get it out before she pops 2

[littlemaemae]

Following on from aibu to take dd3 to a&e

Very glad you've got your own room and ensuite - one less thing to have to think about at least!

Fingers crossed for poo.....

Have a good sleep, now the NG is in she will be having proper doses. If she was sedated even though she was trying to fight weakly she might not actually remember the experience and saved her having to have an nessessary GA

All of us are rooting for you OP. So many people following this and thinking of you. It's been awful.
Write everything in a diary - you won't remember otherwise and this definitely calls for something to be done after the dust has settled.

Hope all went well today.

DD has been crying out in pain, fit to burst.
You can feel and see every lump and bump of her insides.

I asked a nurse if someone can come and look at her.
She said: well I can ask but the doctor is with a 'poorly' patient.
She then comes over jewels and says: well what do you expect she is full of poo.
Begrudging get calpol (which she won't take) then says; oh sad face? To DD.

Doctor came and noted that everything was lumpy and bumpy and very distended. No action taken.

DD crying to go and see the doctor. I am thinking sorry DD doctor doesn't care!

FFS What do they think we are doing here. She isn't poorly? We are making it up?

They don't even think her pain Shiism be managed. Should a candle be in place for is she really needs pain relief.
She is having to go without because of the trauma she has been through

** looks not jewels

**Shiism - should. What is going on with my auto correct tonight?

** cannula - candle. It's getting obvious I have had no sleep and am on a crazy rant. Good night

Absolutely she can have a canula put in,I'm very surprised they haven't done it tbh ?

Call them back if need be,poor little mite

I get the impression that some of them think she should suffer and is a drain on resources. The beds should be reserved for the 'poorly' patients they keep telling me about.
Like DD's care is not important. The have hardly any patients tonight, I really feel she is being judges and dismissed.
Is there anyone at the hospital who isn't 'one of them' I could talk to. Would PALS be who I go to?
I know I am being irrational.

You are NOT being irrational!!!

No child should be left to suffer.

Will you see the nice Consultant tomorrow morning?

If you speak to him about pain relief and he puts it in your notes then the wars doctor and nurses will need to give something.

I don't live in the UK anymore and have had a son with a chronic problem & am shocked by the care your precious little one has received.

You are fighting a system which is over stretched and under funded but fight you will because you are one hell of a mom. You have fought like a champion and we are all here to support you as you keep fighting for your little one.

I hope that by tomorrow things have progressed in that you either have major movement or a new treatment plan if this is one does not work.

Take care.

• wars doctor = ward doctor

littlemae almost all the pain relief other than Calpol is constipating. The pain relief options are very very limited here.

If that's the case then shouldn't the doctor actually explain that?

if that's the case then shouldn't the doctor actually explain that?

Perhaps in a manner that implies sympathy for the child and not exasperation at having one more bloody patient to look at?

You are not being irrational. Plus your DD can have liquid medication through the NG tube so no need for cannula or a fight.
Ask them to train you how to give the meds through it - you just aspirate the NG tube (draw up some fluid with syringe), check ph levels to ensure tube is still in stomach, syringe in calpol and syring in some water to flush it through.

It'll take a few minutes but give your DD hours of pain relief.

As previous poster said ng tube can be used for pain relief but they are likely to be reluctant to move above paracetamol or ibuprofen due to constipation side effects. Your dd probably has lots of trapped wind as well as all the poo which can be agony. When the consultant does his round today I would say that you would rather take the risks of a GA and go for manual evacuation and that they are being negligent in allowing dd to be in so much pain. I know they are saying it should pass in pieces but I have seen adult patients pass poos the size you wouldn't believe and it hurts.Tell them you cannot continue to see her suffer and that the treatment she is having has become barbaric.

Sounds to me that she needs a rest from the NG fluid to give it chance for it to be absorbed. She is probably feeling like we do (but worse) on Christmas day when we have eaten so much we could pop.

I would be concerned about the possibility of stomach distension and rupture by the over filling of her when she isn't able to empty it out.

Have they checked that she is absorbing the fluid by aspirating the NG?

What rate are the fluids going in at?

Oh maemae, this just sounds awful. I have no medical training but it could be that the reason she is now in pain is that the blockage is actually starting to move. However that is no excuse for the attitude of the staff. That nurse perhaps thought ...constipation,...can't be that bad.. Without any idea of what dd is going through. I hope you see the consultant today and get an explanation of the plan and how they might relieve dd's pain. Poor poor little thing.

Also another thought. I get they don't want to X-ray due to radiation but could they do an ultrasound? Worth asking and it's ipoften hard to refuse a reasonable request without a good reason to do so.

I really wish I lived close to you and I could come in and help fight your corner. Is there anyone who can help you stand up and shout for your dd? It's awful the way you are being treated. You can do this on your own but you also need more support.

My ds has spent 2 months out of the last 6 months in hospital and and it has really taught me to fight for him, even though that is against my nature. Doctors didn't listen to me, they fobbed me off, and my ds ended up on intensive care. Even after that, and some doctors still didn't listen to me.

Can you speak to the charge nurse? Write everything down so you don't miss anything that you want to say.

it gets worse and worse, your poor baby.

make a plan for action today

• talk to the consultant
• ask questions: can she be transferred urgently to a specialist hospital (gosh)? what about pain relief? imaging (scan/x-ray)? what do they think should happen next?

Delurking to say I think you are doing an amazing job for your daughters in a horrible situation. Hoping things move in the right direction today and sending more support and un-MN hugs.

Say, she's full of poo, that is not normal but you think that means she should be left in pain and you patronise us as a cherry on top? Then glare at them.

Please phone PALS this morning.