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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

See all MNHQ comments on this thread

Original poster

AIBU to think that thousands of people loving charlie and bradley is some what false.

999 replies

Lonelymummyof1 · 01/07/2017 07:29

I know exactly what It is like to have a poorly child same as hundreds more parents in the uk.
Set aside my belief that I believe that bradley has very little dignity and both him and charlie are now used as some weird sort of click bait.

The supporters I do not understand it ?

We love you, we are heart broken and we will miss you.

Now I get empathy but this is not empathy this is media posts just gone crazy to write the most heart breaking post they can.
I wish neither of these children would have to lose their life and can undetstand the parents pain just like the rest of the terminally ill children in this country.

You can feel sad that these things happen but this just seems weird and could not imagine allowing a nation of people watching my child pass away.

I mean how many of them 2 years from now will wake up on the morning of their anniversary and automatically remember them ?

OP posts:
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TheWeeWitch · 05/07/2017 15:47

... and staging pictures for them.

QuackPorridgeBacon · 05/07/2017 15:51

April fair enough, then I apologise. I can come across quite cold myself but she didn't. She seem uncaring and only popped in to see her son every now and again, while meeting up with family in the waiting room or sat on her phone constantly on charge, or going out for a fag laughing with family members while her ex was sat there looking distraught.

I get that they weren't together but blimey, in that situation you would make an effort to communicate right?

DarthMaiden · 05/07/2017 15:51

What I still fail to understand is what outcome his parents are trying to facilitate here.

The US doctors have confirmed they can't help him.

He's too poorly to be moved.

What benefit is there to keeping him passing away peacefully?

Even if a cure for his condition was miraculously found, his brain damage is irreversible.

How long would you keep him in this state? 5 years? 10 years?

QuackPorridgeBacon · 05/07/2017 15:52

It's easy for them to keep him this way when they are doing none of his care.

alpacasandwich · 05/07/2017 15:52

There was a weird photo of the mum wearing a baby's top and commenting on how much weight she'd lost with baby Charlie lying on the ventilator in the background. Hmm.

QuackPorridgeBacon · 05/07/2017 15:52

Well they may do nappies and bathing etc but they aren't doing the hard graft.

QuackPorridgeBacon · 05/07/2017 15:53

Alpaca that is sick. Angry

alpacasandwich · 05/07/2017 15:55

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AprilLudgateDwyer · 05/07/2017 16:01

@QuackPorridgeBacon

No apology needed! It's a hard one to call. Some people just are uncaring!

Original poster
Lonelymummyof1 · 05/07/2017 16:02

Tbf may start defending them slightly.
When you are in hospital a very long time you tend to end up balancing things and still have monents of friends and fun. Not so much fun bit normality almost.
Because this is now the normal, does that make sense.

OP posts:
Original poster
Lonelymummyof1 · 05/07/2017 16:05

Oh ffs I commented again 😂
I need to stop

OP posts:
alpacasandwich · 05/07/2017 16:06

I just think using a baby on a ventilator as a prop in a funny selfie is a bit inappropriate. Throughout this whole thing he's just treated like a doll, dressed up in Charlie's Army t-shirts, wristbands put on him etc.

QuackPorridgeBacon · 05/07/2017 16:07

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QuackPorridgeBacon · 05/07/2017 16:07

Arpil thank you, I agree it is hard to call. I should try to judge less lol

handslikecowstits · 05/07/2017 16:08

Someone please put me straight if I'm incorrect but I read this in the Guardian and it seems as if this could run for months!

The family’s local MP, Labour’s Seema Malhotra, used PMQs to say that while the chances of the US treatment helping Charlie were low, doctors could say within three months whether he was responding

Article here: www.theguardian.com/society/2017/jul/05/charlie-gard-hospital-will-consider-offers-theresa-may

Does that mean that they're not going to let him die any time soon? I can see this whole thing escalating even more.

indigop · 05/07/2017 16:08

You lot are getting as bad as the Facebook "hun's" & no im not one of charlies army nor part of the angry mob, the parents are dealing with the unimaginable who knows how anyone would react have some compassion . for all we know they could have suffered a breakdown with all the stress .stop baying for there blood so what he had sunglasses on his head in the photo perhaps he went out for a drink it's boiling hot and blindingly sunny in London . is he supposed to walk around nude and not drink or eat because his child is dying ?

QuackPorridgeBacon · 05/07/2017 16:09

I get what you mean Lonley I just find that weight loss picture in such bad taste.

I did used to joke around with things like auctioning and would tickle my own nose with it 😂 My partner wouldn't even give it a go.

stopfuckingshoutingatme · 05/07/2017 16:09

It's odd but the thing that strikes me most about that photo is that he's got sunglasses on his head. It's like some sort of weird "Hello" style parallel universe photo

if we have got the stage that we are slagging off the parents for this, that's fucking low

try facing the worlds media with red eyes, when you have not slept or have been crying.

we are all different. Differently educated , and handle shit differently.

When I was at GOSH there was a girl who was in foster care. as she had NO visitors they had to have her in a more HDU wards as normally kids have parents on hand to care for them.

some of the inferences here are distasteful

QuackPorridgeBacon · 05/07/2017 16:11

indigo I think you'll find some of us on here understand more than anyone in the "army". Thank you for your view though, I agree maybe judging their choice of accessories is a bit too far. They have ruled so many people it's understandable though.

QuackPorridgeBacon · 05/07/2017 16:12

Riled*

indigop · 05/07/2017 16:12

Why does it matter to any of you when charlies life support is switched off either again your as bad as the "army" & the fb mob leave them in peace just like your asking anyone with a different opinion to yours to !

QuackPorridgeBacon · 05/07/2017 16:12

Auctioning not auctioning.

QuackPorridgeBacon · 05/07/2017 16:13

Suctioning fs

QuackPorridgeBacon · 05/07/2017 16:14

Because we have a heart and have seen first hand what this is like and it isn't fair on Charlie to be paraded like this.

What is your reason for commenting?

MommaGee · 05/07/2017 16:14

Lonelymummyof1 tie sad thing is 5 minutes later she was probably sat down playing with his hair or stroking his hand or giving evils up the machines and that much more natural photo would have said a hell of a lot more. I wonder if he's turned away because his eyes are closed and he looks poorly.

QuackPorridgeBacon I will say though everyone deals differently. I'm sure the families around us thought we were frigging cuckoo. We read and sang constantly, as Michel laughter as we could muster and that was twice daily reputations of how low his chances were. I just needed him to know that the words outside his box was full of love and more exciting. I needed how to know that he WOULD get better because it was the only way to function. I hope the other parents just thought I'd lost it not that I didn't care x