AIBU to think that thousands of people loving charlie and bradley is some what false.

[Lonelymummyof1]

I know exactly what It is like to have a poorly child same as hundreds more parents in the uk.
Set aside my belief that I believe that bradley has very little dignity and both him and charlie are now used as some weird sort of click bait.

The supporters I do not understand it ?

We love you, we are heart broken and we will miss you.

Now I get empathy but this is not empathy this is media posts just gone crazy to write the most heart breaking post they can.
I wish neither of these children would have to lose their life and can undetstand the parents pain just like the rest of the terminally ill children in this country.

You can feel sad that these things happen but this just seems weird and could not imagine allowing a nation of people watching my child pass away.

I mean how many of them 2 years from now will wake up on the morning of their anniversary and automatically remember them ?

I think the photo is cleverly taken to avoid Charlie's vent and tubes. So he looks like a "normal" baby and not the lifeless form that he really is .

Can we ask folks not to post potentially identifying screenshots from Facebook on the thread, please? We've had to remove a few and we don't think it's quite cricket.

Yes MommaGee exactly that !
I do feel this is heading towards judgijg the parents for everything they do which was not my intention at all.
Its charlies army and yes the larents media sprawl but not the behavioir towards their son.
Sunglasses - we were in hospital not long ago when it was 34 degrees outside.
My sunglasses were with me haha

It matters when his life support is switched off because in the middle of all this there is a little boy who is almost certainly suffering.

Been following the thread only commented because it's got to the point of slagging off the parents -and I think that's disgusting whatever side of the fence you sit . As a mother my heart goes out to them horrendous hellish situation & they should receive only compassion .

What gives me some hope though, is that in the UK, there are 19.9 Million registered Facebook users over 18yrs old.
Charlie's Army, and the associated groups, total around 400,000.

I hope that means there's 19.5million Social Media users who, because they have a brain, trust that the medical experts, specialists, legal experts and High Court officials have all come to this decision with Charlie's best interests at heart.

so I'm going presume that means there's an overwhelming majority of people who also trust that the medical staff at GOSH have done the absolute most that is possible for Charlie Gard.

But because of the mob mentality and threats to hijack ambulances coming from Charlie's Army, the silent majority have the common sense to not try and argue with stupid.

I'm not judging his choice of accessory I purely said that that was the thing which drew my focus. Not their pain, not charlie's condition, not anything other than how ludicrously and inappropriately (to my eye) staged that photo is. Whoever is advising them is doing a really bad job. They could have produced a much better photo than that, one which would focus on their child for example and not on them. That's the crux of the issue really.

When the sunglasses becoming a talking point rather than the poorly baby, there's an issue.
It's no longer about Charlie and what is best for him, it's turned into it being about them and it's becoming a circus.

My heart is truly breaking for his parents by the way but now is time to step back from the media, for their own sakes too.

momma honestly you sound great, I must have seemed like such a heartless Mum. If I wasn't expressing I'll admit I was on my phone a lot by her bedside. I wasn't allowed to speak to her I wasn't allowed to touch her or change a nappy and all I could was sit there, if I looked at her for too long (one time her face was so swollen and her eyes were written down as swollen shut she had to have some sort of cream on her eyelids to keep them from drying) I would breakdown, but I didn't want to be away so I used to sit on my phone checking her machines every few minutes, if I wasn't on my phone I was checking every number on every machine and watching all her different mess being pumped through and watching how much she had to have just to keep her body doing it's basic functions. I wish to never return to that awful silent lonely life.

We wept out to Pizza Express during one of Ds's operations. God knows what they would have thought if theyd known. But we expected 5-7 hours, Pizza Express is all but across the road to BCH and it was our 4th wedding anniversary. You need to eat, breathe, stare at different walls.

We also got kicked out if thryd needed to operate on the kids in adjacent beds on PICU so whet DS had a long line in us and everyone around us had to leave for 2 hrs

this thread is getting nasty now some posters are as bad as CA scouring the media for pictures of the parents No one knows how they would feel unless they were in Charlies parents shoes, and FWIW Iam of the opnion Charlie should be allowed to die peacefully as quickly as possible so what if charlies dad is wearing sunglasess FFS.

Why couldn't you talk to her? I'm assuming she was really prem?

momma I hated waking up and going to the ward only to be told we couldn't come in, I understood why and I respected it but when little one has had a particularly bad day I would get so worried and so anxious. It's why I started smoking again. The stress of that life is awful.

MommaGee the advice i always give for surgeries is get out off the hospital x

How do I send someone a PM ? 😂

I only ask cost that seems bloody cruel to you. Tbh the ably other parents I noticed were the ones who god to do kangaroo care and that was pare jealousy. I think were all entitled to being a bit judgy in there

momma nope, not prem at all. She was 10 days over due! Couldn't talk or touch her as she would get to excited and heart rate would either rise or fall dramatically, her oxygen levels would drop.

I remember holding her for the second time at 8 weeks old, the nurse closed the curtains around us and handed me my baby she said "sometimes you need this more than they do" (I will never forget those words and I still cry when I hear them) I was shaking and crying so much at being able to hold her, then we seen the machines (I must of held her five minutes, if even that) everything fell she was looking like she would go into arrest, I did that to her. The nurse had to quickly get her back into her bed and resettle her and up her sedation a bit. It was heart breaking.

She was born with a rare heart disease, no cure and only treatment that didn't work on everyone. She was in confirmed heart failure by 4 weeks old.

BCH has a café in the conservatory which is peaceful, we had A LOT of fried chicken in there haha

Oh Quack you didn't do it. She must have felt so good being in your arms xx

Ahh gosh are hospital has the worse food selection ever the road by the council os banned to sell fast food 😂😂
Its a upper class road in london and meals locally cost more than a daily wage lol
There is a "canteen" that is shit and shuts at 2pm 😂
I always lived going to GOSH for the food haha

By the way i pm you mommagee x

She didn't show it lol trying to give me a heart attack when it happened. Have a lovely picture of me and my partner from it though.

I'll be reminding her when she's older all the times she scared me, i be grabbing her for hugs for years to come to make up for it all lol

What NICU /ICU was you on quacks ? Xx

Me and my partner holing her* that should say.

I'm over in Northern Ireland lonley. Could have ended up in GOSH (hence my huge respect for them) but the Freeman in Newcastle had a bed first.

Well outed myself now haha

We have been in GOSH CICU it is like nothing you have ever seen before.