get it out before she pops 2

[littlemaemae]

Following on from aibu to take dd3 to a&e

I'm glad DD is getting some treatment now and hope you feel a bit more comfortable knowing that she's under the eye of the medical professionals.

I mentioned on the previous thread that this is a problem I have and have a few tips that may help. In terms of any discomfort she may have, warm compresses on her tummy might help and if her bottom gets sore due to pooing, pop a pot of Vaseline in the fridge to use when she wipes.

Ah bless her. May your coming days be filled with plenty of poop

for you all. I hope you both get some decent rest at home. I'm glad they are keeping a close watch on your DD xx

Gosh what an ordeal for you all. Hope things start moving for her soon.

Don't tell your daughter how many people are waiting for her to poo, she'll get star struck!

So pleased you're getting better care now

Please God I hope this is a turning point for you xx

Hope things continue well :)

Be watching since the beginning OP, I'm glad things are moving and people are hopefully listening to you.

When your DD is in pain or going to sleep, get her to lie on her left side with her knees up if possible, this helps as the colon naturally sits that way. (UC for 20+years).

Keep pushing, you are doing great!

Good news op

I can't believe how desperate I am for MiniMae to poo, she was the first thing I thought of this morning!

Some movement - proper poo this time? I hope so!

You wouldn't be aiming for a 'proper poo' at this point. You would be aiming for everything to come out in gravy-like consistency and then very very slowly cut back on the Movicol still so it was so soft DD doesn't get a chance to hold it in and get constipated again.

The whole procedure takes ages and a lot of support from the constipation nurse as the bowel has been so stretched it won't bounce back to normal and produce normal poos, it will simply just get constipated again.

It's a very slow business.

Still thinking of you. If you are in the SE I'm happy to give practical help if possible.

Another one just de lurking to offer support.

I too had to fight for my ds

But that's what we do isn't it. I'm right behind you with

You have done so well for her you should be proud. I really hope you continue to get the right support

How is she this afternoon?

Hoping it continues to work

Well done Maemae, keep getting the movicol down her. We have been dealing with this for 12 years since ds was 2, and there is no quick fix. We've seen more health profs than I can remember. Our most successful management tool was two oral meds (including a movicol-like treatment) and using a series of suppositories in threes when impacted. Serious impact ions can take around 6 months for the impact ion to clear and the bowel to function 'normally' again, and it's really important to get a good maintenance regime going when the impaction is cleared (or it is really easy to get another one within the six month window). Have spent many hours lying on the bathroom floor with ds waiting for the suppository to start working so we can park him on the toilet, in sets of three....

Should also add - in 12 years he was X rayed, bloods and ultra sound once - they have always explained that largely, these examinations are unnecessary, as they won't change the treatment protocols, and may cause additional discomfort or psychological difficulties to the kids involved (in terms of adding toilet avoidance into the mix alongside impaction - never a good combo)

Good luck, good luck, keep going!

Hi everyone.
we had a nap and have both woken up groggy!
She seems OK in herself apart from being exhausted of course.
Still not much poo to speak of but I'm sure it will come.
She has been saying 'I don't want to be a patient' bless her.
Thank your sharing your experiences, advice and long term outlook from those in similar situations.
It's very reassuring.
I don't feel helpless and like things are out of control now and I am not fearing the worst anymore.
And the advice re positioning her body when in pain will be very useful to a lot of people on here.

You are all so so lovely. I wish there was some way I could properly thank you all.
It's gone a huge way towards getting this dealt with and made me feel like I will be able to share the problem with others without fear of eye rolling or ignorant comments. Which will help me get DD out and about more and joining in with things. Like she deserves xxx

So glad that you are feeling stronger - you're obviously a great mum and have done everything you can for DD.

As we say in Frenxhe, courage!

Glad you and your DD are feeling better, OP.

DS had an impacted bowel as a toddler, and it contributed to toilet avoidance as well, (he'd hold it in to avoid any pain).

It took lots of Movicol, and lots of reassurance to get him to go to the toilet. We also had Movicol long term to keep him regular and (as I was told) to "train" his bowel to a more normal action.

We're on the other side of that, now. DS is 12 and no longer needs Movicol, he goes on a regular basis (and farts like hell; his martial arts class has nicknamed him the Ninjafarter).

One thing that helped with the toilet avoidance was simply time; him growing up, and being better able to understand the process.

It's YOU that's got it dealt with, op!
Really hope there is movement soon

Well done OP.
And you being home is a sign that the doctors trust you. Patients that are kept as inpatients to do disempaction regimes that can be done at home like you, are often there just to monitor first if the patient is actually taking the regime, so are the parents actually giving the 300 sachets a day that they say they are giving.
So the fact they sent you home can be seen as a good thing. Promise.

So good to hear that things are now being dealt with and that you are both feeling more positive. Well done OP!

Just checking in op

It's been so traumatic and you sound so much calmer

It's hard as some things can't be fixed overnight - we have a situation escalating at this end and it's so Fucking tough to negotiate the NHS

Been worrying and pleased on the right path X

You've really been through the mill Littlemaemae. I hope that your Dd manages to get rid of all that stuck poo very soon, and that you are all able to rest and relax after a dreadful few weeks.

Thinking of you and your lovely family x