Mocking Hearing Inpaired

[ShockMe]

To be quite shocked that after a member of the public had posted that they had found a hearing aid and hoped to re-unite it with it's owner.. Our local school's SEN teacher commented 'Pardon?'

But that's fine. I'm ok with sharing the floor

You know that I said hog the floor, not share the floor, right?

I'm totally used to not understanding a word and having to wait for an explanation.

It isn't a question of understanding what is being said. Your issues will not be heard because every time D/deaf organisations/stakeholders get together the issues specific to oral deaf, particularly around communication, get swept under the carpet. You could write the script for it.

I am all for BSL users having the right to set up exclusively BSL using organisations/charities/clubs. But I think it is absolutely vital for oral deaf.

The needs of oral deaf people, particularly around access to communication in English, will not be met by mainstream deaf organisations. If you are deaf and communicate in English, you are a non person in terms of how deaf organisations view your rights and requirements. You don't exist.

Most oral deaf people are still unaware that communication support in English exists for them, far less that service providers have a statutory duty under the Equality Act to provide it. Mainstream deaf organisations by and large don't care about promoting access for non BSL users. Oral deaf need organisations like Hearing Link, Deafblind Uk, Atla, Stagetext.

BSL users may struggle with literacy because they don't use the alphabet like we do. It's isn't a for Apple. A is a sign.

I agree about the BDA - why is it ok that the Deaf Community have taken the capital and the rest of us have to be little ds? I can't think of another disability that does this.

Also about defining oneself as disabled, it's incredibly frustrating people thing physically fit is not disabled. Disability is not a wheelchair. Deafness is a sensory disability.jst as blindness is.is a blind person who is physically fit not disabled?
Of course we are all free to define ourselves as we want but there's no shame in having a disability and saying you have a disability.

it isn't a question of understanding what is being said. Your issues will not be heard because every time D/deaf organisations/stakeholders get together the issues specific to oral deaf, particularly around communication, get swept under the carpet. You could write the script for it.

Well that's wrong isn't it Bitchy? A deaf BSL user doesn't have more rights than a deaf non BSL user.

In such scenarios ideally there would be interpreters and each person would get equal time to speak.

You are making excuses for duscriminatiey behaviour.

• discriminatory

I typed that twice too

"The BDA stands for Deaf Equality, Access and Freedom of Choice"

I understand that perfectly. It uses a capital D in Deaf, ergo BSL users.

Then why is teaching inadequate...

Because they are still suffering the effects of generations of hearing idiots teachers, going back to 1880, who supressed their language, beat the crap out of them when they tried to sign, neglected their education in favour of endless hours of speech and language therapy, insisted they use lipreading and speech even when they plainly couldn't, and turned them out of school with zero qualifications and a reading age of 8 (1970s studies).

Things have somewhat improved over the last 2/3 decades but educational levels are still woefully below par. Profoundly deaf children children are being mainstreamed with occassional visits from teachers of the deaf, many some of whom can't sign for shit, and supported by teaching assistants, many some of whom can't sign for shit.

You are making excuses for duscriminatiey behaviour.

I really don't think you're understanding what I'm saying. I'm making no excuses for that behaviour - and it's usually not BSL users who set the agenda in deaf organisations but hearing people.

I abhor the fact the deaf oral people's communication rights are totally ignored. I believe they need organisations like Hearing Link to promote their interests because they won't be promoted by the mainstream.

Thanks candykane25 I hope so and thanks NeedAnotherGlass still have much to learn and will keep this experience in mind.

Well that's wrong isn't it Bitchy?

It's terrible. And it's not going to change any time soon.

Bitchy I thnk you understand the point about BDA and capital d.
All Organisations use capitals in their names.
To those who arent deaf or are newly deaf why would they think oh that capital D means BSL users?

In such scenarios ideally there would be interpreters and each person would get equal time to speak.

Interpreters do not control who speaks. They simply relay what is said and by whom.

If there is a joint meeting on the subject of communication support, oral deaf will hardly get a chance to get a word in edgeways.

If I were oral deaf, I wouldn't attend such a meeting. It'd be a pointless waste of time.

To those who arent deaf or are newly deaf why would they think oh that capital D means BSL users?

The BDA clearly explain on their website who they represent. And they use capital D throughout.

It would become clear very quickly to people visiting that site that they don't represent oral deaf people.

Just like any BSL user on the Hearing Link website would quickly glean that organisation doesn't represent their needs.

Bitchy I didn't say interpreters did control who spoke. That's usually the chairpersons role.

I know BSL users who are oral. I know BSL users who have CI. I know BSL users who are deaf not Deaf.

