get it out before she pops 2

[littlemaemae]

Following on from aibu to take dd3 to a&e

Oh my heart goes out to you and your dd littlemae.

I really hope your dd is managed better Now atleast. My sons constantly in and out of hospital and I've had very bad mistakes on discharge papers once we was in the hdu for 6 nights then normal ward for 2 it stated on this discharge we had only been in for one night . Definately worth chasing it up as a copy will be sent to your gp so they'll believe that they're the medications your dd is on.

Thinking of you x

Thank you (and DHs) again for such kind messages. Wish I knew such genuinely lovely people in RL

We were all exhausted last night and had a good sleep.

By now I was hoping to have posted photos of DD with a soft flat tummy. Maybe next week!

It isn't quite a diagnosis yet, but I think the test is going to be done very soon.
Everything points to hursprungs, even previous posters thought so by the photos.
I BF dd6 and FFdd. Thinking back to the tiny baby stage,her poo was Thicker and formed even stuck half in half out at times. Then other times the usual runny mess . I though it was because of the feeding. I'm wondering if that may be something I overlooked. Will mention it on Monday.

I hope she gets a diagnosis and proper treatment very soon. If it is
Hirschsprung's it's a shame it wasn't picked up earlier, but that's not a reflection on you ! The GP will hopefully be better informed if another child presents with it.

Sweety, there is nothing you did, or didn't do to "miss" anything.

You have been flagging this up for the longest time, the gp has failed to resolve this if anything, by not listening to you etc, as have the continence nurses. By insisting on calling and going back YOU are finally getting the help she needs. You're saving her Sweety, not contributing to her potential condition.

We are always wise after the facts ..... My DS never had a solid nappy, I just presumed it was down to the amount of water he drunk all day, turns out he's was coeliac, I missed all the signs at first, I always had a reason. We are not perfect xx

At his 18m check the HV was aghast that DS1 had no testicles visible. Wanted to know how long he'd been like that. Why hadn't I sought help....

I didn't realise he was 'different'. First DS. My DM had three girls.

It's not your fault if she has got a condition and you didn't notice a subtle sign. You're not a doctor!! And you've been trying to get her help for ages. You've done your bit.

BTW - 3 unsuccessful ops later - DS1's testicles came down in their own time. :)

I wish I knew such kind hearted sane! people like you in RL! Works both ways my lovely

you did nothing wrong and nothing you did caused this. In fact it was you being a great mum that's got you the treatment you have the first week and some possible answers.

Hope you have a restful (actually I hope it's full of shit [wink)] Sunday and you get further forward tomorrow.

Sweetie it's because your little dd has a tiger mummy who's observant and alert and has stood up for what she can see her child needs that she finally has a diagnosis and will now be getting the right help. You've been amazing in what you've achieved for her. Your GP is going to be red faced to put it mildly. 'My daughter has hirshprungs' is going to be taken far more seriously in future than 'my toddler's constipated', and she will have a proper treatment plan and support. Very relieved to hear it's the milder form bless her, poor little girl.

Littlemae is there any movement? I'm hoping your lack of posting may mean that things have started.

Thank you, I do need to remember it was a failing of the gp and not myself but I am overwhelmed with guilt at all the suffering she has been through and we just took it in our stride like and go on with it. We should have got her help sooner. It wouldn't have come to this if we had.

We have been trying to make do the house up a bit today, as a distraction.

She is not very well, is having nightmares and no poo at all today, not even overflow

That was full of errors. I'm usually a grammar nazi

But you DID get her help, and YOU were the one that got her the help way sooner than the GP - a trained medical professional (!) - would have done!! It's because of you that things are finally being taken seriously and she is on the road to getting better, and you managed that in the face of a professional pooh-poohing you! That takes some serious strength to do that - you are one strong woman, even if you don't feel like it

I would highly highly recommend Anthony Cohn's book "constipation, withholding and your child". We have some issues with 4yo ds (nothing like as severe as yours) and it's been very helpful and informative. I'm off to the gp tomorrow, again, to talk about where we go from here...

Are her nightmares about what's been happening do you know? Also, how old is she again? I can't find the original thread and can't remember. Sorry.
I would really be pushing for that play therapy, or maybe get some books about pooing to read with her?

You've done your best in the face of unhelpful gp support; that's all you can do as a parent, your best. Do you think she withholds? At the start of all this I mean...

Misty, I think you really ought to read all of this thread. Don't worry about the previous one.

*littlemaemae, how much more would your DD have suffered had you not (1) asked for advice and (2) pushed for the treatment she needed? I honestly don't think that you have anything to feel guilty about not that that will stop you

Oh LittleMae. Don't blame yourself. Who knew that something wasn't right? You did.

Something was wrong enough you posted in AIBU, where you were likely to get a roasting, & MN agreed with you. Something was wrong. You knew that. We knew that.

You are a wonderful Mum, but you, like me, are not a specialist Dr for these things.

You have done everything you possibly could for your daughter, & then some more. You have no reason to feel guilty. You should feel proud of what you have achieved for you & your lovely DD over the last few days.

You have been to hell & back & you are still coping. Many others wouldn't.

Just keep going. You are already stronger than you thought you could be.

I have read all of this one shadow and the first one. I just can't remember how old her dd is.

misty she is 3 and she isn't withholding, her problems are physical, not psychological.

I'm so sorry to see i was right. OP I only know about it because I went through similar when my dd was tiny. I know how awful it feels. Big hugs for you - it's not your fault. I hope the hospital get it properly resolved soon

Thank your for reminding me of her age.

littlemae I'm not for one minute suggesting that the problem is psychological in cause. I know hirschsprungs is suspected and hope you get lots of support to cope with that. But with all she's been through she is highly likely to be very sensitive about toileting now, and if withholding wasn't an issue in the past, it may be now. Hence suggesting the play therapy earlier in the thread.
I think you've been an amazingly strong mum throughout all this and your children are lucky to have you as their mum. You are certainly not to blame for what your dd is going through. I wish you all the best for the future - and if getting play therapy through hospital isn't possible then you could ask your health visitor

I said it earlier on the thread about Leicester - I do know which hospital you are in.

PLEASE do not leave it until the afternoon to chase. The docs / staff on his weekend may not prioritise the referral amongst a busy Monday morning. In fact she has not passed it by the morning I would consider going back in and insisting on a transfer to Leicester as the next step.

You are doing an amazing job and are NOT losing your mind at all x

You are doing absolutely great. Don't waste energy on guilt, you have done, and are doing your best for her. You looked for help from your GP, and trusted their word, as a medical professional. As we all do, and as we should expect to be able to do. Please don't blame yourself in any way.
I hope that things improve rapidly, and that your DD gets whatever is the appropriate treatment that she needs. You are a great mother, keep on keeping on. Take care.

I think Misty9 has a good point - if littlemae wasn't sensitive about pooing before she may well be now, and that's something that the HCPs should be taking into account and even (shock!) trying to counteract. Given their approach to her care so far, it makes sense to flag the issue FAO littlemae's mum so she can get tiger on it......

Oh LittleMae, you poor things! What a traumatic time you're all having. I have been thinking about you all weekend, and sincerely hope that things move on this week. Poor little thing

Someone had mentioned play therapy, this is what I do (but not in your area) if you want any info/links on how to find registered therapists then do PM me.

Sometimes the word play therapist is incorrectly used interchangeably with hospital play specialist (as opposed to a play worker) HPS sessions are possibly what you need to help with the medical side in hospital and helping with anxiety around procedures etc. I know MNer who is one and will point her to this thread to see if she has any ideas on how to get some help.