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AIBU?

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Original poster

to go to A&e with my dd3 *pictures*

975 replies

littlemaemae · 29/03/2016 13:57

My DD who is 3 has been having stomach/bowel problems for the last year. Diagnose as constipation. She can not pass a stool for weeks despite fantastic diet and laxatives and weeks is in severe pain most days. She is very petite and skinny but her stomach has swollen to look 9 months pregnant. Getting no where with doctors/hospital etc.
Aibu to think this is not how a heathy child's stomach should look.

OP posts:
pupsiecola · 30/03/2016 19:49

Not her insides, but the contents of her colon.

Badders123 · 30/03/2016 19:51

Is it picolax?
I had that last year.
Jesus, if that doesn't get her moving NOTHING will...I lost 3kgs in 24 hours! I thighs my teeth were going to come out at one point!
Seriously op.
Please go to a and e,
I really do not say that lightly.
I know how awful it is to have a sick child and not be listened to but you are her only advocate.

lougle · 30/03/2016 19:56

She's impacted up to the ribs. That movicol is going to draw water into the stool it can get to, but that's going to be at the beginning of the impaction. The softened stool will liquify, then it will have to leak around the rest of the impaction to escape via the anus. Then the next bit of impaction will be softened and so on. It's a quick fix at high doses for a bout of impaction, but it's not going to resolve a whole gut length of impaction quickly.

I understand that enemas are aggressive but it sounds like this is a very severe case of impaction. Have they not even offered glycerine suppositories?

Please do watch for any signs of deterioration in her breathing, temperature, heart rate, skin colour, etc.

lougle · 30/03/2016 20:02

Well the trouble with movicol, vagueIdeas, I'd that it's primary function is to prevent the bowel from absorbing the water that is present and instead allowing the stool to absorb it and soften. If it doesn't have very much water with it, it won't be very effective. It will still have some effect, but it can't trap water that isn't there. Having said that, if a child had a sachet of movicol mixed into a very small jelly, then followed it with a beaker of water or squash, the movicol isn't going to care that the water wasn't mixed with it first.

perfumedlife · 30/03/2016 20:03

I can't believe the continence nurse was sent not aware your your dd's history. Unacceptable. Infact, from what I've read on here and elsewhere, the NHS is woefully behind the curve in treating this illness. Several adults I know have been left to crowdfund and get seen privately, ending up with stomas the neglect went on so long.

I'd be in A&E until the poo was out.

notamummy10 · 30/03/2016 20:03

Please go to A&E, even if it does take all night- she'll be in the right place!!

IwillrunIwillfly · 30/03/2016 20:04

The people saying to go to a and e, what do you think they'll be able to do that the op can't do at home tonight? The nurse sounds like she's on the ball and the fact that someone's getting in touch tomorrow is good and means they can escalate things aren't improving, and follow this up so they don't get this bad again. Obviously if op was worried things were getting worse tonight then she could take her to a and e, but in the mean time what do people that are saying they would go to a and e hope they would do tonight? I think op is doing the best for her dd by keeping her comfortable at home giving her the medicine that she's been prescribed and pushing for follow up.

LionsLedge · 30/03/2016 20:11

This reply has been deleted

Message withdrawn at poster's request.

Expellibramus · 30/03/2016 20:15

Has the question been asked to the nurse and GP if 'if there's an underlying cause could this regime be harmful'?

IwillrunIwillfly · 30/03/2016 20:17

The only thing people have suggested for a and e is enemas (which are not always appropriate in paediatric impaction) and scans which aren't going to help with the acute problem. You're totally right that the nurse didn't handle things well when she first went out, but it sounds like she'd not been given the full story before she went out and so didn't treat the case right straight away. However the fact tha she's making a referral to a specialist despite the gp refusing, and getting her boss to call tomorrow shows she's taking it seriously.

But he only important thing is that ops dd gets better soon and the the op has more support from hcp's going forward. Hope you get a good rest tonight op and maybe a nice big Wine

LionsLedge · 30/03/2016 20:22

This reply has been deleted

Message withdrawn at poster's request.

