Lost all sympathy for the parents" really? I cannot believe what I am reading.
If Charlie's Army was made up of middle class 'respectable' people, would your views be the same? Or is your vitriol purely because the group is made up of 'huns'?

Huns? What are huns?

The group is made up of deluded, thick people who have no real shits to give about Charlie and his suffering.

If they were MC (and they might well be) I would still think they were disgusting.

I have sympathy that they have an unwell child. I have sympathy that their child will die. I do not have sympathy to the extent that I think their behaviour is anything other than cruel at this point. Their intentions may well be good. The truth is they are allowing their child who they are meant to protect from pain to suffer even more. I don't have sympathy for that at this point.

StiffyByng · 10/07/2017 17:51

I feel enormously for the parents facing the loss of their son. I worry at how they will be able to grieve healthily surrounded by such fervent and unhelpful 'supporters'. They may always blame GOSH for the whole situation and cling on to anger, or end up deeply regretting the last few weeks. Neither is an easy future. I don't agree with them but I wish they had somebody in their corner who could break through the hysteria. This is high level denial of the fact that Charlie would be very severely disabled even if the treatment was given and 'worked', but is in all likelihood dying, and the next stage is overwhelming grief.

The evidence deadline is not a sign that the judge doesn't trust in the existence of the new evidence but standard procedure for a hearing. Obviously if no new evidence is filed by Wednesday evening then the hearing on Thursday is unlikely to last long, but it will be. The guardian ad litem is standard and doesn't indicate that Charlie is a Ward of Court.

Katinkka · 10/07/2017 17:51

I've also lost any sympathy I had with the parents because I think the right thing to do would be to let the child slip away and rest in peace. Instead he is being kept artificially alive while the parents gather funds they don't need and argue pointlessly with the hospital and courts. It is completely out of hand and is extremely damaging to both the hospital and the other people who are being treated or have family there. Prolonging Charlie's life is prolonging a non existence in which he can neither see nor hear and is probably in pain. I wouldn't treat an animal like this and I wouldn't be allowed to.

I think the parents are deluded and selfish and the same goes for the fb group which is the largest collection of halfwits I've seen for a long time.

angelnix · 10/07/2017 17:52

My heart breaks for this little boy, it has got to the point where his "Army" aren't thinking about his best interests at all now and are deluded.

Just seen this on the CA FB page -
" I think the only chance of stopping this ow is if we all interviene! we need to get into gosh and take this boy out before its too late! Trump needs to get some doctors here asap to do this with us. i will happily break the law if it means Charlie lives!"

Yes, that's the sensible thing to do - storm a Children's Hospital disrupting everyone to pull a child out who will ultimately die in your arms.

sodablackcurrant · 10/07/2017 17:52

If Facebook didn't exist, how would this have panned out I wonder.

LovelyBath77 · 10/07/2017 17:53

They'd just remove you from the group if you did that probably Wanna, and delete the posts.

Yes you do have to be careful with odd groups etc on FB, the best think is just to stay away from such things. For my own medical condition there are strange 'cure' sites, (unproven costly treatments for an incurable condition) and if you question anything they delete and block you. A lovely way to treat people, I'm sure you'll agree.

OP posts:
LovelyBath77 · 10/07/2017 17:55

I'm sure the majority of the public will think of GOSH as a centre of excellence which is how I always think of it. Thankfully most people aren;t aware of or in these 'groups'.

OP posts:
angelnix · 10/07/2017 17:55

WannaBe - you now have to answer a multitude of questions to even join the group

SilveryFlowers · 10/07/2017 17:55

excellent. Storm a hospital. Great idea.

FFS

DailyMailReadersAreThick · 10/07/2017 17:56

If Charlie's Army was made up of middle class 'respectable' people, would your views be the same?

Yes. It's about what they're saying, not who's saying it.

Or is your vitriol purely because the group is made up of 'huns'?

