get it out before she pops 2

[littlemaemae]

Following on from aibu to take dd3 to a&e

Also demand the pksy therapists come in.

The poor little mite. And poor you.

If they'd dealt with this properly first time around they'd have saved so much distress and also saved the NHS so much money. These penny pinching approaches sometimes cost so much more in the long run

I might have missed this in your thread but is there a play specialist around? Or could they contact Leicester to ask to speak to one of theirs? Just trying to think how they could make it less distressing for you both.

The play team here are lovely ladies and do come in to try to distract restrain her.
They don't seem very switched on with how to help her cope emotionally. They get roped into a fair bit of nursing too. I wonder if their job description is different to the play specialists in other hospitals

I really agree with the penny pinching costing more in the long run. Just like when you do a bad decorating job.

littlemae please dont think your dd's problem is any less serious than other people's - it's a massive thing for her and you.

you are doing incredibly well. this is a severe impaction which aint moving despite a week of treatment....... she may need an operation. it is serious. it doesnt have to be cancer of life threatening for you to call it serious.

my ds suffered terribly when he was imapcted, but it did resolve with meds...my friend's little boy was taken to a and e in agony because of a minor impaction, fortunately it resolved really quickly. your dd has been in agony for weeks and it is serious.

she will need long term treatment for whatever underlying condition there might be (or hopefully just some radical anti-constipation regime or treatment to ensure not future blockage) and some play therapy to help her overcome her trauma. this is not a minor scratch.... so it's totally understandable you are worn out and so is she.

feel free to tell people like letting agents etc she is "seriously ill in hospital and awaiting surgery". it is the truth. you are both doing amazingly well considering.

Poor child, it must be so traumatic for you both. Thinking healing thoughts for you.

Oh sweetheart you really are going through the wringer with DD. Wishing you both well and chanelling blockage removal thoughts your way!

Poor little thing, hope you come to some sort of conclusion soon.

Wishing your DD well.

Littlemaemae I've been following this from the beginning and just wanted to say how much admiration I have for you. I had serious bowel problems at birth and had many episodes in hospital as a child due to blockages/impaction. I remember having to have lots of enemas/washouts (colonic irrigation they'd probably call it now ) before being taken to surgery and having goodness knows what done to me.

The main thing is that you are there with your little girl, holding her hand, comforting her. I went through this all alone as my mother saw fit not to bother staying with me whilst all these procedures were done. I have long term issues with this now as an adult, not because of the treatment as such, but because my mother didn't stay with me when she could have done.

What I'm trying to say, probably very clumsily, is that no matter what your DD has/is going through - the really important thing is that you're there with her. Don't underestimate the comfort that you are bringing her just by being there and fighting her corner.

Poor little girl. I'm just so sad it's taking so long to resolve. I really hope this NG Klean will help, and will keep my fingers firmly crossed.

littlemaemae I thought it might be useful for you to have an idea from personal experience of what it's like to have an NG tube, so you will be aware of what your DD might be feeling once it's sited. I was talking to DT2 about it, and it seemed easier for her to write about it herself, so the following is from her...(DT2 is 11)

I'm glad your DD is having it put in under GA because that was the worst part of it all. But after it's in, it's quite uncomfortable at first (as I could kind of feel it) but after I got used to it then I don't really notice it at all, apart from when I swallowed and sniffed. When I drank and was allowed to eat soup, I could feel it move when I swallowed it down but apart from that I didn't really notice it. To get it out, it only took a couple of seconds and although I could feel it coming up, it didn't hurt. I hope your DD gets better soon .

I hope that's helpful - if there's anything else you'd like to know, please ask!

(this is tkband3's DT2 again) I should also say that my mum was with me the whole time and it really helped the situation. I hope the Klean Prep works and again, I hope your DD gets better soon.

You are anxious. You are not over anxious.

Anxiety is the appropriate reaction for a situation like this. It's the right reaction. Don't be ashamed or belittle your feelings. If you're feeling overwhelmed you could try some deep breathing and try and to break the chain reaction if you find yourself catastrophising (I do that lots & trying not to!). But as for denying it, don't you dare!

You are one tough mama, you have found so much strength. You are coping in a terrible situation and you should never be tested in this way, but it's worth noticing beings you are having to go through this that you are doing it. You are getting through it.

PS yes DS did the falling into a deep sleep thing after being very scared. I think it's their way of coping. I thought of it as DS having got to the bottom of his resources in the traumatic thing, and as soon as it's over/ in my arms he felt safe enough to zonk out. I don't know what would have happened if it carried on though, whether it really was my arms signaling safety, or just coincidence and be trying to reassure myself (!), but either way, sleep is healing and i guess it's natures 'off' button when they can't process any more. I wish I still had that ability. But we get to sit there wide awake and living through every minute. The joys of adulthood? Motherhood? Whatever, not so joyous!

Hi OP, I too have been following this from Thread 1 and am getting so sad for your poor little DD, and yourself. I have nothing to add that hasn't been already but wanted to say that I am another who is rooting for this to be resolved very soon and also that you are doing fucking amazingly considering.
Unmumsnetty love and hugs xx

Hope the rest of the day went smoothly mae.

Caravan, I am so sorry you went through all of that alone. There was a 10 year old girl here alone last week, I was so upset for her. I can't imagine how you must have felt. I can totally see how that would give you issues into adult hood

Tkband, your DD is an absolute sweetheart. So grown up and articulate for 11 please thank her very much for taking the time to write that, it has helped me to understand how DD is feeling. What a sweetie xxx

Miscellaneous, they are wise words clearly from experience. Thank you.

And thank you for all the other kind messages, too many to count

The decided not to GA, instead they gave her something to relax her. It just made her weaker but she was still very much screaming and throwing herself around. The managed to get a tube in, but a very small one they use on babies. They couldn't fit the proper sized one in for some reason.
She is on her last hour dose of the prep tonight. She is tolerating the NG well.
Her stomach is rock hard and swollen to maximum capacity which is worrying.
She has been having some nice brown overflow. So I have a feeling we are going to get a good result.
Shame this could have been done Saturday

We have our own room and ensuite this time. So it is a lot more comfortable and we will get some rest and privacy.

We are exhausted!

The very best wishes to you all xxxx Have a good nights sleep xx

We are hoping so much that all goes well for your dear DD. Poor wee thing. She's due a break, as are you. I hope you both get some rest tonight. You are doing so well.

Oh dear. I used to have to pass a NG on my DD at that age and it is horrid.

So glad you have your own room. That does make a difference. It's the least they could do.

Good luck!

Hope that you both get a good night's sleep. I hope that things improve rapidly now.