to think under these new rules no one will qualify for PIP .....the replacement for DLA.

[HelenaDove]

Looks like the ruling has been created retrospectively in a hurry.....a bit like they did with workfare.

People with epilepsy and dementia arent going to qualify Utterly disgusting.

www.msn.com/en-gb/money/news/tory-ministers-have-rewritten-the-law-to-deny-increased-disability-benefit-payments-to-more-than-150000-people/ar-AAngTpD?li=AA54rU

What do I do in the case of my adult ds who has autism and mental health problems but totally refuses to engage with mental health professionals? There will be no recent paperwork to support his review of PIP that's coming up soon and I'm terrified his money will be taken away. He totally refuses to apply for ESA due to his terror of seeing or talking to strangers and has been known to run away and sleep rough rather than face seeing a GP. He's had one PIP assessment and it was terrible. He'd been seen by the emergency mental health team days before after being dragged out of the sea and they rang the PIP assessor to say please don't go out to this man, he's too fragile. PIP assessment company refused to postpone the appointment. First question from the assessor was: "I hear you attempted suicide this week, was it an overdose?"

YANBU and I understand that people on the very severe end of the spectrum in terms of ASC and LD will not have an issue. However, those are moderate or mild but certainly have needs will miss out. I'm disappointed to see someone upthread saying their loved one didn't have an issue. I complete them constantly as part of my job. I am a skilled, qualified professional. I do not always succeed in obtaining benefits when people are clearly completely unable to work.

My experience has been like Devilishpyjamas - everyone at his school has had no problems getting PIP or DLA, the children who have ASD and have been turned down tend to be at mainstream schools and more capable of independent living skills, most of them have GCSEs and A levels and are heading for university, and don't have much intervention with specialist consultants

My son also attended a special school and had major continence problems and non verbal etc. Unable to attempt any qualifications and have independent living skills. He was on DLA higher rates for both, and indefinately. Your post is interesting, I wonder if some of the reason my son does not qualify is when you are at school there are so many professionals involved in your care. However, once my son (and his brothers) became 18, and obviously no longer at school, there were no more professionals. He is now 26 and not seen anyone medically or educationally for many years now. There is no ASD clinic or professional in our area, so there would be no one who knows him well enough to give any report. Anyway, thanks for your interesting post socksville and glad you managed to get what you and your son deserve without too much difficulty.

Adult MH: try and get some medical papers e.g. a care plan or support from MH team, that can greatly help with PIP.

I can't @Lovelybath77 as my son refuses to engage with MH services and his previous paperwork of 3 years ago can't be released to me as apparently I'm not entitled to it for his privacy's sake. He hasn't become any the less autistic in the last 3 years but there are no professionals involved with him.

therealsquireofwideacre Are you his appointee?

@testingtestingwontoofree yes I am.

Lovely bath

In my area help stops at 18 too. I am in the same position as you.

My FIL has been diagnosed with dementia. He is 77 years old and lives 4 hours drive from us. During Social Services assessment of needs he refused to pay to be accommodated in a Nursing Home. He does not qualify for PIP or carers allowance. He has to pay £86 a week for carers to come into his home twice a day. One to give him medication in the morning and the other to tell him to put his pyjamas on for bed in the evening. The morning carer calls at 6am - when FIL is still in bed and becomes angry that someone is letting themselves into his house. The evening caller calls at 4.30pm and asks if he wants to put his pyjamas on. FIL says he doesn't as its too early for bed. Carer says ok and logs that FIL refused request to get ready for bed.

Friends son on the other hand is drug and alcohol dependent at age 34. He qualified for PIP.

Its fucking disgusting!!

Penny he wont qualify for PIP unless he was already in receipt of DLA before he was 65.

In his case it would be Attendance Allowance.

Channel 4 news actually covered the ridiculous times disabled ppl are expected to get up and go to bed in their #nogoBritain series.

www.ageuk.org.uk/money-matters/claiming-benefits/attendance-allowance/

I thought PIP was introduced to stop people with addictions claiming DLA?
It's an interesting debate
I have a grown up daughter (I have power of attorney) she has cerebral palsy. Will never be able to live independently. She has been in receipt of DLA since she was 1
We are yet to switch to PIP
Age 10 after a claim they told me she was ineligible
I appealed and her rate increased
How many people wouldn't have bothered filling out the forms?
She is on a lifetime payment at the moment
I'm dreading the switch

Thanks Helena that is helpful. We have a problem that we are so far away from him. He is unable to seek help from AgeConcern as he doesn't go out so relies on the (very young and incompetent) carers to help him. He has never been awarded DLA - despite having a diagnosis of dementia. We are due to visit him during the Easter Holidays so will get the forms ready for DLA to complete when we are there.

