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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to remind you all to go and get your smear tests done if they are due or overdue!

219 replies

RedCrimson · 07/06/2016 23:20

8 years ago I had severe dyskaryosis (pre cancerous cells) and was bloody lucky I got it all taken away when I did.

I went for my yearly smear today and the nurse was new to cytology and I was the first smear she's ever done (supervised by my usual nurse).

So I just want to remind you to get yours done if it's due. I very much doubt I'd be here now if I hadn't have gotten the treatment when I did.

OP posts:
fieldofpurpleflowers · 08/06/2016 10:34

I had my first one last year and had dyskaryosis. I got referred to colposcopy and they removed the cells, now my smear tests are clear. It worries me when I see patients at work who have never had their smear done, and are aged 50+. If anyone is scared about the procedure, I recommend chatting to your nurse or doctor, but don't put it off. If I had left those abnormal cells for years, the outcome might have been dreadful. It's much better to have a few minutes of discomfort and some worry than to get an awful diagnosis.

fieldofpurpleflowers · 08/06/2016 10:36

Just saw the post above - I found the colposcopy invasive and I cried afterwards. I think it is normal to find it uncomfortable and maybe a bit psychologically disturbing. But if you needed to have your cervix removed, or to undergo invasive cancer treatment, that would be so much more psychologically upsetting/anxiety provoking.

BranTriLlygaid · 08/06/2016 10:42

Marynary,women are perfectly able to weight up the choice without being 'reminded' on an anonymous forum. It is not up to the faceless of MN to dictate when we need reminding of this, followed by horror stories of what is quite unlikely to happen. Yes, cervical cancer is a killer, I believe any woman should be able to access having a smear whatever their age. However, these threads are always full of 'oh it's so simple, just don't over think it'. Nonsense, from anything such as a medical condition that makes it painful, to previous assault to just not wanting to, women shouldn't feel the need to go just because other found the experience fine.

fieldofpurpleflowers · 08/06/2016 10:46

Bran, anxiety stops people from doing loads of things. Some people are agoraphobic and can't go out. But when anxiety stops you from doing something that has a net benefit, it is worth challenging that anxiety. Feelings are a genuine experience and emotions make us human, but when the outcome of chronically avoiding smears is death from cancer, it makes sense to challenge those emotions and find a way to get the procedure done. Often the anxiety about the smear is vastly disproportionate to the actual experience.

I have a history of assault and cried after my punch biopsy, but months down the line I'm glad I had it done. It's a risk/benefit analysis. I think we all know that a moment of pain can be worth it if it prevents a bigger pain down the line.

In my opinion it's dangerous to make a recommended medical procedure into a case of "patients being bullied into tests to meet quotas". Sounds like the conspiracy scaremongering around vaccinations.

Nobody likes feeling they're being told what to do, but sometimes medical advice comes from a genuine place of evidence (in fact, generally) and is not a stealthy campaign to bully women.

Pheobe1 · 08/06/2016 10:48

I was a year overdue for my last smear. I kept putting it off because they terrified me.
I went eventually and was a sobbing, shaking mess. A doctor had to come in and do it because the nurse couldn't find my cervix. It was awful.
I was called in four days later for a colposcopy, it turned out I had stage two cervical cancer. I had no symptoms at all.
I had to get used to displaying my fanjo to the world pretty quickly then 😀.

ToadsJustFellFromTheSky · 08/06/2016 10:53

You're totally unreasonable to try and convince those who chose not to go, for whatever reason. It's not 'fine, quick or easy' for some women.

Agreed.

Granted I'm only 25 so have only had one smear test but it certainly wasn't quick, easy and certainly not pain free.

It took the nurse six attempts to get the speculum in because it hurt so much and I kept crying out. Sounds pathetic when I say I kept crying out but it was involuntarily because it really did bloody hurt. I don't know how long it took but it certain wasn't quick and was certainly longer than a couple of minutes.

I have ASD and have sensory issues which is probably why it hurt so much so I hope I don't put other people off. I just wish people would stop saying or implying it's easy for everyone.

