Page 17 | Charlie Gard Case 3

LovelyBath77 · 2017-07-10T13:15:38+00:00

A new thread to carry on from the previous ones about the case

Puzzledandpissedoff · 10/07/2017 17:19

Thank you for your valuable insight, Writerwannabe83 - it's always interesting to hear from those who work in this field

LogicalPsycho · 10/07/2017 17:20

@Writerwannabe83 excellent post. Thank you.

parallax80 · 10/07/2017 17:21

As an aside, I came across this book a few years back which touches on lots of the issues raised here about mob mentality, sentimentality etc etc (I don't agree with the author about everything and in places he comes across as pretty patronising but it definitely made me think)

www.amazon.co.uk/Spoilt-Rotten-toxic-cult-sentimentality/dp/1906142254?tag=mumsnetforum-21

lemonsandlimes123 · 10/07/2017 17:22

The way that the parents are behaving is outrageous. As a pp said, simply having a sick child does not make them untouchable. There are thousands of horribly abusive parents, do people really think that none of them have sick children? The fact that they both choose to be in court or on tv together rather than one remaining with their chid speaks absolute volumes. This is about them, not the child and people need to be able to point that out.

AcrossthePond55 · 10/07/2017 17:22

I'm afraid that Charlie's mum's brain has, for lack of a better word, 'broken'. I think she is delusional to the point where, in a different set of circumstances, her parental rights would have been either suspended or terminated due to not being able to make rational parenting decisions. Charlie would have been made a ward of the court long ere this if we were talking about medical treatment for diabetes, 'praying away the gay', or suchlike. I don't seem to hear as much insanity from Charlie's dad, but I'm not on FB nor in the UK so I don't know if he doesn't speak as much or if he's just less 'TV time worthy' than a 'hysterical mother' is, ratings wise.

I remember when my dad was on hospice they explained to us that Morphine was a respiratory depressant and that eventually his body would weaken to the point where the Morphine dose would most likely stop respiratory function altogether. Dad was in such pain and his condition was so heartbreaking that we were at peace with this and Dad died peacefully and painlessly, thank God (and those blessed hospice nurses).

If Charlie is on Morphine, I wonder if this will happen to him? I know he's on a respirator but will an EEG show somehow that his brain has stopped its respiratory function? Will they start to withdraw the Morphine if they detect it?

Sallystyle · 10/07/2017 17:24

That poor poor child.

The parents? All sympathy gone. This isn't about what is best for their little boy any more. They have got swept away in this media storm and instead of spending time with their dying child they are too busy fighting for things which aren't in his best interests because they have been carried away in this media circus.

Utter selfishness at this point.

That poor child, let down by his parents. Not one adult would want to live this way, not one. WTF anyone would think it's ok for Charlie to live like this is beyond all comprehension.

I agree with you completely wannabe

Laiste · 10/07/2017 17:26

Interesting how many on these threads aren't on FB. Including me.

LogicalPsycho · 10/07/2017 17:26

However, can anyone honestly say that they wouldn't do the same in Charlie's parents position? They are DESPERATE

Sadly, hundreds of parents are DESPERATE to keep their babies with them every single day. Around 350,000 babies are born every 24 hours in the world. Some do not make it. That is what keeps me sane.

This has gone too far, and I find myself going between wanting to hug Connie Yates, and wanting to shake her in frustration at her blindness to how desperately sick he is.

Rachel0Greep · 10/07/2017 17:29

Great post writer.

WannaBe · 10/07/2017 17:29

I am on FB but I haven't been on to the loon threads. I stick with my own timeline. .

Co1onelblimp · 10/07/2017 17:29

I heard Connie Yates on a radio programme earlier talking about 'new' treatment. She is in complete denial.

Puzzledandpissedoff · 10/07/2017 17:30

Interesting how many on these threads aren't on FB. Including me

+1 ... although admittedly I used to be

OvariesBeforeBrovaries · 10/07/2017 17:31

I am so fucking sick of these illiterate, ignorant arseholes on FB with their "what do doctors know? parents know their children better 100% of the time" bullshit, but the worst of all has to be all the "it's so cruel to pull the plug", "it's murder" etc. Absolute fucking arseholes.

These are the decisions that, unfortunately, some parents have to make, because it's the kindest thing for the child. My parents have had to make that decision, and it makes me so fucking angry to see idiots calling it murder and "inhumane" and "cruel". I am really struggling to find sympathy for Charlie's parents now, they are dragging this on and making villains out of not just GOSH, but all parents who've agreed to remove their child's life support.

smilingmind · 10/07/2017 17:31

Thank you parallax. That book is on kindle unlimited so have downloaded it.
Charlie has a guardian ad litem in court to represent his interests. My children had one when we adopted them. I am not sure if they have any jurisdiction outside the court but have the impression they don't.

