get it out before she pops 2

[littlemaemae]

Following on from aibu to take dd3 to a&e

I'm so sorry your daughter still hasn't had relief. They still don't know if there was an underlying cause.

Impacted up to the rib cage was what the incontinence nurse said. I'm assuming that the childrens ward have done their own examinations.

Id be insisting I stayed in whilst this is managed. I'd not be comfortable going home.

Good morning Mae, great to hear things look better today and your daughter is relaxed and happy.

Hope she gets better today.

I'm glad things are starting to resolve

I think you have been massively let down; mostly in terms of how everyone has communicated with you. Your poor dd looks dreadful in her photos, both in terms of her weight and her stomach swelling and no one seems to have properly reassured you and explained why more isn't being done. The hcb's on this thread have been calm and explained things so well.

Let's face it, there is a problem in the medical profession in that if you have a mental health problem you are quite often treated as neurotic or hysterical when it comes to having another medical issue. I am not sure how much this has come into play here. It really angers me though. You are your dad's mum. You deserved reassurance, not being treated like a pest.

Good morning Mae, I started reading your other thread last night and was shocked at the amount of times that you have practically had to beg to get someone to listen to you. I was expecting to get through the thread and see that she had passed everything, and I'm sad and upset to learn that she hasn't yet. You must be so worried. I'm so glad that you are now being taken seriously and I hope she has some movement soon and that they get to the bottom of what's causing the blockage.

My mum suffers with the same thing and once her latest blockage was moved she had to take capsules with little shapes inside them at different intervals so that they would show up on an X-ray so that they could see exactly where the blockage was.

I'm hoping your DD gets some relief soon, and some long term treatment to resolve this.

Great update to wake up to. Glad she's happier today, glad you're happier, hope this is the beginning of the end for you all.

Are they keeping her in?

Communication works both ways, not only do HCP need to give information but patients can ask questions and lots of questions.

So possibly on a thread like this posters could help by giving the op questions to ask the HCP that maybe very useful to know the answers. Or simply what is the plan if action to get the impacted constipation resolved - can you give me a step by step guide to what your next three steps are in treating my DD? Also asking each HCP what impact each and every medicine that is given will have on her DD, from the effect to how long it will take to work.

To reassure you about sepsis, littlemaemae, thers are specific markers that define a diagnosis of sepsis.

If your DD has a normal heart rate, normal temperature, normal respiratory rate and is weeing, then she doesn't have sepsis. The media has picked up on sepsis in the last few months, but hospitals are very keyed into sepsis. The few cases that are in the press don't give the full picture. In my (adult) ICU at least half of our patients at any one time will be there because of sepsis and they have been appropriately identified and treated with the 'sepsis 6' bundle of care.

Hoping that your experience is turning a corner. At least the ward is comfortable.

Good morning Mae. Glad your DD is feeling better. Our experience of this hasn't been nearly as awful as yours. Great information and advice from Headofhives and Ranndom. Hope you know what a brilliant job you are doing. Hang in there, it's a long slog.

Are they keeping you in?

Absolutely she needs investigations to see if there's an underlying cause, but I suspect they won't be able to do any of them, or find anything conclusive until this episode is resolved.

Keep on keeping on, OP.

Good morning LittleMaeMae
Glad she's reasonably settled this morning. It sounds like you're (finally) in the right place! You also sound like they've eventually discussed matters with more clarity now.
No one thinks you're villanising anyone.

Glad she's feeling ok this morning.

Op I think the most helpful thing would to be to ask to speak to a doctor or nurse who can explain the treatment plan and the reasons it's appropriate.
As they've said an X-ray wouldn't help if they already know she's impacted. Get them to give you a rough timeline of how longish things should take.

Hope you're ok too

Hi, littlemaemae, just popped in to say that I'm thinking of you and I'm glad your little girl is managing to relax a little.

You must be exhausted, but you have been so incredibly brave and strong ... I have no idea how you've managed to even keep thinking straight, but manage you have!

Noticed some posters have suggested you take notes. Great idea, but maybe not so easy when you are in the thick of it and got DD to concentrate on, so remember that your posts throughout these threads will probably sreve well to jog your memory, if it comes to needing notes.

Am hoping that today goes well.

This is all getting a bit out of hand with people telling the OP that she shouldn't leave the hospital or that her dd isn't getting the proper care she needs.

She wasn't.

She is now.

If more than one doctor and a few nurses don't think she needs to be in hospital then there is no reason not to trust their professional opinion. OP was fobbed off at the start which isn't good enough, but the dr she saw last night didn't. They know more about her daughter's case than we do (most of us not medically trained at all). You might meet the odd crap doctor but it is very unlikely that every medically trained person the OP has seen just isn't caring enough. The chances are much higher that they know what they are talking about. At this point there is nothing else they can do except give it a bit longer, should her condition change I'm sure they will change their plan and act accordingly. They don't want to do anything more invasive unless there is a clinical need to do so. The dr's bedside manner might be shit, but no reason to say his treatment is.

The not leaving until she gets an X Ray advice is not helpful. If the DR says there is no point of an X Ray in her current condition then why do people assume they know better?

Talking about videoing conversations and starting a PALS complaint isn't really helpful. Right now OP's DD is not being offered poor care. Us behind a screen don't know more than they do and it's quite arrogant to assume that we know better.

OP she is now getting the help she needs, good on you. I hope things get moving very quickly

Glad to see this thread becoming more rational and balanced this morning.

The hysteria and scare-mongering will have done very little to help an understandably anxious and panicky parent do the best for her DD.

Have you been continuing the movicol in hospital?

I hope the OPs little girl is OK - have everything crossed that she is getting good care now.

Ah, NGH is not the best hospital in my experience, I was treated for the same issue myself in KGH and found them to be alright, I was admitted to the surgical ward and treated with the idea that if it didn't work I'd have surgery to remove the blockage.

I think I was only admitted because I was postnatal and had a womb infection and anaemia as well though, they were scrambling because I'd been allowed home with a fever and no BM following birth.

My DS is currently awaiting a referral to the continence people for similar issues also, although not as severe, I know well that helplessness as they squirm in pain.

We are home now, she's had some movement and is happy to see her sister xx
We are going to be closely monitored now. I've already had a phone call to check up on us.

U2 has hit the nail on the head. OP has had lots of sensible, reassuring advice but unfortunately some of the responses have bordered on hysteria. There seems to be a feeling among some posters that because the Hospital staff haven't been able to provide instant relief for OP's DD they must be doing something wrong. She is receiving treatment and her condition is being monitored, this can take time.Telling an already worried Mum that her DD probably has sepsis or her bowel might perforate at any second (based on zero evidence whatsoever) and that the hospital she is in is a death trap (based on anecdotal experiences and hearsay) is not going to improve the situation.

Glad she's feeling a bit brighter this morning OP

Op, I've just read your thread! What a time you and your poor dc have had. So very relieved you are being listened to at last