BranTriLlygaid · 08/06/2016 10:54

It's great if you can 'face your fear and do it', really is. Still doesn't give anyone the right to say every woman should go have it done. Medical advice is the right term - it should come from your GP, not an Internet scaremonger thread.

ButtfaceMiscreant · 08/06/2016 10:56

I had mine yesterday, with a screaming DT2 so added stress but was all fine. Not a pleasant sensation but over in less than a minute.

The nurse recommended a coil though, so need to read up on those and whether that is something to go for (read a few bad stories about them)..

TaliZorahVasNormandy · 08/06/2016 10:56

Got mine due on friday. Not a joyous experience but neccessary.

Marynary · 08/06/2016 11:05

It's great if you can 'face your fear and do it', really is. Still doesn't give anyone the right to say every woman should go have it done. Medical advice is the right term - it should come from your GP, not an Internet scaremonger thread.

It isn't scaremongering to say that people die of cervical cancer and many or those lives would have been saved if those people had had a smear. Unfortunately it is a fact.

ToadsJustFellFromTheSky · 08/06/2016 11:11

those lives would have been saved if those people had had a smear

Not necessarily, no.

Their lives might have been saved if they had a smear but it's not guaranteed.

I know a woman who had smear tests and never missed one. It still didn't prevent her from dying from cervical cancer last year.

Contrary to popular belief, Jade Goody always had smear tests and never missed one. Again it didn't stop her from dying from cervical cancer.

No screening test is perfect.

Marynary · 08/06/2016 11:32

ToadsJustFellFromTheSky You removed the beginning of my sentence so you could take it out of context. I said "many of those lives would have been saved". I didn't say "all lives" or that anything was guaranteed.

Marynary · 08/06/2016 11:38

Contrary to popular belief, Jade Goody always had smear tests and never missed one. Again it didn't stop her from dying from cervical cancer.

As she was only 27 when she died I don't think that she had previously "always had smears" (apart from the one which found cancer), as she was only just over the age where screening starts nowadays. By the time she did have her first smear (a while after the due date), it was too late.

StarlingMurmuration · 08/06/2016 11:39

I find it painful - like a bad period cramp. Then I cramp for the rest of the day, and bleed too. I mean, it's not a greatest thing ever, and I hate having it done, but once it's done, it's done, and at least then you know if there is something wrong, they should catch it.

StarlingMurmuration · 08/06/2016 11:44

I should have added, that's my reasoning for having it done. But I don't have vaginismus or a history of abuse, so while it is painful, it isn't psychologically hard for me.

MariaSklodowska · 08/06/2016 11:44

Could I just ask why we think it OK for women to be infantilised and told what we must do about our health, whereas men are left to decide for themselves if they want a finger up their bum to check for men's cancers?

I will decide for myself thanks.

You know it is like the painful mammogram that we are told we need, where our breasts are squashed flat like pancakes. Whose idea was that then? who designed that machine? was it a woman hater by any chance?

ToadsJustFellFromTheSky · 08/06/2016 11:51

As she was only 27 when she died I don't think that she had previously "always had smears" (apart from the one which found cancer), as she was only just over the age where screening starts nowadays. By the time she did have her first smear (a while after the due date), it was too late.

Jade Goody had her first smear test at the age of 21.

The age you were called in for your first smear test was lower back then. It's only in very recent years that it was increased to 25.

ToadsJustFellFromTheSky · 08/06/2016 11:55

Actually I've just had a Google and she actually started having smear tests when she was 16. 21 was how old she was when abnormalities started being picked up.

She would have been 16 in 1997. Could you really have smear tests as young as 16 back in 1997? I guess you could.

Either way, she certainly didn't start having smear tests at 25.

ToadsJustFellFromTheSky · 08/06/2016 12:00

www.celebsnow.co.uk/celebrity-news/jade-goody-exclusive-i-could-have-died-in-the-three-months-228028

So she actually had her first smear test at 16 which picked up abnormal cells. She then had another smear test when she was 18.

Different sources were telling me different things. However I'll go with this as she said it herself.