Redglitter · 10/07/2017 17:32

They believe this new treatment will give him a chance of a normal life and to be a normal child out playing on his bike. Really??

It's a shame that for Charlies sake GOSH didn't withdraw treatment before this got so out of control

JigglyTuff · 10/07/2017 17:34

I suspect they were threatened Redglitter - they have been under immense pressure of litigation.

DarthMaiden · 10/07/2017 17:35

I imagine the medical staff treating Charlie feel pretty desperate as well.

Being asked to continue treatment that they believe is contrary to his best interests and causing him suffering is a direct violation of the Hippocratic Oath.

We obviously don't know what's going on within the hospital but I can't possibly see how relationships between the parents and staff are not being strained. I'm sure GOSH are maintaining the utmost professionalism but it must be really hard to read/listen to criticism of their efforts made my the parents and CA in the media and potentially face to face.

I really feel for them - the strain must be incredibly difficult to bear.

Sallystyle · 10/07/2017 17:35

I'm quite shocked that members of a parenting forum are speaking this way about Charlie's parents.

Being a parent is about putting your child first in important matters. It's about realising love is sometimes about doing what is best for that child and not wanting their pain to continue just because you can't stand to let go.

I had heaps of sympathy for them. I never blamed them for wanting to fight when there was a small amount of hope for him. It's natural.

But at this point they should be spending time with their child, shutting the rest of the world out and being with him in his last moments.

I can't imagine the pain of losing a child. I get fighting, I get denial, but at this point it has gone beyond all that and has turned into selfishness that is not love. It's gone on too long now and it is cruelty. You would not let anyone else you love go through this, you would not stand to see your parents 'live' in the way Charlie is. They have lost sight of that. It's not about Charlie anymore.

So I will judge them. I will judge them for supporting the group of people who are abusing the very people who are doing their very best to keep their son as comfortable as he can be.

Parents sadly lose their children every day. Many of them realise when there is no more hope and they don't support social media groups to abuse those who have looked after their child and they don't put their child through more pain than they have already gone through.

DailyMailReadersAreThick · 10/07/2017 17:36

I really think general public opinion is with GOSH. It's just that CA are so shrill (and we keep sharing their posts because we're so gobsmacked) that the view seems a little skewed.

My mum is a tabloid paper's dream reader - she's not a very critical thinker and tends to believe what she reads. And, without her knowing any of my views on the subject, when the case came on the news last night she broke into a rant about how selfish the parents are and how much Charlie must be suffering. If that's the view she's got from the media, I expect many others have, too.

Also, grr at ITV news just now referring to "Charlie Gard's fight to live." No, it's his parents' fight for him to live. The hospital and Victoria Butler-Cole are fighting for Charlie.

DarthMaiden · 10/07/2017 17:36

@U2HasTheEdge

Great post

kungfupannda · 10/07/2017 17:39

I just looked at that Facebook page for the first time and I wish I hadn't. How can there be so many deluded people in the world?

The twists and turns they're all making in order to keep believing are terrifyingly reminiscent of the crowds in 1984 who instantly change their views depending on what they're being told at any given moment. So one minute the CA are fuming at the delay due to the proposal for a hearing on 25 July, then as soon as someone points out that the date was proposed by Charlie's parents' lawyers, it's all wonderful and will give plenty of time for new evidence. Any discrepancies in the parents' case are explained away by ridiculous twists of logic, and anything GOSH say is dismissed as a complicated conspiracy.

It's actually terrifying.

LapinR0se · 10/07/2017 17:40

Maybe someone already posted this...but during the live hearing there was a thread on the CA page with 1.5 thousand comments, many of which were aghast that there was no evidence for the 10% claim. That thread was deleted pretty much instantaneously when the judge wrapped up proceedings

TheWeeWitch · 10/07/2017 17:45

@LapinR0se and this kind of comment is all over the CA page.

barkinginessex · 10/07/2017 17:45

"Lost all sympathy for the parents" really? I cannot believe what I am reading.
If Charlie's Army was made up of middle class 'respectable' people, would your views be the same? Or is your vitriol purely because the group is made up of 'huns'?

I completely understand that other parents have been through similar harrowing experiences and didn't act in the same way as Charlie's parents, however some of these comments are awful and make you sound just as bad as the Charlie's Army huns...

Alfieisnoisy · 10/07/2017 17:47

This child now needs to be made a ward of court. His parents are no longer able to prioritise his needs and that's crucial at this time.

I agree that in their grief and despair they have been manipulated by those who think they have Charlie's best interests at heart when they don't.

That baby is swollen with odema ...there is nothing "bonny" or "chunky monkey" about it. He is dying and would have passed long ago without the machines to keep him alive.