MissStressBum Hi- I am sorry to hear of your diagnosis. The majority of women with PCOS are not disabled but some are by the complications caused by the illness if severe. I was diagnosed aged 21, with severe PCOS, emphasis on severe- one of worst cases my endo had seen- having suffered since age 18. Symptoms I had included extremely heavy periods, so much pain I couldn't get out of bed, fatigue, PMS/PMDD, violent, suicidal, self harming mood swings, migraines, underactive thyroid, Vit D deficiency, Sleep Apnea, uncontrollable food cravings (Binge Eating and Bulimia disorders are very highly represented amongst the PCOS community) acne , facial hair which I couldn't wax or use cream on because of allergies I have always had (I'm an eczema sufferer- since age 2), and a huge bloated belly, lipedema (fluid retention) obesity. I was always a chunky pear shape but with PCOS onset I developed a big apple shaped belly.
Could it be a disability? For myself, I do not know because I am regsitered disabled anyway- ME/CFS since age 14, and a neuromuscular disease. Already had mental health issues (anxiety, self harm, extreme anger, BPD, OCD, C- PTSD) prior to PCOS. My poor parents were relieved when i was diagnosed PCOS because PCOS and MH issues can often be linked so they were like "now we know why you are crazy- it is your hormones!". I can't say ALL my MH issues were PCOS related- too many other factors eg bullying and sexual assault at early age) but I have read research papers saying that borderline PD and Bipolar and Depression are extremely overrepresented in the PCOS diagnosed community. I don't think that is a coincidence. I can tell you that antipsychotic medication certainly can make PCOS symptoms worse. Genetically I am from a typical PCOS family- Jewish, (and some Romani) heritage etc and my sister has been told she may have the mild type. Not obese or unwell but hairy, bad periods, mood swings etc.
I reckon that before my PCOS was medicated and controlled , if I wasn't already disabled, that I would have been considered disabled and on ESA (or Incapacity as it was called then) because of the extreme periods, headaches, fatigue and mood swings. I would not be considered employable when 3 weeks out of every month I was curled up in a foetal position, bleeding and fighting urges to stab people/kill myself. Just my thoughts anyway. Please don't read this and panic. My experience is more severe than most and having ME/CFS and MH issues treated by olanzapine, thorazine, depakote, etc may well have exacerbated the PCOS making it an "extreme case." My actual testosterone levels were only slightly above average- I had to fight to get sent to an Endocrinologist because my GP said "but your testosterone is only a bit elevated!!!"