RedToothBrush · 08/06/2016 12:03

Bran, anxiety stops people from doing loads of things. Some people are agoraphobic and can't go out. But when anxiety stops you from doing something that has a net benefit, it is worth challenging that anxiety.

Feelings are a genuine experience and emotions make us human, but when the outcome of chronically avoiding smears is death from cancer, it makes sense to challenge those emotions and find a way to get the procedure done. Often the anxiety about the smear is vastly disproportionate to the actual experience.

You make it sound like if you don't get a smear done, you will die of cancer.

Perhaps we should present the facts, and let people decide whether putting themselves through 'facing their anxiety' which might be extremely traumatic and extremely likely is better than the small risk of developing cancer.

There is also the risk of unnecessary invasive treatment. Which could do damage to someone who is tackling anxiety too.

And that also ignores the fact that the risk of cancer is not evenly distributed throughout the population. Its uneven, with some people in higher risk groups than others, which might be worth taking into consideration for some women. A lower risk woman, might well make a different decision than a higher risk one.

It is a very personal decision where you weigh up the risks to you by being informed. The 'net benefits' argument is simply not the same for everyone.

Making an informed decision, which also includes legitimate and very valid case to say no, without pressure from other people.

Its fine if that was the right decision for you. But I do think telling people to 'face up to their anxiety' in such a dismissive way is awful and insulting their intelligence.

The case for screening should stand up in a factual way, rather than on emotive arguments which do not include a debate on risk and have some evidence to back that up.

Evidence does not include anecdotes - even from women who come back with a result for abnormal cells (Because due to false positive more women are given treatment than actually have cancer. This however has the effect of distorting perceptions. The truth is many women who have treatment would never have developed cancer anyway, but live in the mistaken belief that their life had been saved. If you have treatment you have no way of knowing if you were in the group who had their life saved or the group who had unnecessary treatment).

I hate these threads with a passion for this reason, because intelligent women start emotive arguments, uses guilt tactics and talk a lot of tosh rather than evidence based medicine. That's what I find most depressing.

There is a very good case to have a smear. Make the case on its true merits. Be gentle and sensitive - particularly to those with anxiety, who do not respond well to such peer pressure or aggressive tactics.

And be respectful to those who make the decision not to have a test. It is legitimate and their right to do so, and they do not have to justify it to anyone. (Or at least they shouldn't have to, but unfortunately there are a few GPs out there behaving unethically on this one due to their conflict of self interest).

Marynary · 08/06/2016 12:06

Jade Goody had her first smear test at the age of 21.

The age you were called in for your first smear test was lower back then. It's only in very recent years that it was increased to 25

No it was increased to age 25 in 2003 in England. After Jade Goody's death there was a lot of media pressure to lower it. I also remember that in interviews she said she was overdue for her smear.

ToadsJustFellFromTheSky · 08/06/2016 12:08

Marynary Jade Goody had her first smear test at 16. Her second one was at 18. She said so herself in the interview I linked to.

justmyview · 08/06/2016 12:10

When I had my first smear, I went in all blase, having been told that it was not painful, just a bit uncomfortable etc. I found it very traumatic. Now, I cry like a baby and hate every minute of it......... but I do manage. My tips -
get diazepam from the GP, let the nurse know that you're terrified, ask for the smallest speculum (the one for virgins), ask for lubricant. Without exception, the nurses couldn't be kinder. What helps me is knowing that the moment the test is over, it's completely over, unlike other treatments where you feel unwell afterwards

Cherylene · 08/06/2016 12:11

I find that the cervical screening programme send me a letter when I am due a smear test. They also send a leaflet with information, which now has to contain factually correct statistics. I can read this, and also research things on the internet now. There are institutions that review screening programmes now and see if they are working. Then I can make my own mind up if and when I want to proceed further.

Abbinob · 08/06/2016 12:11

I got a letter telling me to book a smear when i turned 25 the other month but I'be been to scared incase it's bad Hmm
Which is stupid because a)probably will be fine b)if it isn't it won't be the tests
How long does it take after having it to get the results?

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