AIBU to think that thousands of people loving charlie and bradley is some what false.

[Lonelymummyof1]

I know exactly what It is like to have a poorly child same as hundreds more parents in the uk.
Set aside my belief that I believe that bradley has very little dignity and both him and charlie are now used as some weird sort of click bait.

The supporters I do not understand it ?

We love you, we are heart broken and we will miss you.

Now I get empathy but this is not empathy this is media posts just gone crazy to write the most heart breaking post they can.
I wish neither of these children would have to lose their life and can undetstand the parents pain just like the rest of the terminally ill children in this country.

You can feel sad that these things happen but this just seems weird and could not imagine allowing a nation of people watching my child pass away.

I mean how many of them 2 years from now will wake up on the morning of their anniversary and automatically remember them ?

From what I can see, before the case went to the European courts, it was ruled to extend the date of turning off the machines to July 10th to give sufficient time for the European courts to make a decision.

They made they decision (i.e. Not to do anything different) sooner than that. I don't think the 10th july has any relevance now

Not sure if this was just my experience and the things I've seen on TV/films etc.
But usually when people are withdrawing life support the patient is unresponsive and their eyes are closed. Am I right?
I have seen picture's of Charlie with his eyes open, I know he can't see, hear, swallow or breathe on his own. But this does help me understand where the parents are coming from. The eyes are the window to the soul. This comment is probably in bad taste and will be deleted. I don't mean to upset anyone. It's just been playing on my mind.

Yes I would mommagee in prespective....

DD has had in 3 an half years over calculating on the top of my head over 800 days in hospital including ,

Blood transfusions, open adominal surgery, open heart surgery and many more trips to theatre.
Vents , other breathing machines etc

Her iv nutrition costs them around about 450 pound a night.
X

Maudlinmaud I keep seeing that photo too but I'm not sure how old it is or how responsive he is now. The issue of course is conflicting stories and an inability of GOSH to talk

Momma you are likely correct. When df sedation was reduced he tried to pull out his vent and other wires and it put a massive strain on his heart, that they had to up it again. He still had no hope of getting better.

Opening your eyelids or them being opened is possible with brain damage its just there is nothing in them.
Even under sedatation on vent i could open my DDS eyes x

I've had to give up reading the page as it just upsets and enrages me too much. These people having the audacity to tell world renowned experts, doctors, nurses, lawyers and anyone whose actually bothered to read the court report that they don't know what they are talking about and don't know the details of his case. As opposed to them, people who have done no research, have never met Charlie and are just whipping themselves into a frenzy based on conspiracy theories. It's almost laughable. If you attempt to talk rationally you are shouted down as negative, a hater or murderer. Makes my blood boil seeing the awful things said about the GOSH staff when they have actually been the ones caring for him since day 1 and trying anything to help. I can't imagine how heartbreaking it is to be painted in this light. And of course they can't (and wouldn't) discuss a patient's care so their hands are tied.

Whatever happens now the outcome remains the same and that is that he tragically can't be cured and will not survive. These idiots will continue to cry murder though- even if he went to the States and it was proven the treatment wouldn't work then somehow it will be because GOSH waited too long, or didn't diagnose him properly etc. There's no reasoning with stupid.

Someone also commented about the idiots on mumsnet and what assholes we are

for those who have been through similar experiences.

Maudlinmaud I don't want my comment deleted either so will phrase carefully.

That photo of CG with his eyes open is deeply saddening and also quite disturbing to see, having seen someone within my own family non-responsive but with half open eyes. It looks haunting.

DD2 sleeps with her eyes half open, and I always close them because it is unsettling to see open but totally blank eyes.

I believe this is one of the reasons why, when people die, their eyes are closed straight away (if they weren't already).
Of course we do this because we associate having our eyes closed with sleeping, being at peace.
But also, because to look into the eyes of somebody who has no brain activity or is totally unresponsive, is deeply traumatising.

This Morning is pretty harrowing bet seems fairly neutrally done

Just got clarity. I was referring to two different people. A family member in critical care, and also the fact my daughter sleeps with her eyes open.
I wasn't suggesting that DD2 open-eyed sleeping reminded me of CG.

Oh that was cut abruptly...

What happened momma. I missed the show?

I hate this argument that the parents own a child. There are so many bad parents in the world.

They did a call in.
First one saying we extubated and expected baby to die but she lived. We took her home and now she's 8!

One who said for 2 yrs DS was in pain and dying but breathing. Signed a DNR. They mistakenly intubated , we couldn't give him the peaceful ending he deserved. She was clearly upset, they kinda talked over her and but her off then offered off screen support and went to break because they were all upset. Can back after break Andy t was a makeup segment!

Also the play God comments piss me off.

Yes the doctors do. They played God and pulled him from my body and resicitated my son and operated on him to save his life numerous times. If it was left to "God" he'd have died inside me or minutes after birth.

Parents on here with much more stark stories - all their Doctors played "God" to toy and keep their children alive.

Why is it only playing God when its a withdrawn of treatment?

Momma it's only playing god when they do something these people disagree with. Otherwise it's "giving him a chance".

Thank's momma. Sounds like a very hard interview.

There was a call in and interviews at the start too which I'm watching on catch up. No idea why I'm doing this to myself. So many poorly poorly babies :'(

I think the photos are definitely part of the problem. Like this from the DM today - it's NOT a picture of Charlie at 10 months! Very misleading to those who can't/won't think beyond the hysteria.

They also keep quoting the King case. If you read a bit more on it there's actually a lot to it and they weren't offering no treatment to that little boy just a different one than the parents wanted.

If you're going to use the 'Playing God' argument, then you need to at least be consistent.

Yet comments like this are, like many arguments centred around religion, used to fit an agenda. People cherry pick which part strengthens their argument, while ignoring the ones that weaken it.

As Momma said, performing a Cesarean Section would technically be 'playing God', since it's interfering with the natural succession of events.
And thank goodness (not God) that Doctors do it.

When Charlie started to deteriorate with his illness, that was his body accepting its decline and trying to give up an unwinnable fight.
So why wasn't it seen as 'playing God' by ventilating him then?

And now, now Charlie has deteriorated to the point that the machines are doing everything for him.
Aren't the people fighting a High Court ruling trying to play God by proxy?

They are trying to force Doctors to use science and machinery, to keep a stricken boy's body 'alive', when his poor brain has already ceased to function.

But it seems that 'playing God' is only a negative act if you don't agree with the decision.
Because nobody would go crazy with a doctor 'playing God' and rushing their DC to theatre for a burst appendix.

I've seen the argument about terminally ill adults not being allowed the right to end their suffering. But that's not a fair point at all. Adults on life support with no brain activity are in Charlies position every day and the families have to make these decisions.

Now theress may has come foward and has not gone there way.

" why she sticking her nose in"

Erm you asked her to 😂😂😂

25,000 people in fact asked Theresa May to get involved!

A Change.org petition requested she intervene and 25,000 people requested her involvement.
And now she hasn't towed the CA line, they wonder why she's "sticking her nose in"

I am not a Theresa May fan but am very glad she has said that she is not about to overrule anything and that there is a legal system.

Charlie's Army obviously very not happy of course