I don't have any vitriol but my anger comes from the fact that a defenseless baby has been enduring torture for months when there is no hope of recovery. Can you imagine the torment he must be in if he has any form of awareness - which he probably does, as he isn't brain dead? And these people are clamouring for him to be kept in that hell for as long as it takes his body to fail naturally. How can that NOT make you angry?

11122aa · 10/07/2017 17:56

I can see some crank or two trying to storm the hospital at some point.

RJnomore1 · 10/07/2017 17:57

Oh my. Not got time to read the thread just now but I've read about the bike comment in court and I think they've actually gone insane with grief.

WannaBe · 10/07/2017 17:58

"If Charlie's Army was made up of middle class 'respectable' people, would your views be the same? Or is your vitriol purely because the group is made up of 'huns'?" does middle class make one respectable then? Hmm but either way, given there is nothing respectable about the way that group is behaving I think it matters not what class they represent. And as an aside, how can you possibly know they're not middle class?

angelnix · 10/07/2017 18:00

11122aa sadly so can I. I expect that they have much heightened security there at present anyway, but there will be some nutjob who tries to get in to "save" Charlie. I really do feel for the staff working there trying to care for some of the sickest kids under this awful shadow. And my heart goes out to the parents and families who are receiving treatment there, especially in the ICU, with this shitcircus carrying on around them. If I was there as a parent, I would really struggle to keep my mouth shut to them.

pigsDOfly · 10/07/2017 18:00

Father yelling at the judge at the hearing this afternoon that the doctors are lying. Are these people listening to what's coming out of their own mouths.

So now Charlie's on morphine because the doctors are unsure about how much pain he's in and want to protect him. Do his parents and the baying mod surrounding them think the doctors are lying about that as well, and what do they imagine is the motives for these lies

This is so sad. That poor little boy. Few parents of a dying child would blithely agree to life support being switched off but most accept what's in the child's best interest and know when to say enough is enough.

This is no longer about Charlie, it's all about his parent's demanding their 'rights' and an ignorant mob firing them up and getting off on their own indignation.

The judge needs to make a decision one way or the other - assume this will happen on Thursday - and if that decision is that life support must be switched off, it should be done as soon as the parents have had a chance to say a final goodbye.

No one is being served, least of all Charlie, by continuing this ghastly circus.

MirandaWest · 10/07/2017 18:02

I think all posts made on CA are moderated so you just wouldn't be able to post anything that isn't positive as it wouldn't get posted

annandale · 10/07/2017 18:03

I don't think a bunch of posters suddenly appearing and posting on the CA group would help at all - i think that the whole group would cluster together to eject the intruders, and the posters who perhaps are having second thoughts about how to support the family would drop their doubts as well.

LyraTheDaemon · 10/07/2017 18:03

I've reported the CA page on Facebook, not that I think anything will happen from it.

It's a different situation but I had to make a decision about whether or not to turn off my Nan's life support in NCCU. I didn't want to believe the doctors when they told us she had no brain activity and nor did my Grandad, but ultimately we listened to the professionals and the evidence and concluded that we were just being selfish by keeping her 'alive'. It wasn't what was best for her, it was best for us because we didn't want to let her go.

I did sympathise with the parents but this media shitstorm isn't helping anyone, least of all poor Charlie.

frankie001 · 10/07/2017 18:04

This is just a horrible situation, not helped by the ignorance of many of CA members. I hope the judge continues to make the right choice for Charlie.

Stopnamechanging · 10/07/2017 18:06

They bully anyone who asks questions, they recently turned on someone in the last hour and booted her out.

TheWeeWitch · 10/07/2017 18:07

@WannaBe I think the comments are pre-moderated, so they won't show up publicly unless the admin approves them.

Butterymuffin · 10/07/2017 18:09

Watching the BBC news report on this. It hasn't been great so far in that it hadn't said that the parents haven't brought the new evidence to court yet. They then interviewed someone (didn't get his name) who said that at one point a text had been read out from Charlie's mum's phone in response to the judge requesting the new evidence. That gives a better sense of how little robust information seems to have been presented.