get it out before she pops 2

[littlemaemae]

Following on from aibu to take dd3 to a&e

I'm thinking of you & little Mae. I hope things start moving soon & the weekend goes as well as it can do for you both.

I have no useful advice to add, just wanted you to know OP that you have the support of me & many other MNetters behind you.

I hope for movement this weekend. You poor things.

Is your dd getting any play workers in hospital? With so much trauma around pooing and enemas I would think it is important she has a chance to release her feelings through play...

Oh I just feel so sad for your whole family. Been following from the start and hope that your poor girl is sorted soon.

I'm sorry you don't feel any further forward - but they are keeping her in, and taking it seriously. Hopefully Monday will bring a sensible plan.

Sorry things haven't improved so far, you're doing so well to be a steady and calm presence for your DD. I'm glad they're keeping her in and working to find a solution.

I've had to hold my 2 year old down for various things. It's horrible. Sending you a big unmumsnetty hug. You can do this even though you don't think you can.

You poor love, both of you

OP, you are doing great. This must be so difficult for you, and your little girl.

Still thinking of you all

Keep strong I hope that progress is made .

Try not to worry about the enemas not working. They can only go so far and if that area if bowel is clear then you'll get no result. It's obviously very high up and that might be what's making it tricky to deal with.

I ve been following you and your dd s journey, I didn't post as I don't have anything constructive to add (not sure this is constructive either) but I just wanted to let you know I m thinking of your both and sending your strength and positive vibes and hoping that you are both ok. You have been wonderful through a really toug gruelling time for your dd. I hope she s ok. My heart is breaking for you both xx

Can't believe it's been a week since you posted and still nothing of substance has come out.
Here's hoping your dd gets some relief soon. Although I guess she's used to being full of poo it must be uncomfortable for her :(

Oh OP. I've just been catching up with your posts. 5 people to hold her down! That's disgraceful. From my experience they don't like having to do things like that, but it just seems so unnecessary in your case. That said I do hope you weren't discharged.

I'm not surprised your daughter is refusing oral meds and eating little. Even at her age she will have an awareness of food is what makes poop, therefore anything going into her mouth is what is just staying in there.

For you, you are never far from many of our thoughts going by the replies to your threads. The longer this goes on, the stronger you are becoming in yourself, that is evident to me. You are allowed to feel upset, anger. You are allowed to be worried and fearful for what you don't know. Do let yourself be as emotional as you need to be. It will help you cope and it will help your daughter.

Bees, that must have been so emotionally stressful for your whole family. You are amazing to have managed it so well.
I have promised her no more enemas.
Right or wrong, I can't have her put though that again.
There are play workers here but they are very busy so she hasn't had any time with them.
I was worried sick all night, and feeling really guilty about it thinking of other parents with children who are far more poorly.
We have started klean prep and she needs to have 300ml first hour then up the amount every hour for 4 hours.
The first hour is almost up and she has managed 3 sips.
SO glad we didn't start it at home.
The support is so overwhelming and lovely. I really appreciate it. You are all so kind. It's really helping me get through xx

Have the play workers even been to see you? If you can try and catch one and explain your worries then hopefully they'll sort something out. Even though we've never needed them for specific issues, they've always popped by to make sure the DC had toys or something to interest them. Ds1 was in hospital at 7 weeks so they made sure he had a cot mobile that worked! When he was in the following year they brought toys to his cot.

It's so hard. I've been tempted at times to say I'll never let them do a particular procedure again. But instead what I say is that I promise to stop a procedure if it is hurting (too much). So maybe you can say no more enemas unless she is sedated. There is no need (AFAIK) for her to be fully concious of such a traumatic (potentially long term) procedure.

Have they mentioned NG tube for the prep if she can't drink it?

Dear OP I have been following your story since the first thread and I just wanted to say you are doing amazingly well.

With regards to the 5 people holding her down situation - my son had lots of health issues when he was young and was often held down by that many people. My son was younger and I often has to help hold him down. It was so traumatic to watch that. You must have felt terrible watching that. Surely they can give her some kind of sedation?

Have they mentioned what they will do if she can't drink itl all? Will they give her an ng tube?

You poor loves, I was so hoping I would come back to find you out the other side

So sorry to hear that your poor little girl is still no better. Awful to read of your and her distress.

I know you're having a wobble...it's only natural after putting up with prolonged stress and anxiety. Please don't be hard on yourself. You're giving it your all. We can all see that.

Sending you all good wishes for an easier weekend.

Morning Littlemae,
Another day dawns!
As I understand it the hospital are expecting your DD to drink one and a half litres of this awful stuff over 5 hours . REALLY ! As previous posters and two of my friends can testify adults find it extremely stressful and sometimes impossible to tolerate . Although a NG tube would in the short term be unpleasant would it not be kinder and hopefully more productive in the long run.
To get a small child to drink a litre and a half of anything would be difficult but nigh on impossible to a child who is completely 'bunged up' , frightened and hardly eating or drinking anything .
My very best wishes to you and your daughter.

I'm so sorry everything they've tried so far hasn't worked.
I've had klean prep lots of times due to having Crohn's disease. It is a rather unusual taste.
Is she drinking through a straw? That can sometimes help as you can't taste it as much and ask if they can put some cordial in it too.
You're doing a great job