Hubby spends most of him time working abroad and I am stuck at home (4 hours away from him) with three teenagers so it is very frustrating.

It wont be DLA Penny It needs to be Attendance Allowance The top rate of that is currently £82 a week which should cover most of his care bill.

*Missis "I can't travel to new places by myself because of brain fog and memory loss. I'm assuming that I'll fall under psychological distress for the above descriptor so even less of a chance to access the support I need. sad angry"
But what you're describing - brain fog - is surely a cognitive impairment, not psychological distress, so the descriptors should apply?

SilentSigh "This is disgraceful. The whole point of PIP is that it's supposed to look at how your disability/illness affects your daily living and mobility, not the nature of your condition. I'm sure it even says that in the guidelines for filling in the form, so they're going against their own principles! If you need assistance going out, it shouldn't matter whether that's due to a physical or mental disability.
I agree, making a distinction between mental and physical conditions is daft - it fails to recognise - and I think medical thinking does recognise this more now - that there isn't a clear line between the 2. It also means - again - that the gov is taking the view that people with mental health impairments are less deserving than those with physical impairments.

I also think that there will now be a load of appeals querying why the person can't go out. Is it psychological distress or cognitive impairment? E.g. Someone with ASD has a meltdown at the prospect of leaving the house and refuses to leave - what is causing that refusal? Psychological distress or a neurological function?

Britain gives £12 billion in foreign aid, Pakistan the main benefactor has its own space programme !!!....unfucking believable. Haven't we now also started propping up China's pensioners? It's obscene.

Don't flame me, for once I haven't read the whole thread. I just got up to meh post and panicked. This is what is going to happen to me. I will be medically discharged from my job soon due to disability and I've applied for pip but don't know if I'll get it. I am so scared now

sorry, just read through the link.

DC has ASD and severe LD and is currently on DLA.

Can somebody clarify for me how people like my DC would miss out? I am probably just chronically sleep deprived and hence don't get it.

My bipolar is exhausting, I am either manic or depressed. I don't sleep either way. At a recent appointment my dr told me that if I don't take my medicine I could die. Due to the extremes of my depression I guess. It was likened to a diabetic taking insulin or any other disability requiring life long medication. I don't want to take it, I feel controlled. But I've kids to consider.
If they refuse my application I don't know what I'll do. I'm not fit for bloody work, and I hate saying that. I love my job. But really knowing what's been said here, I can see my application being denied.

Questioningeverything did you get help with your PIP forms from a CAB advisor or similar? If not, and your application does get turned down first time (fingers crossed for you that it won't) then ask for a mandatory reconsideration and if that is unsuccessful, get CAB involved before you appeal. Most CABs have disability specialists - or they can refer you on to local specialist services - whose knowledge of the PIP forms and the system in general is invaluable.

Good luck, I hope you're one of the lucky ones who get it at first application.

therealsquireofwideacre that's really tricky. Might you persuade the professionals from a few years ago to write a letter now explaining what he was like then and pointing out (the bleeding obvious) that change is very unlikely? At least as his appointee you can complete the application form thoroughly. I'd seek advice from CAB or a disability charity before you do.

Questioningeverything if you haven't already, see if you can get a letter from your doctor/mental health team commenting on your needs/difficulties with the PIP activities. A letter saying "questioning had bipolar and takes X and has Y therapy" is not very helpful to a decision maker. If it goes on to say "in order to cook, she needs X" is much more helpful.

Questioning my husband is in the same position as you. I feel like we have been let down by the only people who can help us and now we have to worry about getting PIP when his times comes.

This government doesn't care about us carers or those with disabilities. I fight, hit a brick wall and I'm not sure either of us have much fight left. Why should we keep having to fight for basic security? On top of everything else we have to fight for. I keep fighting for him, hitting brick walls and I think i've hit my wall.

I am angry, so angry! At the government and the people who voted in the Tories... They have no fucking idea of the devastation this government is causing. They didn't listen when we tried to tell them what would happen. Our voices don't matter. We don't matter to the people who have the power to actually help us.