get it out before she pops 2

[littlemaemae]

Following on from aibu to take dd3 to a&e

I think she will need a tube. How awful for her. Long term it might be worth thinking about a counsellor or play therapist as it would be incredibly easy for her to develop psychological issues around food and toileting after all this.

Yes to play therapy.

She is taking the klean prep, for now. A bit slow, but they are happy with it.
She was going to be given a tube but they decided she would be ok not to.
She is going to have another X-ray now to see if it has moved.
Then if it has, sent home with another (!) medicine. And consultant will call is Monday. Call us to ask how she is, or call us in - I have no idea I don't seem to be able to take the information in properly. We keep getting told different things.
Will get dp to clarify.
I hope to god it has moved round as then we are on our way and it's progress xx

The play therapy is a very good idea, I will make sure she gets some in place. She never forgets anything and is extremely emotionally intelligent. So I think this will stay with her and she will need some help with it. Thanks for the advice.

I think play therapy is something worth paying private for. less waiting time and you can adjust the schedule as your dd needs.

I hope you don't have to wait long for the xray or results

... if good wishes and positive thinking could sort her out you would have been sorted out last weekend... thinking of you...

It's difficult to take things in, in a hospital situation, and even more so, I'm sure, if you keep being told different things.
I hope the X-ray shows progress. You are doing great.

Rooting for your daughter and you.

I hope once the immediate crisis is over that the doctors can work out how to help her so this does not happen again.

Little maemae I've been following your threads from the beginning and just wanted to say that I'm thinking of you and your poor DD. You've both been through so much, I do hope that things improve soon.

Ditto! Can't quite believe it's still dragging on. Hugs

Been following from the beginning - delurking to say it's okay to find it hard to follow what is going on in the hospital. It is perfectly acceptable to ask the doctor to write down the plan! Especially if you are going home, and especially if you need to explain the plan to anyone else. It can also help consistency between the HCP you see.

And don't be afraid of saying if you can't read their righting. It is notoriously bad.

Keep on going, we are all rooting for you.

How did the rest of it go down?

We are home. The X-ray showed the obstruction has moved along quite a bit. Still not in the rectum though.
Another day of klean prep. Tomorrow. It has has no effect yet but I'm hoping it will.
Consultant is calling us Monday - I don't know if we will have to go back in or not. Or what will happen if she still hasn't had a bowel moment.
When we left we were told it is likely to be small segment hursprungs, a milder form. Which would explain why it wasn't detected at birth.
My head is a mess at the minute.
Glad to be home so I can do some washing and spend time as a family. But I'm still very anxious. On Monday it will be 5 weeks since her last poo

The discharge letter had one medication missing from the list, the wrong dose of klean prep stated and it said to give picosulfate rectally!
Do they often have errors and should I bring it up in a complaint or is that petty?

I'd query every detail that is inaccurate on the discharge letter. FFS (at them not you)!

On top of everything else that is quite unacceptable and could be dangerous.

Good news though that things are moving however slowly. Hopefully the klean prep will move things on further tomorrow.

Hoping that things will look better for her very soon.

No it's not petty. I imagine it could be potentially very harmful if a patient followed the wrong details. They need to get that right.

I hope you both get to relax a bit at home, and that your DD improves. I check in on this thread often; your DD is always in my thoughts. DH is now asking for updates too. Really rooting for you! x

Discharge letters often have errors. Yours may have been especially prone as it has been junior doctors (the people who do the letters) handover this week, most of them were on strike Wednesday and Thursday, Friday they would have been in induction so they would all have been new and pretty clueless about how the software worked.

So glad things are moving and you are heading towards a diagnosis, even though it's hard to know this might be a lifelong problem. People with Hirschsprungs do still poo!

Glad to hear that the X-ray showed things moving. Poor little mite. Try to give yourself a break, get a good night's sleep if possible. You have been through a lot in the last week.

Another one here with a normally-disinterested DH who's become quite emotionally invested in littlemae's case. Good vibes from both of us!!

The nurses discharging her should have picked up on the errors, or don't nurses go through the discharge instructions any more?

Oh Mae, I haven't been on for a couple of days I'd really hoped for a more positive update.
How annoying about the discharge letter. Definitely query it!

(((((((((((soft soft Hugs littlemaemae and you sweet DD and the family . Now that you have the diagnosis, you have something to work with.

Yes, question the hellz out of any meds that look or sound wrong.