I understand that perfectly. It uses a capital D in Deaf, ergo BSL users.
This is why the concept of Deaf/deaf having 2 different meanings is such a nonsense!
It's the name of and organisation so of course it is capitalised.
The NDCS National Deaf Children's Society also uses a capital D. Are they just for BSL users?
It is absolutely outrageous that BSL users have taken the word "Deaf" as their own. It implies that they represent and support deaf people when they clearly do not.

I completely understand why the literacy standards are low in deaf people, but it is unacceptable and that is what needs addressing as a matter of priority. We can't raise deaf children who only communicate in BSL. That would do them a huge disservice.

The BDA clearly explain on their website who they represent. And they use capital D throughout.
They absolutely do not make it clear who they support, and the vast majority of the world, including new deaf people and their families, would have no way of knowing that Deaf doesn't mean deaf!
From their website:
"especially its commitment to the Total Communication – the use of all available means of communication such as Sign Language, finger-spelling, lip-reading, amplified sound, writing, mime and gesture, and speech."

Candy I just want to echo what Chipped says. Please when you feel ready go back and ask about CIs because I'm sure ability to lipread doesn't stop you meeting the criteria. They could make a huge difference.

ToDuk they were adamant.

Bide your time Candy.
When you are ready consider approaching your MP, PALS and your local health authority. I wish there were more advocacy services available.

Ironically, I would also recommend contacting Hearing Link, Deafblind UK and Action on Hearing Loss for any support they could offer regarding the cochlear implant situation.

I've never heard of a person being turned down for a CI because they can lipread (??) Surely for a person with dual hearing and sight loss it's even more important to optimise their hearing potential.

The hospital should also be prepared to book an electronic or manual notetaker or speech to text reporter for you at any appointments if needed. You could then get an electronic transcript of the discussion to take away and resized/converted to whatever format you need. A lot of people like that because it lets them read over the notes again later at their leisure.

In the nicest possible way....
You are teaching granny to suck eggs bitchy.
I've been an expert at this stuff for a long time now.
You are not telling me anything new.

You are teaching granny to suck eggs bitchy.

Fine. Have it your incredibly rude way. I notice you didn't say the same thing to PP.

For some reason, you just expect me in particular to be a mind reader.

Over and out.

Bitchy.
You just doubted my situation regarding my CI.diyble question mark.
Yes I'm very aware what the criteria isZ
Yes I'm very aware as a deafblind person I should get TWO ci's sincebi fit the criteria.
Yes I'm very aware it's not right.
Yes I'm very aware. Can have a note taker.
I have had a note take.
I've had all my communications in writing.
There is no misunderstanding.
As you can see I'm knowledgable about my disability and rights.

Yet you somehow seem convinced you know better?

When it comes to me, I can assure you I know better than you.

You just doubted my situation regarding my CI.diyble question mark.

I did nothing of the sort! The double question mark denoted shock that an audiologist would fob a patient off with such a terrible excuse.

You seem determined to cast aspertions on absolutely everything I say when I've done nothing but try to be helpful to you on this thread, despite the repeated ad hominems you threw my way.

As if I would somehow psychically know whether you know about notetakers! The majority of deaf people still sadly don't.

Best we just avoid each other on threads in future, eh? That way my mere existence can hardly offend you.

Oh hey, Need don't get me wrong, I'm not the (dis)ability police, going around saying who is and who isn't disabled. Nothing could be further from the truth. I go by the definition if disability, being that a person is disabled if they feel they are at a disadvantage, in accordance with the DDA. In the specific situation I mentioned above I said that when I last saw ExSIL I believe that she didn't consider herself disabled, I wasn't saying I thought she wasn't. I can't stand people saying I'm not disabled as my conditions are all invisible, why would I say anyone else wasn't?

Candy i'm a bit baffled - ExSIL could only lipread and she got 2 CIs.

I'm going to bow out now, barring any direct responses, because I don't know enough about the politics of being Deaf.

Right.
I've given it some thought.

This is why I am riled.

Knowing something academically is not the same as living it for a life time.

Whilst I've shared my experiences and opinions here, I haven't actually asked for help.

I haven't asked for anyone to be a mind reader and nor have I asked for assumptions to be made about me.

The assumption that I dnt know about note takers riled me. I think I've demonstrated I am an articulate knowledgable individual. It's possible your view of BSL users not being literate is preventing you from paying attention to what I've said in my many posts.

It's the lack of accepting what I've laid bare and taking it as just that.

Other posters have taken on board what I've said about my experiences and supported me not by trying to fix things but commiserating.

Rhodri yes the general consensus is that their decision is baffling but right now I haven't the energy to deal with yet another disappointment. Having a degenerative deafblind condition does rather knock the stuff I g out of you on a regular basis.

Now if nobody minds, I don't need any more advice. I've already sourced my own extensively.

Sorry if I upset you candy, I honestly do get where you are coming from!

Chipped you didn't upset me. You were lovely.