99percentchocolate · 30/03/2016 20:24

I really feel for you both OP, my dd had this with an impact ion up to her rib cage. The Drs kept giving us a few days worth of movicol and that would be it. We were at a&he and the walk in so frequently getting suppositories that it was ridiculous. They wouldn't prescribe anything unless she hadn't been to the toilet in a month.
Meanwhile DD wouldn't do anything other than sit on the sofa watching TV and crying. The screams when she tried to go to the toilet were awful.
In the end we changed Drs and were told to put her on 8 sachets of movicol a day (started lower and then increased daily). The watery poos were a nightmare and we couldn't leave the house but the Dr insisted that we keep giving them until she passed something solid. It took a month but she finally passed a solid lump long after we gave up hope of it happening.
It was a horrible month but worth it in the end as with a 2 sachet maintenance dose we haven't had any problems in over a year. My dd is finally a happy, active little girl - it's incredible.
I really hope that you find a solution soon, will be holding your hand in spirit.

EvansAndThePrince · 30/03/2016 20:27

I agree that even if a&E can't clear her out there and then (which they may or may not be able to do, we don't know) it does at least get you in a different loop and you may be immediately referred on elsewhere. I think I'd take her or get dp to, just for that reason alone. The worst that can happen is that they can't do anything and you have to keep at it yourselves until your referral.

EvansAndThePrince · 30/03/2016 20:29

That's fantastic loins!

mcdog · 30/03/2016 20:33

I cannot believe this is going on still!!!!! Your poor DD :(

Go to A&E, she needs an enema and, if necessary, manual evacuation.

Sometimesithinkimbonkers · 30/03/2016 20:33

Yep... Pico lax is sodium picosulphate

The dr Is fobbing you off by giving you Senna!!!!!

Pico is a really strong drug but it sounds like it's needed here... Senna won't touch the sides!

mcdog · 30/03/2016 20:34

Oh and Senna is a fob off.

LionsLedge · 30/03/2016 20:35

This reply has been deleted

Message withdrawn at poster's request.

Headofthehive55 · 30/03/2016 20:36

The movicol regime suggested certainly works well for my DD but we do it slightly slower ( her preference).
I guess it might not for everyone. However I remember being equally frustrated, sat in a and e refusing to leave until it was sorted, as I didn't really think the movicol would work adequately.

I have come to realise though that the movicol regime for us works the best but it's been a bit of trial and error.

So let's hope you gets some result, somehow!

ImNotThatGirl · 30/03/2016 20:37

Oh poor baby. I don't have any advice but I wanted to send support to you both. You're doing a good job, please don't doubt yourself. Keep pushing for your DD.

tkband3 · 30/03/2016 20:41

Senna won't help - it just contracts the gut so will cause her more pain but won't clear the impaction. Picolax would help - when DT2 was in hospital she was given something like 150ml of picolax over the course of the day before each dose of Kleen Prep. She also had three enemas over the course of her hospital stay.

VagueIdeas · 30/03/2016 20:44

The people saying to go to a and e, what do you think they'll be able to do that the op can't do at home tonight?

Plenty.

They can X ray to determine the extent of the impaction and take a look at how grossly overstretched her guts are. They can give enemas and suppositories. They can admit her for manual evacuation under anaesthetic (as mentioned by previous posters).

Movicol is going to start working by softening the faeces stuck at the beginning of the gut. It will take an age before it works its way through the entire colon.

DubiousCredentials · 30/03/2016 20:52

This thread is very upsetting Sad You have been so badly treated. Your poor little dd.

Please get her to a&e.

bakeoffcake · 30/03/2016 20:55

My DD had to have an enema after not going for 8 days. The relief from pain was absolutely instant.

So while an enema is rather "dramatic" it bloody well works!

horseygeorgie · 30/03/2016 20:56

Your treatment has been shocking. I think you need to complain about that GP and bloody well see it through, it is appalling he can treat you like that.

I would get her to A&E.

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