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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To wonder how many of you not on the organ donor register

237 replies

Normalisavariantofcrazy · 19/05/2014 12:33

Would be happy to accept an organ on behalf of yourself or a relative?

If you are, excluding health reasons, why are you not on the organ donor register? Is it just a case of not getting round to it, if so

register here

OP posts:
EnglishRose1320 · 19/05/2014 13:26

I remember registering years ago, do I need to register again because I have moved house?

My partner won't register, he wants to be buried whole- I have tried everything to convince him but he has some odd ideas and wont be budged.

ErnestShufflebottom · 19/05/2014 13:26

Not at the mo but am currently looking into donating my brain after death. I have epilepsy and would love to think I could play a part in finding a cure. Will need to add to my will, DP is supportive.

OurMiracle1106 · 19/05/2014 13:29

The only thing I want left with me is my eyes. I have said they can take anything of any use however I am on a lot of medication so not sure any of it will be useful.

ICanSeeTheSun · 19/05/2014 13:30

I am and will also donate my DC if something terrible was to happen to them.

GreenEyedGoblin · 19/05/2014 13:32

I wish they would have an opt out system. I'd be happy with that.

But for me, I can't sign up as an organ donor. It gives me a creepy tempting-fate feeling and I can't bring myself to do it. But yes, I would accept an organ if needed.

EnglishRose1320 · 19/05/2014 13:37

I also think an opt out system would be great, I think everyone has a right to decide but I think most people just don't think about it and don't get round to doing it. If you had to opt out I think everyone would actively think about it and make a more informed choice.

Gileswithachainsaw · 19/05/2014 13:38

I am on the register. Promoted actually by another thread.

So thank you and I hope others see this and sign up because god forbid it could be our child one day who needs an organ and that wouldn't be possible if others didn't agree to it.

LangenFlugelHappleHoff · 19/05/2014 13:40

Already registered, they can have what they like. I ain't gonna be using it Smile

MaidOfStars · 19/05/2014 13:43

I am on the register, as is my husband. I say "no" to an opt-out system though. For me, the right of bodily autonomy should be granted automatically, not something that one should have to take extraordinary measures to exercise.

CrohnicallyHungry · 19/05/2014 13:43

I have a code on my driving licence that means they can take my organs. IIRC there was just a box to tick when I applied for it, and now it acts as a donor card.

I don't know if they'd actually want my organs now though seeing as I have an illness that means I can't donate blood- does anyone know if the rules are the same?

Chippednailvarnish · 19/05/2014 13:43

I can remember a thread on MN where people admitted they would accept a donated organ but wouldn't register as a donor.

Very depressing, given the organ waiting lists. Sad

WanderingOakensHoohoo · 19/05/2014 13:45

We're getting an opt-out system her in Wales - the legislation has been passed (or all but). However, next-of-kin will still have the power to refuse consent. So, what's actually more important is having that conversation with your loved ones, saying that yes, horrible situation etc, but this is what you would want.

WanderingOakensHoohoo · 19/05/2014 13:46

And a donor card, or the ticked box on your driving licence means jack shit, seriously! It's not a legal document. You can have it tattooed to your forehead and they still need a next-of-kin to sign that form.

MaidOfStars · 19/05/2014 13:47

The only thing I want left with me is my eyes

This is a common objection (at least, anecdotally), not one I've ever got. I work in medical genetic research, particularly involving blindness conditions, and I always think that giving someone the gift of sight is absolutely awe-inspiring (even more so than giving them a means to clean blood, although a donated kidney will, of course, keep someone alive longer).

MaidOfStars · 19/05/2014 13:48

An improvement to the current system would be to prevent next-of-kin overriding the deceased's wishes. If bodily autonomy is key, than you are the only one who should choose what happens.

rocketjam · 19/05/2014 13:48

On the list, so is DH. I donate blood as often as I can - and also on list for blood marrow transplant.

treaclesoda · 19/05/2014 13:52

I'm on the transplant register and have been since I turned 18 and could do so. DH is too.

I have reservations about an opt out system because of the reasons already mentioned, but in practical terms it does make a lot of sense.

It makes me quite angry when people say they would want to receive but wouldn't want to donate tbh.

Gileswithachainsaw · 19/05/2014 13:53

An improvement to the current system would be to prevent next-of-kin overriding the deceased's wishes. If bodily autonomy is key, than you are the only one who should choose what happens

Couldn't agree more. His many of the next of kin are in too much of a state to even think about it. And how bad must the nurses and drs feel having to ask then when their mum/dad/sister/spouse has just died.

I know what I want. I expect that to be done and the idea I as an adult would he over ridden actually takes the mick.

AmeliaToppingLovesShopping · 19/05/2014 13:53

I'm on the organ donor register. Do you need to do it again once your married?

Gileswithachainsaw · 19/05/2014 13:53

How many

TortoiseUpATreeAgain · 19/05/2014 13:54

"for me, the right of bodily autonomy should be granted automatically, not something that one should have to take extraordinary measures to exercise."

Right now, though, it's not a "right" you have at all. In the event of your death your next of kin gets to decide what happens to your organs and there are no measures that you can take, extraordinary or otherwise, to opt out of their decision.

So an opt-out system would either (a) increase your right of bodily autonomy (in a scenario where your register status overrode next of kin's opinion) or (b) leave it unchanged (in a scenario where next of kin still made the decision but your register status gave doctors an "in" to broaching the subject).

TheNightIsDark · 19/05/2014 13:55

I'm down to donate everything but my eyes. DCs are not on it as yet (ongoing argument with DP) but I would like them to be.

OldFarticus · 19/05/2014 13:56

I am not on the register because of a previous malignancy - I can't give blood either. There are actually a large number of conditions that preclude organ donation - it's wrong to assume everyone can register.

I would accept an organ if it was required.

angelos02 · 19/05/2014 13:58

But for me, I can't sign up as an organ donor. It gives me a creepy tempting-fate feeling and I can't bring myself to do it. But yes, I would accept an organ if needed

I think this is one of the most selfish things I have read on MN for a long time. People are dying every day whilst waiting for organs.

I think there should be a system in which you either agree in donation or you don't. Can't have it both ways.

MichaelaS · 19/05/2014 14:02

I think there should be a link between opting in and ability to receive.

All those with medical conditions precluding donation are allowed to receive organs if they need them.

Anyone else - if you're not on the donor register you don't get to receve an organ if you need one.

Might focus the mind a little.

OK so this is woefully simplistic but you get my meaning.